[Familyhealthnotes] Family Health Notes - August 2015

Institute for Disability Studies

Family Health Notes

 

August 2015

 

Inside this issue:

 

1) Hearings Scheduled Statewide on School Funding Initiatives – August and September

2) Webinar - Medical Home: Primary Health Care We All Deserve – September 2, 12 p.m.

3) Medical Home Provides Partnership for Families

4) About Autism in Toddlers – Free Online Tool

5) Parent Checklist to Help Ensure that Children Thrive at School

6) Talk, Read, Sing Together Every Day! Toolkit

7) August is National Eye Exam Month and National Immunization Awareness Month

_______________________________________________________________

 

1) Hearings Scheduled Statewide on School Funding Initiatives – August and September

 

Mississippians can express their opinions about proposed school funding initiatives during a series of public hearings in late summer. The hearings, announced by Secretary of State Delbert Hosemann, will run through Sept. 8. The initiatives will appear on the Nov. 3 ballot. Initiative 42 would require lawmakers to fund “an adequate and efficient system of free public schools.” Initiative 42-A says lawmakers must fund “an effective system of free public schools.”

The hearings, each starting at 5:30 p.m., will be held:

» Aug. 13 at the Gale Center in Hernando

» Aug. 17 at the Link Centre in Tupelo

» Aug. 20 at Temple Theater in Meridian

» Aug. 27 at Delta State University’s Bologna Performing Arts Center in Cleveland

» Sept. 1 at the Jackie Dole Sherrill Community Center in Hattiesburg

» Sept. 3 at Lynn Meadows Discovery Center in Biloxi

» Sept. 8 at the Mississippi School for the Arts auditorium in Brookhaven

For more information, visit http://www.sos.ms.gov/About/Pages/Press-Release.aspx?pr=610. 

 

2) Webinar - Medical Home: Primary Health Care We All Deserve – September 2, 12 p.m.

 

This presentation is an overview of what a medical home is and why, as a parent of a child/youth with a special health care need, you should advocate to implement it as standard care. This presentation will also cover the origins and evolution of the medical home model, talking to your primary care manager (PCM), what should be offered and the positive outcomes to having a medical home. Shawn Smith, parent consultant for the Mississippi Family to Family Health and Information Center (MS F2F) at The University of Southern Mississippi Institute for Disability Studies, is the presenter for this webinar which is co-sponsored with the Mississippi Parent Training and Information Center (MSPTI). To register, go to https://attendee.gotowebinar.com/register/7227743407768780290.

 

3) Medical Home Provides Partnership for Families

 

The family-centered partnership is the cornerstone to medical home; it is the trusting, collaborative, working partnership between providers and families, respecting diversity and recognizing that families are the constant in a child’s life. Want to learn more about establishing a medical home for your family? For more information, visit http://www.medicalhomeinfo.org/for_families/partner_with_physician.aspx. In Mississippi, email Shawn Smith with Mississippi’s Family to Family Health Information and Education Center (MS F2F) at ksmith@ihl.state.ms.us.

 

4) About Autism in Toddlers – Free Online Tool

 

A new online tool, About Autism in Toddlers, is now available free of charge for parents and professionals interested in learning how to recognize the early signs of autism spectrum disorder in very young children. The tool includes videos on the core features of autism and information on the importance of early identification. This is the first in a series of free online tools being developed as part of Autism Navigator, a collection of resources created by the Autism Institute at Florida State University College of Medicine. Additional free resources and tools will be available in coming months. For more information, to watch a preview (3:21 minutes) or to register, visit http://autismnavigator.com/resources-and-tools/#about.

 

5) Parent Checklist to Help Ensure that Children Thrive at School

 

A new parent checklist includes key questions, tips, and resources that parents and caregivers can use to help ensure that their children are getting the education they deserve. It was developed by the U.S. Department of Education in collaboration with America Achieves, National Council of La Raza, National PTA, and the United Negro College Fund. A blog in English and Spanish provides more information. The checklist follows the recent release of the Set of Rights from the Department outlining what families should be able to expect for their children's education - from access to quality preschool to an affordable, quality college degree. For a copy of the six-page checklist, visit http://www2.ed.gov/documents/family-community/parent-checklist.pdf. Visit the English blog at http://www.ed.gov/blog/ and the Spanish blog at http://www.ed.gov/blog/2015/07/una-nueva-guia-para-padres-habilita-la-participacion-de-las-familias-en-la-educacion/. The Set of Rights is available at http://www.ed.gov/blog/2015/06/the-critical-voice-of-parents-in-education-2/.   

