Family to Family

_______________________________________________

Family Health Notes mailing list

https://mailman.usm.edu/mailman/listinfo/familyhealthnotes

[Familyhealthnotes] Family Health Notes - Special Edition - Disability Partners Community Forums

Institute for Disability Studies

Family Health Notes

Special Edition – July 30, 2014

Statewide Community Forums

The Mississippi Council on Developmental Disabilities, Disability Rights Mississippi and The University of Southern Mississippi Institute for Disability Studies, Mississippi’s Developmental Disabilities Network partners, will host their annual statewide community forums in August. These community forums allow Mississippi’s DD Network partners an opportunity for hearing concerns and issues to help improve services for individuals with disabilities and their families. Each meeting will be held from 5:30 to 7:30 p.m. The free town hall type meetings will be held on the following dates in Southaven, Hattiesburg and Philadelphia at these locations:

· August 7 – Southaven, First Regional Library, 8554 Northwest Drive

· August 14 – Hattiesburg, Hattiesburg Train Depot, 308 Newman Street

· August 19 – Philadelphia, Neshoba County Library, 230 Beacon Street

For more information, transportation assistance or an accommodation request, call 1.800.772.4057.

Sign language interpreters will be present at each event.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

***********************************

SUBSCRIBE/UNSUBSCRIBE

***********************************

TO SUBSCRIBE

If this mailing was forwarded to you and you are not already subscribed to Family Health Notes, here’s how you can become a subscriber:

TO UNSUBSCRIBE

****************************************

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

Questions may be addressed to

_______________________________________________

Family Health Notes mailing list

https://mailman.usm.edu/mailman/listinfo/familyhealthnotes

[Familyhealthnotes] Family Health Notes - July 2014

Institute for Disability Studies

Family Health Notes

July 2014

Inside this issue:

1) Webinar: Special Enrollment Periods for the Uninsured – July 16, 12 p.m.

2) Why Oral Health Is Important for CYSHCN

3) Baby Milestones

4) Home and Community-Based Services Advocacy

5) Got Transition’s Updated Website

_______________________________________________________________

1) Webinar: Special Enrollment Periods for the Uninsured – July 16, 12 p.m.

Open enrollment for health insurance marketplace coverage closed on March 31; the next open enrollment period begins on November 15, 2014. However, individuals who experience certain qualifying life events, such as getting married or turning 26 and losing coverage through a parent's plan, have 60 days to apply for a special enrollment period and obtain new coverage. A webinar, hosted by Health and Human Services' (HHS) Faith-based and Neighborhood Partnership Center, provides an opportunity to learn about special enrollment periods and how to enroll in the marketplaces. There will also be a discussion about resources for individuals without insurance who do not qualify for a special enrollment period. Register for the webinar at https://www4.gotomeeting.com/register/835132719.

2) Why Oral Health Is Important for CYSHCN

Parents of children and youth with special health care needs have so many doctors’ appointments that it can be easy to overlook preventive care, especially dental care. Learn more about the importance of good dental care for CYSHCN and how to access it from an information-filled national Family Voices blog. Visit the dental care blog dated June 17, at http://www.fv-ncfpp.org/blog/why-oral-health-important-children-special-needs-how-access-it/.

3) Baby Milestones

What are the motor milestones for typically developing babies? Pediatrician Lisa Shulman discusses motor milestones from head control to walking for babies from birth to 24 months and what pediatricians look for during a well-baby visit in a video now available from Albert Einstein College of Medicine (NY LEND/UCEDD). To view the video, go to https://www.youtube.com/watch?v=G5wWVNYLBVk. Motor milestones is the second video in a two video set; the first video reviews communication milestone. To view the communication video, go to http://www.youtube.com/watch?v=pZSjm0drIGM.

4) Home and Community-Based Services Advocacy

The Association of University Centers on Disabilities (AUCD), the National Association of Councils on Developmental Disabilities and the Disability Rights Network have launched a new website to help advocates get involved in their states and improve the implementation of the new Medicaid rule regarding the settings of home and community-based services. The site provides links to official Centers for Medicare and Medicaid Services (CMS) resources, national advocacy resources and information for each state on their HCBS transition/compliance process. Visit the site at http://hcbsadvocacy.org/.

