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[Familyhealthnotes] Family Health Notes - December 2016

Institute for Disability Studies

Family Health Notes

December 2016

Inside this issue:

1) Open Enrollment for the 2017 Insurance Marketplace

2) Central Mississippi Sibshop – January 13, 6:30 p.m., Ridgeland

3) Get Your Flu Shot ASAP!

4) Tips for Hydrating in Cold Weather

5) Policy Statement on Media and Young Minds

6) Girls and Autism

7) Free Monthly Tobacco Cessation Newsletter and Flyer

_______________________________________________________________

1) Open Enrollment for the 2017 Health Insurance Marketplace

You can now enroll or change your health insurance through the 2017 Marketplace.

Important dates to remember:

November 1, 2016: Open enrollment started — first day to enroll, re-enroll, or change a 2017 insurance plan through the Health Insurance Marketplace. Coverage can start as soon as January 1, 2017.
December 15, 2016: Last day to enroll in or change plans for coverage to start January 1, 2017.
January 1, 2017: 2017 coverage starts for those who enroll or change plans by December 15.
January 31, 2017: Last day to enroll in or change a 2017 health plan. After this date, you can enroll or change plans only if you qualify for a Special Enrollment Period.

For more information or to enroll, visit https://www.healthcare.gov/.

2) Central Mississippi Sibshop – January 13, 6:30 p.m., Ridgeland

Sibshops are a pedal-to-the-metal event of hope where siblings of individuals with disabilities will meet other sibs, have fun, laugh, talk about the good and not-so-good parts of having a sib with special needs, play some great games, learn something about the services their brothers and sisters receive, and have some more FUN! A Central Mississippi sibshop will be held for Jackson-area siblings ages 8 to 13 on Fri., Jan. 13, 2017, from 6:30 to 9 p.m. at the Pear Orchard Presbyterian Church at 750 Pear Orchard Road in Ridgeland. For more information, visit https://www.facebook.com/centralmssibshops/ or contact Claire Shrader at ceshrader@ms.edu or Katie Nelson at katieorr.nelson@gmail.com.

3) Get Your Flu Shot ASAP!

Flu is a seasonal threat that can result in extended illness or hospitalization. Seasonal flu vaccination is the best way to protect adults and children from the flu. Yearly flu shots are recommended by the Centers for Disease Control for everyone six months of age and older. Flu vaccination can reduce flu illnesses and prevent flu-related hospitalizations and death. It takes about two weeks after vaccination for protection against the flu to take effect. Mississippi State Department of Health county clinics are offering pediatric flu vaccinations for children up to age 18. Beginning in 2016, adult flu vaccinations are offered only for those who lack health insurance coverage or who are underinsured and who meet certain high-risk criteria.

4) Tips for Hydrating in Cold Weather

Although we tend to think of it as a summertime concern, colder temperatures and drier air can also lead to dehydration. This can cause your body to feel sluggish and run-down, with muscle fatigue and a lowered immune system being some side effects. Use these tips to stay hydrated this winter:

1. wear layers

2. match your drink to the duration of your activity

3. hydrate with room-temperature beverages

4. eat water-rich fruits and vegetables

5. limit alcohol and caffeine

For more information on where to get a flu shot or about staying hydrated, contact your MS Family2Family Parent Coordinator, Keishawna Smith, at 601.432.6929 or at ksmith@ihl.state.ms.us.

5) Policy Statement on Media and Young Minds

Media and Young Minds, a new policy statement from the American Academy of Pediatrics (AAP), addresses the influence of media on the health and development of children from 0 to 5 years of age, a time of critical brain development, building secure relationships, and establishing health behaviors. This document reviews the existing literature on a variety of traditional and new technologies, their potential for educational benefit, and related health concerns for young children. The statement also highlights areas in which pediatric providers can offer guidance to families in managing the content and time limits of their children’s media use. It emphasizes the importance of parents interacting with their children during media use and the importance of not displacing other developmentally healthy activities—sleep, exercise, play, reading aloud and social interaction. To review this information, visit http://pediatrics.aappublications.org/content/early/2016/10/19/peds.2016-2591.

6) Girls and Autism

The fall issue of Autism Spectrum News looks at the unique needs of girls and women with autism. Every article in the 32-page newsletter addresses an aspect of autism for females: misdiagnoses, successful initiatives, employment, and social life. There are family-centered articles on page 18, “How Autism Manifests Differently in Girls: What Families Need to Know,” and page 23, “How Supported Decision-Making Can Help Family Caregivers.” To download a copy of the newsletter, visit http://www.mhnews-autism.org/back_issues/ASN-Fall2016.pdf.