 

6) Talk, Read, Sing Together Every Day! Toolkit

 

The U.S. Departments of Health and Human Services and Education, in partnership with Too Small to Fail, are providing these critical resources to families, caregivers, and early learning providers. Talk, Read, Sing Together Every Day is a free suite of resources that can help enrich children’s early language experiences by providing tips for talking, reading and singing with young children every day beginning from birth and extending into the early years. To view the blog, visit http://toosmall.org/blog/engaging-families-and-communities-to-bridge-the-word-gap#skip_intro. For resources, visit http://toosmall.org/community/resources#Guides. 

 

7) August is National Eye Exam Month and National Immunization Awareness Month

 

Set up an eye exam. It’s important to make sure that your eyes and your families eyes are in good condition. The Vision Council of America notes that 12.2 million Americans require some sort of vision correction but don’t use any. Nearly 50% of parents with children under 12 have never taken their children to an eye care professional. Five reasons why they should have an eye examination:

1. Save a headache - Unexplained headaches could be a sign that you need glasses or a new prescription

2. Perform well in school - One out of every four children has vison problems. A common reason children fall behind in school is poor, undetected vision.

3. Determine prescription - Your eyes change over time. An optometrist can determine if you need eyeglasses or contact lenses, or if you need a stronger prescription to reduce eyestrain and help you see better.

4. Detect eye conditions - With an eye exam, an optometrist can spot the early signs of diabetes, high blood pressure, glaucoma and high cholesterol.

5. Prevent conditions - Many serious eye diseases often have no systems. An eye exam can help detect the early signs of diseases, such as macular degeneration or cataracts. Early detection is key to prevent serious damage.

 

Immunization helps prevent dangerous and sometimes deadly diseases. Talk to your doctor or nurse to make sure that everyone in your family gets the shots they need to stay protected against serious illnesses like the flu, measles and pneumonia. Adults need to get their shots—just like kids do.

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

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****************************************

 

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

 

Questions may be addressed to

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OR

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[Familyhealthnotes] IDS Web Site Survey

Institute for Disability Studies

 

July 8, 2015

 

 

Please assist the Institute for Disability Studies (IDS) in providing valuable information for individuals with disabilities, their families and service providers by taking a short survey of the IDS website before Friday, July 24:  the 2-second survey.

 

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit www.usm/edu/ids or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit www.usm.edu/ids/supportus.html.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

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****************************************

 

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

 

Questions may be addressed to

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OR

ksmith@ihl.state.ms.us

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[Familyhealthnotes] Family Health Notes - July 2015

Institute for Disability Studies

Family Health Notes

 

July 2015

 

Inside this issue:

 

1) ADA Celebration – July 10, Jackson

2) The Power of ME! Conference – July 14-15, Brandon

3) Transportation Coordination Summit – July 16, Jackson

4) Work Incentives Webinar – July 28, 1 p.m.

5) Medical Home Provides Partnership for Families

6) July Is National Minority Mental Health Awareness Month

7) Video Illustrates Importance of Inclusion for All Children

8) Journey to Life After High School

9) Hearings Scheduled Statewide on School Funding Initiatives – August and September

____________________________________________________________

 

1) ADA Celebration – July 10, Jackson

 

July marks the 25th anniversary of the Americans with Disabilities Act (ADA). LIFE of Mississippi is hosting an anniversary celebration on July 10, from 11 a.m. to 2 p.m. at the LIFE office at 1304 Vine Street in Jackson. Enjoy food, games, speakers and fellowship. For more information, call LIFE at 601.969.4009.