5) Got Transition’s Updated Website

Got Transition is pleased to announce the release of the Six Core Elements of Health Care Transition (Version 2.0), which define the basic components of transition support and are based on the 2011 Clinical Report on Health Care Transition developed by the American Academy of Pediatrics, the American Academy of Family Physicians and the American College of Physicians. Three transition tool packages are now available for 1) practices serving youth transitioning out of pediatric care, 2) practices serving youth remaining with the same provider but needing to transition to adult-focused care, and 3) practices accepting new young adults into adult care. Each package, available in English and Spanish, includes sample tools, feedback surveys, and measurement tools that are customizable and available for download. Got Transition is also launching its redesigned website with the latest transition information for health professionals, youth/young adults and families and researchers and policymakers. For more information, visit http://www.gottransition.org/.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

***********************************

SUBSCRIBE/UNSUBSCRIBE

***********************************

TO SUBSCRIBE

If this mailing was forwarded to you and you are not already subscribed to Family Health Notes, here’s how you can become a subscriber:

TO UNSUBSCRIBE

****************************************

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

Questions may be addressed to

_______________________________________________

Family Health Notes mailing list

https://mailman.usm.edu/mailman/listinfo/familyhealthnotes

[Familyhealthnotes] IDS Web Site Survey

Institute for Disability Studies

Family Health Notes

June 25, 2014

Please assist the Institute for Disability Studies (IDS) in providing valuable information for individuals with disabilities, their families and service providers by taking a short survey of the IDS website before Friday, July 18: the 2-second survey.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

***********************************

SUBSCRIBE/UNSUBSCRIBE

***********************************

TO SUBSCRIBE

If this mailing was forwarded to you and you are not already subscribed to Family Health Notes, here’s how you can become a subscriber:

TO UNSUBSCRIBE

****************************************

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

Questions may be addressed to

_______________________________________________

Family Health Notes mailing list

https://mailman.usm.edu/mailman/listinfo/familyhealthnotes

[Familyhealthnotes] Family Health Notes - June 2014

Institute for Disability Studies

Family Health Notes

June 2014

Inside this issue:

1) Jackson Zoo Dreamnight 2014 – June 6, Jackson

2) Mississippi disAbility MegaConference – June 12-13, Jackson

3) Camp Looking Glass Presents Warfield Riverfest – June 14, Greenville

4) Gaps in Kids’ Dental Coverage

_______________________________________________________________

1) Jackson Zoo Dreamnight 2014 – June 6, Jackson

Dreamnight will provide children with special needs or chronic illness and their families with a private evening at the Jackson Zoo on Fri., June 6, from 5 to 6:30 p.m. Families can enjoy keeper chats and animal encounters as well as train and carousel rides. There will be entertainment by Inky the clown, Robert Day the magician, the Jackson Showboats basketball team and the Magnolia Roller Vixens. Refreshments will be provided by local area restaurants. Pre-registration is required. For more information, call 601.352.2500.

2) Mississippi disAbility MegaConference – June 12-13, Jackson

The Mississippi disAbility MegaConference, Mississippi's largest conference for individuals with disabilities, their families, and professionals, will be held Thurs., June 12, and Fri., June 13, at the Marriott Downtown in Jackson. Presentation topics for 2014 include: self-advocacy, disability policy, assistive technology/Bluetooth, Social Security Disability Work Incentives, community resources, abuse, employment, parent advocacy, traumatic brain injury, epilepsy, Medicaid, housing, EEOC/ADA, special education, inclusive child care, crisis intervention and systems change. Approximately 50 businesses, service agencies and disability organizations will share their latest programs, information and innovations. Continuing Education Units are offered in several disciplines. The closing keynote will be presented by Andy Imparato, executive director of the Association of University Centers on Disabilities. Stipends, if needed, for individuals with disabilities are provided by the Mississippi Council on Developmental Disabilities. For registration, hotel, agenda and all other information, visit http://msmegaconference.org/