7) Free Monthly Tobacco Cessation Newsletter and Flyer

Need tobacco cessation information? A free monthly tobacco cessation newsletter and flyer are available through the Tobacco Control Strategies project of the Institute for Disability Studies at The University of Southern Mississippi. The TCS News addresses tobacco prevention and provides cessation tips and timely tobacco cessation special event information, particularly directed toward use by people with disabilities, mental illness or substance abuse disorders and their service providers. The monthly cessation flyer is aligned with holidays and health-related awareness events. These easily printed electronic materials focus on the effects of tobacco use, secondhand smoke and resources for tobacco cessation. The Tobacco Control Strategies project is funded by the Mississippi State Department of Health Office of Tobacco Control. For more information or downloadable copies of these materials and more, visit the TCS resources page https://www.usm.edu/disability-studies/tobacco-cessation-resources or on Facebook at https://www.facebook.com/mstobaccocessation. The join the monthly email lists, contact Alma Ellis at alma.ellis@usm.edu.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - November 2016

Institute for Disability Studies

Family Health Notes

November 2016

Inside this issue:

1) Open Enrollment for the 2017 Health Insurance Marketplace

2) “Got Info?” Parents 4 Parents Network Meeting – Tupelo, November 15

3) SPARK - Help Speed Up Autism Research

4) Person-Centered Planning in Action Workshop

5) Milestones in Action: A Free Library of Photos and Videos of Developmental Milestones

6) Reaching and Engaging with Hispanic Communities

7) Mississippi Employment Commercial

8) Guide for States/Communities Responding to the Needs of Children Affected by Zika

_______________________________________________________________

1) Open Enrollment for the 2017 Health Insurance Marketplace

You can now enroll or change your health insurance through the 2017 Health Insurance Marketplace.

Important dates to remember:

November 1, 2016: Open enrollment started — first day to enroll, re-enroll or change a 2017 insurance plan through the Health Insurance Marketplace. Coverage can start as soon as January 1, 2017.
December 15, 2016: Last day to enroll in or change plans for coverage to start January 1, 2017.
January 1, 2017: 2017 coverage starts for those who enroll or change plans by December 15, 2016.
January 31, 2017: Last day to enroll in or change a 2017 health plan. After this date, you can enroll or change plans only if you qualify for a Special Enrollment Period.

For more information or to enroll, visit https://www.healthcare.gov/.

2) “Got Info?” Parents 4 Parents Network Meeting – Tupelo, November 15

Come learn more about how to be a partner in the health care decision-making for your child with a special health care needs (CYSHCN). Learn how to navigate health systems and get the “know how” for speaking up for families like yours. Fellowship with other parents with CYSHCN. The “Got Info?” meeting will be held on Tues., Nov. 15, at the Family Resource Center at 425 Magazine Street in Tupelo from 5–7 p.m. For questions or additional information, contact Ashley Privett in Tupelo at 662.844.0013 or Keishawna Smith at 601.432.6929 or toll free at 1.866.883.4474.

3) SPARK - Help Speed Up Autism Research

SPARK is a free online study with a simple mission: to speed up research and advance the understanding of autism. A project of the University of Mississippi Medical Center, SPARK is a landmark research partnership that will connect researchers to a large group of individuals with autism and their biological families. To learn more about SPARK and register online via a secure portal, visit www.SPARKforAutism.org/UMMC.

4) Person-Centered Planning in Action Workshop

The Administration for Community Living (ACL) has posted a series of videos from a Person-Centered Planning in Action Workshop. The workshop, held in August, introduced an example of a long-term services and supports system that has embraced person-centered thinking, planning and practices. The District of Columbia’s No Wrong Door system has incorporated the approach throughout all aspects of home- and community-based services for older adults and people with disabilities, including independent living and behavioral health services. To view the Workshop on YouTube, visit https://www.youtube.com/watch?v=BjQkk7TcRtE&list=PLZLMVKd8yBA0SkbcH0OguQZyj_qhC1tIQ.

5) Milestones in Action: A Free Library of Photos and Videos of Developmental Milestones

What skills your child should have at certain ages? Use this library as an aid in completing the milestones checklist for your child’s age. To see the photos and videos with milestones checklists, visit www.cdc.gov/Milestones.

6) Reaching and Engaging with Hispanic Communities

The Child Trends Hispanic Institute recently published Reaching and Engaging with Hispanic Communities: A Research-Informed Communication Guide for Nonprofits, Policymakers, and Funders, a guide designed to help service providers and educators build communication strategies to better serve Latino children and their families. For a printable copy of the guide, visit http://www.childtrends.org/wp-content/uploads/2016/09/2016-51LatinoCommunicationsGuide.pdf.