 

2) The Power of ME! Conference – July 14-15, Brandon

 

The Power of ME! Unlocking the Power Within Conference will be held July 14–15, from 8 a.m. to 4 p.m. at Brandon High School in Brandon. Sponsored by the Rankin County School District’s Special Education Department and parents together with the Mississippi Parent Training and Information Center (MSPTI), the conference is open to all parents, educators and advocates of special education throughout the state. The conference is offering exciting sessions covering a wide-range of topics. Dr. Jeri LaVigne of Atlanta, creator of The Efficient Brain Series, is the keynote speaker. CEUs will be offered. For more information, visit http://events.r20.constantcontact.com/register/event;jsessionid=D7A21F5A59684246D58805F5EAC587DE.worker_registrant?llr=julfnscab&oeidk=a07eb1a8bmp4e4cbcd4 or call Holladay Burnham with the Rankin County School District at 601.825.5590. To register for the free conference, visit https://events.r20.constantcontact.com/register/eventReg?oeidk=a07eb1a8bmp4e4cbcd4&oseq=&c=069f6b80-20b4-11e3-a14a-d4ae5275dbc8&ch=06ed3d60-20b4-11e3-a196-d4ae5275dbc8.

 

3) Transportation Coordination Summit – July 16, Jackson

 

The Mississippi Department of Transportation is holding the Statewide Transportation Coordination Summit 2015 on July 16, from 8 a.m. until 4 p.m. at the Marriot Downtown in Jackson. The goal of the summit is to retool regional transportation efforts through the development of an educational and awareness campaign targeted to local public and private organizations and consumers. For information on the summit or to register, visit https://www.regonline.com/builder/site/default.aspx?EventID=1711169.

 

4) Work Incentives Webinar – July 28, 1 p.m.

 

The Mississippi Partners for Informed Choice Program is a Work Incentives Planning and Assistance (WIPA) project which is 100% federally funded by the Social Security Administration (SSA). This project serves beneficiaries with disabilities between the ages of 14 to 64 with an employment goal. There are nine Community Work Incentive Coordinators (CWICs) and one Project Coordinator that provide direct benefits counseling and assistance to eligible beneficiaries receiving SSDI or SSI throughout Mississippi. The CWICs help beneficiaries understand how work may affect their benefits and understand the work incentives that are available for those beneficiaries wanting to transition to work. During this webinar, participants will learn about Age 18 Redetermination, how work may or may not impact SSDI or SSI benefits, and what work incentives are available. This webinar is cosponsored by the Mississippi Partnerships for Employment (MSPE) project at the Institute for Disability Studies at The University of Southern Mississippi and the Mississippi Parent Training and Information Center (MSPTI). To register, visit https://attendee.gotowebinar.com/register/8021752430103030018.

 

5) Medical Home Provides Partnership for Families

 

The family-centered partnership is the cornerstone to medical home; it is the trusting, collaborative, working partnership between providers and families, respecting diversity and recognizing that families are the constant in a child’s life. Want to learn more about establishing a medical home for your family? For more information, visit http://www.medicalhomeinfo.org/for_families/partner_with_physician.aspx. In Mississippi, email Shawn Smith with Mississippi’s Family to Family Health Information and Education Center (MS F2F) at ksmith@ihl.state.ms.us.

 

6) July Is National Minority Mental Health Awareness Month

 

Aiming to improve access to mental health treatment and services for multicultural communities through increased public awareness, the U.S. House of Representatives proclaimed July National Minority Mental Health Awareness Month in 2008. For more information about minority mental health in America, visit http://www.psychiatry.org/practice/professional-interests/diversity/diversity-month/fact-sheets-on-disparities.

 

7) Video Illustrates Importance of Inclusion for All Children

 

A new video on early childhood inclusion has been posted to California's Desired Results Access Project Video Library. The video illustrates how essential early childhood inclusion is for all children, including those who cannot be in close proximity to other children because of health concerns. In “Getty's Window to Inclusion: The Chance To Be Just Like Any Other Kid” (runtime 14:55 minutes), Kate Mathany describes how her daughter Getty virtually attends a typical preschool classroom every day using a device called a VGo. Getty’s mother and a preschool teacher illustrate how her school day works from both home and classroom perspectives. They discuss preschool inclusion, parent leadership, the use of adaptations, collaboration, teamwork, and the benefits of inclusion for all children, families, and teachers. The video can be viewed online and downloaded at no cost for use in educational and professional development activities. To view, go to https://vimeo.com/128526973.

 

8) Journey to Life After High School

 

AbilityPath, in partnership with Best Buddies and Special Olympics, has published “The Journey to Life After High School: A Road Map for Parents of Children with Special Needs.” This comprehensive guide examines the laws that impact a child with special needs, the importance of the individualized education plan, and the different paths a child can take as they transition to adulthood. The guide includes a national directory of state agencies that assist families to find the support services they need. For more information, visit http://www.abilitypath.org/areas-of-development/transition-to-adulthood/life-after-high-school/.