3) Camp Looking Glass Presents Warfield Riverfest – June 14, Greenville

Camp Looking Glass has devoted its energies to improving the lives of children and your adults with physical and/or cognitive disabilities in the Mississippi Delta since 2004. A nonprofit organization, Camp Look Glass recently secured a generously donated land site as a permanent camp home. As part of the fundraising campaign to break ground and build a new home, Camp Looking Glass has organized the Warfield Riverfest. Proceeds from the festival benefit Camp Looking Glass and give the camp the opportunity to give back to a community that has embraced it. The Warfield Riverfest is scheduled for Sat., June 14, from 9 a.m. to 6 p.m. at Warfield Point Park in Greenville. For more information, visit http://warfieldriverfest.com.

4) Gaps in Kids’ Dental Coverage

Can teeth be the root of other health problems? The American Academy of Pediatric Dentistry (AAPD) says, “yes.” The report, The State of Little Teeth,” explains how poor oral health can put children at risk for general health problems such as earaches, diabetes, malnutrition and heart disease. Lack of dental health care can affect children’s intellectual and social development and can cause disability, even death. The report says parents admit they engage in practices they know are not good for their children’s teeth such as serving juice too often. The report also provides information about the Affordable Care Act’s role in making dental insurance available to more American children. To view a copy of the report, visit http://www.aapd.org/assets/1/7/State_of_Little_Teeth_Final.pdf.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

***********************************

SUBSCRIBE/UNSUBSCRIBE

***********************************

TO SUBSCRIBE

If this mailing was forwarded to you and you are not already subscribed to Family Health Notes, here’s how you can become a subscriber:

TO UNSUBSCRIBE

****************************************

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

Questions may be addressed to

_______________________________________________

Family Health Notes mailing list

https://mailman.usm.edu/mailman/listinfo/familyhealthnotes

[Familyhealthnotes] Family Health Notes - Special Edition - Mississippi disAbility MegaConference

Institute for Disability Studies

Family Health Notes

Special Edition – May 22, 2014

Mississippi disAbility MegaConference

June 12-13, 2014

Marriott - Downtown Jackson

The Mississippi disAbility MegaConference is Mississippi's largest conference for individuals with disabilities, their families, and professionals.

Approximately 50 businesses, service agencies, and disability organizations will share their latest programs, information, and innovations!

Presentation topics include: systems change, self-advocacy, disability policy, assistive technology/Bluetooth, Social Security Disability Work Incentives, community resources, abuse, employment, parent advocacy, traumatic brain injury, epilepsy, Medicaid, housing, EEOC/ADA, special education, inclusive child care, and crisis intervention.

Continuing Education Units are offered in several disciplines.

Thursday morning breakfast from 8 – 8:45 a.m. will include three roundtable discussions for mothers, fathers, and siblings of individuals with disabilities.

Special lunch presentation by Nicole Marquez! She will talk about her journey after falling several floors at her New York apartment building and the resulting spinal cord and other injuries.

A gala on Thursday night will feature Salsa MS Dance Studio and Silver Sneakers . . . with DJ Ice-Dog . . . hors d’oeuvres, and more!

The final keynote will be presented by Andy Imparato, Executive Director of the Association of University Centers on Disabilities. He will speak from a national perspective on disability policy.

Stipends, if needed, for individuals with disabilities are provided by the MS Council on Developmental Disabilities. The form is available on the conference website.

For registration, hotel, agenda, and all other information, visit http://msmegaconference.org/

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

***********************************

SUBSCRIBE/UNSUBSCRIBE

***********************************

TO SUBSCRIBE

If this mailing was forwarded to you and you are not already subscribed to Family Health Notes, here’s how you can become a subscriber:

TO UNSUBSCRIBE

****************************************

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

Questions may be addressed to

_______________________________________________

Family Health Notes mailing list

https://mailman.usm.edu/mailman/listinfo/familyhealthnotes

[Familyhealthnotes] Family Health Notes - May 2014

Institute for Disability Studies

Family Health Notes

May 2014

Inside this issue:

1) Children’s Mental Health Awareness Week – May 4-10, 2014

2) Free Resource for Obesity Prevention Work

3) School Health and Children with Special Health Care Needs

4) Autism Spectrum Disorders: What Every Parent Needs To Know

5) Camp Looking Glass Presents Warfield Riverfest – June 14, Greenville

_______________________________________________________________

1) Children’s Mental Health Awareness Week – May 4-10, 2014

The Children's Mental Health Network in partnership with Characters Unite and Creating Community Solutions is offering two great activities that can be used as stand-alone activities during Children's Mental Health Week or can be incorporated into existing plans to enhance other programs. The focus this year is Battling Stigma and Disparities in Children's Mental Health. Creating Community Solutions is making all of their resources available so that meaningful dialogues can be held in the community about the importance of battling stigma and disparities in children's mental health. Characters Unite has the "I won't stand for" campaign. For more information, visit http://www.cmhnetwork.org/cmh-awareness-week-2014.

2) Free Resource for Obesity Prevention Work

The National Institute for Children’s Health Quality (NICHQ) is offering the CAN DO (Collaborative Action Now to Defeat Obesity) Playbook free to help primary care public health and community leaders work together at a local level to defeat obesity. The interactive online guide teaches motivated individuals and teams how to apply evidence-based strategies to address obesity prevention in their community. For more information, visit http://www.nichq.org/resources/CAN-DO-Playbook.html.

3) School Health and Children with Special Health Care Needs

This series of three fact sheets, while specific to children with special health care needs (CSHCN) in the California school system is widely applicable to other states. Children with Special Health Care Needs: Lost at School? describes the challenges of identifying CSHCN, often caused by misinterpretations of existing special education laws that create communication barriers and limit exchange of medical information. Children with Special Health Care Needs: Who Is Caring for Them at School? notes that an increasing number of CSHCN are attending school at a time when there are fewer school nurses. They found that only 26% of nurses are "very to extremely confident" they are meeting the health needs of all their students, and that other non-medical school staff are providing health care services. The third fact sheet, Children with Special Health Care Needs: Underfunding Leaves Children without Services discusses potential sources of funding for school nurse services that could bring additional revenue to schools so they could employ more nurses. The authors provide policy recommendations that would mitigate these three issues. For more information and copies of the fact sheets, visit http://www.csno.org/.

4) Autism Spectrum Disorders: What Every Parent Needs To Know

This book from the American Academy of Pediatrics is an invaluable resource for parents and caregivers of children who have been diagnosed with an autism spectrum disorder. Prepared under the editorial direction of two distinguished pediatricians who are autism experts—one of whom is also the parent of a son with autism—the book helps parents understand how ASDs are defined and diagnosed and provides information on the most current types of behavioral and developmental therapies. It also helps parents understand what they can do to help promote a smooth transition from adolescence through the teen years and into adulthood. To read the first three chapters of the book free, visit http://www.aap.org/en-us/about-the-aap/Committees-Councils-Sections/Council-on-Children-with-Disabilities/Documents/ASD_BookExcerpt.pdf.

5) Camp Looking Glass Presents Warfield Riverfest – June 14, Greenville

Camp Looking Glass has devoted its energies to improving the lives of children and your adults with physical and/or cognitive disabilities in the Mississippi Delta since 2004. A nonprofit organization, Camp Look Glass recently secured a generously donated land site as a permanent camp home. As part of the fundraising campaign to break ground and build a new home, Camp Looking Glass has organized the Warfield Riverfest. Proceeds from the festival benefit Camp Looking Glass and give the camp the opportunity to give back to a community that has embraced it. The Warfield Riverfest is scheduled for Saturday, June 14, from 9 a.m. to 6 p.m. at Warfield Point Park in Greenville. For more information, visit http://warfieldriverfest.com.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

***********************************

SUBSCRIBE/UNSUBSCRIBE

***********************************

TO SUBSCRIBE

If this mailing was forwarded to you and you are not already subscribed to Family Health Notes, here’s how you can become a subscriber:

TO UNSUBSCRIBE

****************************************

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

Questions may be addressed to