7) Mississippi Employment Television Commercial

Mississippi Partnerships for Employment (MSPE), a recently completed five-year integrated employment project working to develop policies and remove systemic barriers for the employment of youth and young adults with intellectual and developmental disabilities, released a statewide commercial in October that features real Mississippians with disabilities who are working or want to work. To view the commercial, which appeared statewide, visit YouTube https://www.youtube.com/watch?v=fu_E9iIHGwM.

8) Guide for States/Communities Responding to the Needs of Children Affected by Zika

The Health Resources and Services Administration (HRSA) has published the “Resource Guide for States and Communities Caring for Infants and Children Affected by Zika Virus.” This guide is intended as a planning resource for states and communities as they develop a coordinated response to meet the immediate and long-term needs of infants and children affected by ZIKV, and their families.

This 25-page document is available by visiting http://www.hrsa.gov/zika/resourcesforchildrenzika.pdf.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - October 2016

Institute for Disability Studies

Family Health Notes

October 2016

Inside this issue:

1) Mississippi Family2Family Advisory Council Meeting – Oct. 14, Jackson

2) Free Webinar: “Skills for Effective Parent Advocacy” – Oct. 19, 12 p.m.

3) Disability Awareness Conference – Oct. 24-25, Jackson

4) Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care Broadcast Site – Oct. 27-28, 8 a.m. to 4 p.m., Jackson

5) National Disability Employment Awareness Month

6) Health Care Coverage/Financing For CYSHCN: A Tutorial To Address Inequities

_______________________________________________________________

1) Mississippi Family2Family Advisory Council Meeting – Oct. 14, Jackson

Come join the MS F2F Advisory Council to explore transition and the other 5 key measures of quality healthcare. Let’s explore Title V in MS and how new changes are affecting your family. You will also have an opportunity to join the advisory council. The meeting will be held on Oct. 14, at 1:30 p.m. in the Technology Room of the Institutions for Higher Learning Building at 3825 Ridgewood Road in Jackson. If you plan to attend or need accommodations at the meeting, please contact Shawn Smith at 601.432.6929 or ksmith@ihl.state.ms.us.

2) Free MSPTI Webinar: “Skills for Effective Parent Advocacy” – Oct. 19, 12 p.m.

What does it mean to be an “advocate”? An advocate is a supporter, backer, believer and promoter. Parents can be all of these. The goal of this free online workshop is to expand parents’ skills to become more effective advocates. Mississippi Parent Training and Information Center Director Pam Dollar, a parent and advocate, will teach what advocacy means, how to improve advocacy skills and how to make a difference. Participants will learn six critical skills to becoming an effective advocate. Participants will also be provided with useful tips on how to locate resources, be organized, communicate effectively and resolve disagreements. For more information or to register, visit https://attendee.gotowebinar.com/register/4557953262892532225.

3) Disability Awareness Conference – Oct. 24-25, Jackson

The City of Jackson and the Mississippi Department of Rehabilitation Services (MDRS) will host the Disability Awareness Conference October 24-25, 2016, from 8 a.m. to 3 p.m., at the Jackson Marriott, located at 200 East Amite St., in Jackson. This free event, promoting the observance of National Disability Employment Awareness, will provide individuals with disabilities an opportunity to learn about the various resources available to them in the community. This year’s conference will offer educational breakout sessions on topics on assistive technology in the classroom, ethics, advocacy, and the history of the Americans with Disability Act. CEUs will be available for teachers, counselors and social workers. For more information about the conference, contact Sam Gleese, ADA Coordinator for the City of Jackson, at 601.960.1863 or sgleese@city.jackson.ms.us.

4) Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care Broadcast Site – Oct. 27-28, 8 a.m. to 4 p.m., Jackson

Less than 50% of families nationwide indicate their children with special health care needs have received the services necessary to make appropriate transitions to adult health care, work, and independence. Preparation and planning for health care transition is inadequate. Because of increased awareness of transitioning to adult-based care, clinicians are required to update their knowledge of the changing strategies for integrating emerging adult-based care into practice. Join the Mississippi Family2Family Health and Information Center for the 17^th Annual Chronic Illness and Disability Conference: “Transition from Pediatric to Adult-based Care” on Oct. 27 and 28 from 8 a.m. to 4 p.m. in the Technology Room in the basement of the IHL Building at 3825 Ridgewood Road in Jackson. For conference participants, there will be a discussion of the legal issues involved in health care transition. After the conference

· participants will be able to identify the current state of health care transition in the United States, including legal and financial issues

· discuss strategies for integrated health care transition

· develop a practice-based framework for implementing health care transition services

· identify barriers and successful strategies when placing youth/young adults with special health care needs, behavioral health, or intellectual disabilities into employment, housing, and available medical transition services, and

· describe successful disease management methods for young adults with chronic illness or disability.