 

9) Hearings Scheduled Statewide on School Funding Initiatives – August and September

 

Mississippians can express their opinions about proposed school funding initiatives during a series of public hearings in late summer. The hearings, announced by Secretary of State Delbert Hosemann, will run from Aug. 11 through Sept. 8. The initiatives will appear on the Nov. 3 ballot. Initiative 42 would require lawmakers to fund “an adequate and efficient system of free public schools.” Initiative 42-A says lawmakers must fund “an effective system of free public schools.”

The hearings, each starting at 5:30 p.m., will be held:

» Aug. 11 at the Jackson State University e-Center in Jackson

» Aug. 13 at the Gale Center in Hernando

» Aug. 17 at the Link Centre in Tupelo

» Aug. 20 at Temple Theater in Meridian

» Aug. 27 at Delta State University’s Bologna Performing Arts Center in Cleveland

» Sept. 1 at the Jackie Dole Sherrill Community Center in Hattiesburg

» Sept. 3 at Lynn Meadows Discovery Center in Biloxi

» Sept. 8 at the Mississippi School for the Arts auditorium in Brookhaven

For more information, visit http://www.sos.ms.gov/About/Pages/Press-Release.aspx?pr=610. 

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

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****************************************

 

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

 

Questions may be addressed to

Alma.Ellis@usm.edu

OR

ksmith@ihl.state.ms.us

 

_______________________________________________

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[Familyhealthnotes] Family Health Notes - June 2015

Institute for Disability Studies

Family Health Notes

 

June 2015

 

Inside this issue:

 

1) 2015 Mississippi disAbility MegaConference – June 18-19, Jackson

2) Developmental Screening Days – June 9, Hernando and Meridian

3) IDS Gulf Park Adventure Therapy Program – June and July, Long Beach

4) Webinar: Resilience, Coffee, and Community: How Parents Advocate for CSHCNs – June 17

5) Fact Sheet on Health Essentials

6) Celebrate World Sickle Cell Awareness Day – June 19

7) Hearings Scheduled Statewide on School Funding Initiatives – August and September

_______________________________________________________________

 

1) 2015 Mississippi disAbility MegaConference – June 18-19, Jackson

 

The 25th year anniversary of the Americans with Disabilities Act (ADA) is the focus of the 4th annual Mississippi disAbility MegaConference scheduled for June 18 and 19, at the Marriott Downtown in Jackson. The MegaConference provides world-class speakers, interactive workshops with a Mississippi focus and exhibits of products and services. There is an annual awards luncheon and a fun evening gala. On Wednesday evening, June 17, from 5 to 6:30 p.m., MegaConference attendees and their families will have the opportunity to take part in Dream Night at the Jackson Zoo. For more information and to register, visit http://msmegaconference.org/.  

 

2) Developmental Screening Days – June 9, Hernando and Meridian

 

The early years of a child’s development are crucial. If you or your child’s physician, child care provider or pre-K teacher has concerns about your child’s development, plan to attend these free developmental screening events. A screening will be held on June 9, from 9 a.m. to 6 p.m. in Hernando at the First Regional Library at 370 West Commerce Street. A screening day will also be held from 9 a.m. to 6 p.m. in Meridian at Meridian Community College in room 135 B of the Reed Building 910 Highway 19 North. Please call in advance to register for these screenings sponsored by the Early Years Network. For more information or to register, call Shelley Ezelle, MS, at 601.432.6179. For more information about Early Years Network, visit http://earlyyearsnetwork.msucares.com/.

 

3) IDS Gulf Park Adventure Therapy Program – June and July, Long Beach

 

In June and July, the Institute for Disability Studies Gulf Park Campus and Mississippi Gulf Coast Community College are partnering to bring the Mississippi Gulf Coast an Adventure Therapy Program unlike any other. Included in the program are low ropes courses (low off the ground team building activities), high ropes courses (high up, requiring a harness), and kayaking (using a canoe-like boat over water). The program targets people with developmental disabilities who are 12-years-old and up and who complete a participation application.  For more information or to register, contact IDS Gulf Park at 228.214.3400, email william.t.edwards@usm.edu or visit https://www.usm.edu/sites/default/files/groups/institute-disability-studies/pdf/44164-ids-adventure-therapy-fly.pdf.

 

4) Webinar: Resilience, Coffee, and Community: How Parents Advocate for CSHCNs – June 17

 

Family Voices of California is hosting a free webinar, “Resilience, Coffee, and Community: How Parents Advocate for Children with Special Needs,” on June 17, at 2 p.m. CDT. In this interactive lecture and discussion, Sarah Taylor, MSW, PhD, will share insights from her personal journey in advocating for her 8-year-old superkid with fragile x syndrome. She’ll also share the experiences of 300 parents who participated in the study about how they advocate for their own children and others. To register, visit https://attendee.gotowebinar.com/register/8348943998021425410.

 

5) Fact Sheet on Health Essentials

 

This new fact sheet from the Association of Maternal and Child Health Programs (AMCHP) provides suggestions for ways Title V programs can help improve the Essential Health Benefits for maternal and child health populations, including children and youth with special health care needs. Title V is the oldest federal-state partnership grant program and has provided a foundation for ensuring the health of the nation’s mothers, women, children and youth, including children and youth with special health care needs and their families, for over 75 years. For a copy of the fact sheet, visit http://www.amchp.org/Transformation-Station/Documents/AMCHP%20EHB%20fact%20sheet%20May%202015.pdf.

 

6) World Sickle Cell Awareness Day – June 19

 

June 19 is World Sickle Cell Awareness Day. Sickle Cell Disease (SCD) is the most frequent genetic disease worldwide. It is present on four continents. It is estimated that 500,000 babies are born every year with this severe condition and that 50% of them will die before they reach five years of age. SCD is trans-ethnic as well trans-continental, affecting black populations of African origin and Arabic, Indian and Caucasian populations from southern Europe. To learn more about SCD, visit http://www.mssicklecellfoundation.org/ or http://www.curesicklecell.org/.

 

7) Hearings Scheduled Statewide on School Funding Initiatives – August and September

 

Mississippians can express their opinions about proposed school funding initiatives during a series of public hearings to be held in late summer. The hearings, announced by Secretary of State Delbert Hosemann, will run from Aug. 11 through Sept. 8. The initiatives will appear on the Nov. 3 ballot. Initiative 42 would require lawmakers to fund “an adequate and efficient system of free public schools.” Initiative 42-A says lawmakers must fund “an effective system of free public schools.”

The hearings, each starting at 5:30 p.m., will be held:

» Aug. 11 at the Jackson State University e-Center in Jackson

» Aug. 13 at the Gale Center in Hernando

» Aug. 17 at the Link Centre in Tupelo

» Aug. 20 at Temple Theater in Meridian

» Aug. 27 at Delta State University’s Bologna Performing Arts Center in Cleveland

» Sept. 1 at the Jackie Dole Sherrill Community Center in Hattiesburg

» Sept. 3 at Lynn Meadows Discovery Center in Biloxi

» Sept. 8 at the Mississippi School for the Arts auditorium in Brookhaven

For more information, visit http://www.sos.ms.gov/About/Pages/Press-Release.aspx?pr=610. 

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

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TO SUBSCRIBE

 

If this mailing was forwarded to you and you are not already subscribed to Family Health Notes, here’s how you can become a subscriber:

 

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TO UNSUBSCRIBE

 

Unsubscribe online at https://mailman.usm.edu/mailman/listinfo/familyhealthnotes and login with your email address and your password. If you do not have a password (they are emailed to members at the beginning of every month), contact one of the administrators listed below.