For more conference information, visit http://www.baylorcme.org/pdfs/1519%20-%20Chronic%202016_Brochure_Final%20v4.pdf.

To register or for additional information about the local broadcast site, contact Shawn Smith at 601.432.6929 or ksmith@ihl.state.ms.us.

5) National Disability Employment Awareness Month

Inclusion works for opportunity, business and innovation! National Disability Employment Awareness Month (NDEAM) is held each October to educate the public about employment issues for people with disabilities and celebrate the many and varied contributions of America's workers with disabilities. What does workplace inclusion look like? Help us tell your stories by sharing your images on the MSF2F Facebook page during the entire month of October, National Disability Employment Awareness Month. Visit https://www.facebook.com/idsfamily2family, include the hashtag #InclusionWorks.

6) Health Care Coverage/Financing for CYSHCN: A Tutorial to Address Inequities

The Catalyst Center recently created a tutorial to help maternal and child health leaders, family leaders, and other stakeholders understand and address health care coverage inequities that exist among vulnerable subgroups of children and youth with special health care needs. For more information about the tutorial plus links to a webinar introducing the module and the tutorial, visit http://cahpp.org/resources/inequities-tutorial.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - September 2016

Institute for Disability Studies

Family Health Notes

September 2016

Inside this issue:

1) Family Engagement in Title V Programs

2) School Mornings Without Stress

3) Your Child’s Strengths

4) September is National Sickle Cell Awareness Month

5) More Health Issues Fall Under ADA Protections

6) The Influence of Health Care Policies on Children's Health and Development

_______________________________________________________________

1) Family Engagement in Title V Programs

Family participation plays an essential role in state Title V Maternal and Child Health (MCH) programs. Family participation refers to individuals who are involved in a range of activities that engage families in the planning, development, and evaluation of programs and policies at the community, organizational and policy level. Family members volunteer, advise or are employed by state Title V MCH or Children and Youth with Special Health Care Needs (CYSHCN) programs. Families bring unique insight and experience and are prepared to advocate on behalf of MCH. For more information on family participation, visit http://www.amchp.org/programsandtopics/family-engagement/Pages/default.aspx.

2) School Mornings Without Stress

What is the best way to get your child up and out the door with the least amount of conflict? This article from the Child Mind® Institute agrees that school mornings are tough for families with stress levels reaching their peak, regardless of whether their children have a disability or not. The article recommends several solid tips for making mornings work more smoothly. For more information, visit http://childmind.org/article/school-mornings-without-the-stress/?utm_medium=email&utm_source=childmind&utm_content=7+-+strategies+for+getting+kids+ready+to+go&utm_campaign=weekly&source=weekly.

3) Your Child’s Strengths

Want to work with your child to identify his or her strengths? You and your child can work together on this hands on activity. Round up some markers, or crayons, scissors and tape. For the activity sheet with instructions, visit https://www.understood.org/~/media/972a63a8a93943fcaefe57e515a6b1b7.pdf.

4) September is National Sickle Cell Awareness Month

National Sickle Cell Awareness Month was first officially recognized by the federal government in 1983. The annual awareness event calls attention to sickle cell disease (SCD), a genetic disease that researchers estimate affects around 100,000 Americans. If you, your child or someone you love has SCD, you should learn as much as you can about the disease. Your health care providers and the Mississippi Family2Family are here to help you, so you should feel completely comfortable asking questions. For more information about Sickle Cell Disease, visit http://www.sicklecelldisease.org/, contact your local SCD Foundation or email the Mississippi Family2Family Parent Coordinator Keishawna Smith at ksmith@ihl.state.ms.us.

5) More Health Issues Fall Under ADA Protections

New rules from the U.S. Department of Justice will help clarify a broadened definition of "disability" under the Americans with Disabilities Act (ADA). The department is acting on an amendment passed by Congress in 2008 to include cancer, epilepsy, attention-deficit/hyperactivity disorder and other disorders under ADA protections. For more information, visit the DisabilityScoop at https://www.disabilityscoop.com/2016/08/16/regulations-broaden-covered-ada/22632/.