 

****************************************

 

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

 

Questions may be addressed to

Alma.Ellis@usm.edu

OR

ksmith@ihl.state.ms.us

 

_______________________________________________

Family Health Notes mailing list

familyhealthnotes@usm.edu

https://mailman.usm.edu/mailman/listinfo/familyhealthnotes

[Familyhealthnotes] Family Health Notes - May 2015

Institute for Disability Studies

Family Health Notes

 

May 2015

 

Inside this issue:

 

1) 2015 Mississippi disAbility MegaConference – June 18-19, Jackson

2)  Developmental Screening Days – May 11, Oxford; May 12, Canton

3) New IDS Gulf Park Adventure Therapy Program

4) National Women’s Health Week – May 10-16

5) National Survey About Siblings of Individuals with Disabilities

6) Building Your Medical Home

7) Transitioning from High School to College

8) Children’s Mental Health Week – May 3-9

9) Food Allergy Awareness Week – May 10-16

10) Better Hearing and Speech Month – May 1-31

 

______________________________________________________________

 

1) 2015 Mississippi disAbility MegaConference – June 18-19, Jackson

 

Honoring the Past, Recognizing the Present and Committing to the Future is the theme for the 2015 Mississippi disAbility MegaConference. This year marks the 25th year since the Americans with Disabilities Act (ADA) was signed into law. This remarkable ADA anniversary is the focus of the 4th Annual Mississippi disAbility MegaConference to be held on June 18 and 19, at the Marriott Downtown in Jackson. The MegaConference provides world-class speakers, interactive workshops with a Mississippi focus and exhibits of products and services. There is an annual awards luncheon and a fun evening gala. On the evening of June 17, from 5 to 6:30 p.m., MegaConference attendees and their families will have the opportunity to take part in Dream Night at the Jackson Zoo. Stipends are available. For more information and to register, visit http://msmegaconference.org/.  

 

2) Developmental Screening Days – May 11, Oxford; May 12, Canton

 

The early years of a child’s development are crucial. If you or your child’s physician, child care provider or pre-K teacher has concerns about your child’s development, plan to attend these free developmental screening events. A screening will be held on May 11, from 9 a.m. to 6 p.m. in Oxford at the Northwest Mississippi Family Resource Center at 1097 Jackson Avenue. On May 12, a screening day will be held from 9 a.m. to 6 p.m. in Canton at the Central Mississippi Family Resource Center at 140 West Peace Street. Please call in advance to register. For more information or to register, call Shelley Ezelle, MS, at 601.432.6179.

 

3) New IDS Gulf Park Adventure Therapy Program

 

The Institute for Disability Studies Gulf Park Campus and Mississippi Gulf Coast Community College are partnering to bring the Mississippi Gulf Coast an Adventure Therapy Program unlike any other. Included in the program are low ropes courses (low off the ground team building activities), high ropes courses (high up, requiring a harness), and kayaking (using a canoe-like boat over water). The program targets people with developmental disabilities who are 12-years-old and up and who complete a participation application.  For more information or to register, contact The University of Southern Mississippi Institute for Disability Studies Gulf Park Campus at 228.214.3400 or email william.t.edwards@usm.edu. Visit the Facebook page at www.facebook.com/usmidsgulfparkcampus.

 

4) National Women’s Health Week – May 10-16

 

National Women’s Health Week is an observance led by the U.S. Department of Health and Human Services Office on Women’s Health. This week serves as a time for women to understand the steps they can take to improve their health. For more information, visit http://www.womenshealth.gov/. National Women’s Health Week is also a time to focus on health insurance literacy. “A Roadmap to Better Care and a Healthier You” is a guide to help newly insured women and their families understand how to find a provider, make a doctor’s appointment, prepare for their first visit, and take advantage of important preventive service. The guide is available at https://marketplace.cms.gov/outreach-and-education/downloads/c2c-roadmap.pdf.  

 

5) National Survey About Siblings of Individuals with Disabilities

 

The Sibling Leadership Network is studying the support needs of siblings of individuals with disabilities. The survey is for siblings of people with disabilities, parents of people with disabilities, people with disabilities and professionals working with disabilities and their families. This online survey takes less than 30 minutes to complete and is available in English and Spanish. To take the survey, visit http://siblingleadership.org/research/research-related-to-siblings-of-individuals-with-disabilities/national-survey-about-siblings-of-individuals-with-disabilities/.

 

6) Building Your Medical Home

 

A medical home is not a building or a place. It’s an approach to providing comprehensive primary care that facilitates partnerships between patients, clinicians, medical staff and families. Care within a medical home should be accessible, continuous, comprehensive, patient- and family-centered, coordinated, compassionate and culturally effective. The National Center for Medical Home Implementation provides tools and resources to advance the knowledge and understanding of medical home for pediatricians and their staffs. For more information and multiple resources, visit https://medicalhomes.aap.org/Pages/form-a-medical-home-improvement-team.aspx.

 

7) Transitioning from High School to College

 

Transition is a word that describes a process of moving from one point to another. Transitioning from high school to college can be overwhelming for any student and parent but for students with special health care needs it can seem impossible. Here are two websites that provide information to help you prepare your student for life after high school: http://www2.ed.gov/about/offices/list/ocr/transitionguide.html and http://www.parentcenterhub.org/repository/transitionadult/. 

 

8) Children’s Mental Health Week – May 3-9

 

It’s easy to know your child needs help dealing with a fever or a broken bone, but mental health problems can be harder to identify. The tricky part of parenting is knowing the kinds of behaviors and moods that are usual for the stage of development your child is in—and when your child has gone beyond the norm and needs help. Get more information at the following websites: https://www.nami.org/  or in Mississippi http://www.namims.org/.

 

9) Food Allergy Awareness Week – May 10-16

 

This awareness week was created to educate the public about food allergies, a potentially life-threatening medical condition. This is a special opportunity to shine a spotlight on food allergies and anaphylaxis. For additional information about food allergies or how to get involved in the community outreach, visit http://www.foodallergy.org/ or download a helpful fact sheet at http://www.foodallergy.org/document.doc?id=384. 

 

10) Better Hearing and Speech Month – May 1-31

 

The early stages of speech, language and communication disorders are easier to spot when you know the signs. This month provides an opportunity to raise awareness about communication disorders. Check out ways to identify the signs and know what to do about suspected communication disorders at this link: http://identifythesigns.org/ or in Mississippi http://www.mshausa.org/index.php.

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

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[Familyhealthnotes] Family Health Notes - Special Edition - Minority Health Disparities Awareness Fair

Institute for Disability Studies

Family Health Notes

 

Special Edition – April 16, 2015

 

Minority Health Disparities Awareness Fair

 

Thursday, April 30

8 a.m. to 3:30 p.m.

Jackson Medical Mall/First Floor Community Room

350 West Woodrow Wilson, Jackson, Miss.

 

Empower yourself. Improve you health.

 

April is National Minority Health Month. Join the Mississippi Family to Family Health and Information Center and LIFE of Mississippi at the Jackson Medical Mall Community Room for the 2015 Minority Health Disparities Awareness Fair and community forum. This event will feature exhibitors, health resources, health trivia and distinguished speakers in a community forum.

 

8:30 a.m. to 2:30 p.m. – Exhibitors, Health Resources and Information – Walkways

1:30 to 3:30 p.m. – Speakers and Statewide Parent/Professional Advisory Council – Community Room

 

Speakers

Dr. Gail Smith, Mississippi Sickle Cell Foundation Board Member; Retired Pediatric Hematologist/Oncologist

Sarah Abraham, Program Coordinator, Diabetes Foundation of Mississippi

Mark Dixon, Assistant Director of Programs, Walter Payton Health and Wellness Complex

 

For more information, contact Shawn Smith, F2F family specialist, at 601.432.6929 or ksmith@ihl.state.ms.us.

 

The Minority Health Disparities Awareness Fair is sponsored by the Family to Family Health Information and Education Center and the AmeriCorps project of LIFE of Mississippi.

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit www.usm.edu/ids/supportus.html.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

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[Familyhealthnotes] Family Health Notes - April 2015

Institute for Disability Studies

Family Health Notes

 

April 2015

 

Inside this issue:

 

1) Children and Youth with Special Health Care Needs – Needs Assessment Survey

2)  Art Ability Fair – Apr. 9, Biloxi

3) Developmental Screening Days – Apr. 14, Starkville; Apr. 21, Petal

4) National Minority Health Month

5) New AT Information

6) Finding Balance: Obesity and Children with Special Needs

7) Promoting Long-Term Health for Children with Special Health Care Needs

_______________________________________________________________

 

1) Children and Youth with Special Health Care Needs – Needs Assessment Survey

 

The Children Medical Program (CMP) at the Mississippi State Department of Health is interested in hearing from parents and care givers of children with special health care needs (CYSHCN). The 40-question survey concludes with an area for comments. This survey is not restricted to CMP patients and may be shared with any parents or caregivers. To complete the survey, go to https://www.surveymonkey.com/s/PBTM5BB.