6) The Influence of Health Care Policies on Children's Health and Development

The Society for Research in Child Development (SRCD) recently published a new Social Policy Report, The Influence of Health Care Policies on Children's Health and Development (2016). The report looks at how health care policies influence child health and development, reviews the current state of health insurance for children and families in America, describes new models of health care, including models that connect health care with other community services, and discusses new promising strategies in child health care. For a copy of the report, visit http://srcd.org/sites/default/files/documents/spr29.4_final.pdf.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - August 2016

Institute for Disability Studies

Family Health Notes

August 2016

Inside this issue:

1) Short Survey to Help Determine IDS Emphasis Areas

2) Fight the Bite

3) Sickle Cell Support Group – August 6, Jackson

4) Children’s Medical Program

5) 8 Things to Remember about Child Development

6) Ensuring Quality, Accessible Care for Children with Disabilities and Complex Health and Educational Needs

7) Recordings from Co-Occurring Developmental Disabilities and Mental Health Issues in Transition-Aged Youth Conference

8) Presidential Proclamation - Anniversary of the Americans with Disabilities Act, 2016

_______________________________________________________________

1) Short Survey to Help Determine IDS Emphasis Areas

Your opinion is important! The Institute for Disability Studies (IDS) is developing a five-year plan and needs your opinion. Please help IDS learn which areas of emphasis relating to disabilities are important to you. Your participation will help determine vital program focus areas. Please take five minutes to complete the short survey by visiting https://usmep.co1.qualtrics.com/jfe/form/SV_eWCtXoaQxyg3Bch by September 2, 2016.

2) Fight the Bite

Mosquito-borne illnesses in Mississippi include the West Nile virus, St. Louis encephalitis, the Chikungunya virus and Eastern Equine encephalitis. These viruses cause flu-like symptoms in people who are bitten by infected mosquitoes. Covering arms and legs with long, light-colored clothing is a good way to protect your children and yourself from mosquito bites. To learn more ways to protect your family from mosquitoes, visit http://msdh.ms.gov/msdhsite/_static/14,0,93.html?i=WestNileInterior#Information.

3) Sickle Cell Support Group – August 6, Jackson

The Sickle Cell Support Group will meet at 11 a.m. Saturday, August 6, at the Jackson Medical Mall. For more information, contact Jeanne Tate at jeannejtate@yahoo.com or 601.366.5874.

4) Children’s Medical Program

The Mississippi State Department of Health’s Children’s Medical Program (CMP) provides family-centered care coordination services for children and youth with special health care needs (CYSHCN). If your child has a chronic illness or disability, CMP may be able to help. CMP will work with you and your health care providers to arrange and organize services as well as identify needs and resources to improve the health and well-being of your child. For more information on qualifications and eligible conditions, visit http://msdh.ms.gov/msdhsite/_static/41,0,163.html.

5) 8 Things to Remember about Child Development

The Center on the Developing Child at Harvard University has published a new brief, 8 Things to Remember about Child Development, taken from the recent report, From Best Practices to Breakthrough Impacts. The Center also recently published a 3-minute video, The Case for Science-Based Innovation in Early Childhood, describing the Center's vision for using science to innovate in the early childhood field and fundamentally change the lives of children facing adversity. To download a copy of the brief and for a link to the full report, visit http://developingchild.harvard.edu/resources/8-things-remember-child-development/.

6) Ensuring Quality, Accessible Care for Children with Disabilities and Complex Health and Educational Needs

The National Academies Press has published, Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs, a summary of a workshop held by the Forum on Promoting Children's Cognitive, Affective, and Behavioral Health. The goal of the workshop was to explore the needs and challenges faced by individuals and families affected by disabilities and complex conditions, as well as opportunities and innovative approaches for those conditions. To read the summary, visit http://www.nap.edu/read/23544/chapter/1.

7) Recordings from Co-Occurring Developmental Disabilities and Mental Health Issues in Transition-Aged Youth Conference

Are you looking for information on topics concerning transition-aged youth? View session recordings and corresponding slides from the Children's Hospital Los Angeles and University Of Southern California's Community Education Conference. There are over 15 presentations that cover transition-related topics such as making and keeping friends in young adulthood, excessive restraint and seclusion in schools, competitive integrated employment, and the impact of health and fitness in the special needs community. To view the videos, visit http://www.uscucedd.org/upcoming-events/event-archive/ucedd-conference-march-2016/videos.

8) Presidential Proclamation - Anniversary of the Americans with Disabilities Act, 2016

The United States marked a pivotal moment in history for Americans with disabilities on July 26, 1990. The Americans with Disabilities Act (ADA) became a law. Twenty-six years later, the ADA is recognized as milestone law for the disability community. To read the Presidential Proclamation honoring the anniversary of the ADA, visit https://www.whitehouse.gov/the-press-office/2016/07/25/presidential-proclamation-anniversary-americans-disabilities-act-2016.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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