 

2) Art Ability Fair – Apr. 9, Biloxi

 

Adults and children over age eight with intellectual disabilities including autism are invited to register for this free day to explore a variety of art classes at the sixth Art Ability Fair. The event is scheduled for Thurs., Apr. 9, from 9 a.m. until 1:30 p.m. at the Donal Snyder Community Center in Biloxi. Activities include pottery, painting, crafts, photography and dancing. Rock N Roll is the theme for this year’s fair, and Elvis will be in the building. Registration is necessary. For more information, contact Disability Connection at 228.604.4020 or office@disabilityconnection.org or visit http://disabilityconnection.org/.

 

3) Developmental Screening Days – Apr. 14, Starkville; Apr. 21, Petal

 

The early years of a child’s development are crucial. If you or your child’s physician, child care provider or pre-K teacher has concerns about your child’s development, plan to attend these free developmental screening events. A screening will be held on Apr. 14, from 9 a.m. to 4 p.m. in Starkville at MSU Child Development and Family Studies at 501 College View Street. On Apr. 21, a screening day will be held from 9 a.m. to 4 p.m. in Petal at the Center for Families and Children at 201 West Central Avenue. Please call in advance to register. For more information or to register, call Shelley Ezelle, MS, at 601.432.6179 or Leslie LaVergne, PhD at 601.266.6225.

 

4) National Minority Health Month

 

April is National Minority Health Month. “30 Years of Advancing Health Equity” is the theme of the National Minority Health Month 2015. This year marks the 30th anniversary of the Report of the Secretary’s Task Force on Black and Minority Health released in 1985. This landmark report marked the first convening of a group of health experts by the U.S. government to conduct a comprehensive study of racial and ethnic minority health and elevated minority health to a national stage. All Americans are reminded to take action toward ending health disparities in their community.

 

5) New AT Information

 

The AbleData project has released three new articles available as PDF files that focus on assistive technology (AT). AT for Parenting with a Disability highlights products that make day-to-day tasks like feeding, changing, transporting and monitoring children easier for parents with disabilities.

http://abledata.com/sites/default/files/AT%20for%20Parenting%20with%20a%20Disability_PDF.pdf.

Make Your Own Tech Still Works for Many covers low- and medium-tech do-it-yourself AT solutions.

http://abledata.com/sites/default/files/Make%20Your%20Own%20Tech%20Still%20Works%20for%20Many_PDF.pdf.

Voting Success for People with Disabilities covers voting rights and technology to improve voting access.

http://abledata.com/sites/default/files/Voting%20Success%20for%20Those%20with%20Disabilities_PDF.pdf.

AbleData is funded by the National Institute on Disability and Rehabilitation Research (NIDRR). Visit the AbleData website at http://abledata.com/.

 

6) Finding Balance: Obesity and Children with Special Needs

 

Children with special needs are far more likely to be overweight or obese than their counterparts according to Finding Balance: Obesity and Children with Special Needs, a groundbreaking report produced by AbilityPath.org, an online resource hub and social community for parents and professionals serving the needs of adults and children with disabilities. This report, the first to focus exclusively on how obesity affects children with disabilities, presents not only the extent and causes of the problem, but also offers practical solutions for families and others caring for these children. To view and print the report, visit http://www.abilitypath.org/health-daily-care/health/growth-and-nutrition/articles/obesity/pdfs/obesity-report.pdf.

 

7) Promoting Long-Term Health for Children with Special Health Care Needs

 

Life Course Theory, which promotes a life-span approach to an individual’s health, is taking hold in adult medicine, but adoption has been slow in pediatric practices. Promoting Children’s Long-Term Health and Functioning: Applying a Life course Approach to Pediatric Care for Children with Special Health Care Needs, a report by the Lucille Packard Foundation for Children’s Health, proposes a framework to help pediatric practices become life course settings for children with special health care needs. For more information on Life Course Theory and a copy of the report, visit http://lpfch-cshcn.org/publications/research-reports/promoting-childrens-long-term-health-and-functioning-applying-a-life-course-approach-to-pediatric-care-for-children-with-special-health-care-needs/. 

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

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****************************************

 

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

 

Questions may be addressed to

Alma.Ellis@usm.edu

OR

ksmith@ihl.state.ms.us

 

_______________________________________________

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https://mailman.usm.edu/mailman/listinfo/familyhealthnotes