[Familyhealthnotes] Health Notes-April

Institute for Disability Studies

Family Health Notes

April 2019

 

Inside this issue:

1)      Gulfport ARC: Informational Session: ID/DD Waiver Program Through SMRC (information session)

2)      MSPTI: “All About Me-A Get to Know Me Guide for Children and Students With disAbilities” (resource)

3)      Epilepsy Foundation of Mississippi: Alvin P. Flannes Summer Camp

(resource)

4)      MSPTI:  Positive Solutions for Families: Tips for Parents of Young Children with Challenging Behavior (online training)

 

 

____________________________________________________________________

 

1)      Gulfport ARC: Informational Session: ID/DD Waiver Program Through SMRC (information session)

 

Do you know what services the ID/DD Waiver covers?  When can it be used?  What is the process to access services under the waiver?  Who do you contact?  What documentation do you need to apply for the waiver?  When should you apply for the waiver?  What is it?? 

Presented by: Mamie Carlson, MS, LCIDDT, LPT - Director of Community Services SMRC

Date:  Saturday, April 13, 2019

Time: 9:30 a.m.

Place: Gulfport ARC, 3109 Gulf Ave, Gulfport, MS 39503

More Information:  www.smrc.state.ms.us/Community_Services.html

 

 

2)      MSPTI: “All About Me-A Get to Know Me Guide for Children and Students With disAbilities”

 

Thisguide/workbook is for parents and schools to help everyone in a child with special need’s life get on the same page about that child. The more consistent information provided about a child, the better quality of life and education that child can receive.

 

More Information:  http://www.mspti.org/upload/file54_allaboutme.pdf

 

 

3)      Epilepsy Foundation of Mississippi: Alvin P. Flannes Summer Camp

 

The Alvin P. Flannes summer camp is a summer camp for provided for Mississippi children ages 7-15 living with epilepsy.  This camp allows the children to have a great summer camp experience.  Camp activities include canoeing, fishing, swimming, crafts, horse back riding and more! Nursing staff stays on site 24/7.  For more information, please send inquiries and camp applications to Bonnie Holliday bholliday@efa.org or call the foundation office at 601.936.5222 ext. 1655.  

 

More Information:  http://epilepsy-ms.org/alvin-p-flannes-summer-2019/

 

4)      MSPTI:  Positive Solutions for Families: Tips for Parents of Young Children with Challenging Behavior (online training)

 

Has life with your young child become filled with conflict and confusion? Does it seem as if the simplest activity can quickly turn into disaster when your child’s behavior is out of control? You’re not alone. Many, if not most, parents find themselves struggling with behavior at some point. The good news is that there are evidence-based, effective strategies (Positive Behavior Interventions and Supports-PBIS) that you can use to create positive solutions for your family. Join us!

 

 

Presented by: Patty Gautier, Family, Data & Dissemination Coordinator, REACH MS 

Date:  April 15th, 2019

Time:  12 pm-1 pm

Register Here: https://register.gotowebinar.com/register/7479107188589170178

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

 

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[Familyhealthnotes] Family Health Notes-February 2019

Institute for Disability Studies

Family Health Notes

February 2019

 

Inside this issue:

1)      MSPTI- Extended School Year:  What does it mean for your child (webinar)

2)      Social Security Benefits- Updates to Benefits for Children with Disabilities (article)

3)      Sibling Leadership Network- Insight into Family Support and Sibling Perspectives (video)

4)      Pine Belt Mental Healthcare- Let’s Talk:  Discussing Mental Health in the Black Community (event)

 

 

____________________________________________________________________

1)      MSPTI- Extended School Year:  What does it mean for your child (webinar)

 

Mississippi Parent Training and Information Center (MSPTI) is a project of the Mississippi Coalition for Citizens with Disabilities and is funded by the U.S. Department of Education, Office of Special Education Programs (OSEP).  The staff is made up of dedicated parents of children with disabilities, individuals with disabilities, and professionals. 

 

This webinar will provide parents with a greater understanding of Extended School Year, how a child may qualify, and what it means to their child.

 

Presented by:  Pam Dollar, Executive Director, MSPTI

Date:  Tuesday, February 26, 2019

Time:  12:00 pm-1:00 pm

Registration:  https://register.gotowebinar.com/rt/8338437096535007491

 

2)      Social Security Benefits- Updates to Benefits for Children with Disabilities (article)

 

https://www.ssa.gov/pubs/EN-05-10026.pdf

The Social Security Administration has update its Benefits for Children with Disabilities pamphlet (2019) describing benefits available to eligible children with disabilities and how to apply.  Some benefits included are Supplemental Security Income (SSI), Social Security Disability Insurance (SSDI), health insurance, Medicaid, Medicare, and employment support programs. 

 

3)      Sibling Leadership Network- Insight into Family Support and Sibling Perspectives (video)

Resource Spotlight: Videos Provide Insight into Family Support and Sibling Perspectives

Please check out these great videos that were supported through the Family Support Resource and Training Center (FSRTC) www.fsrtc.ahslabs.uic.edu - Family Support: Voices of People with Disabilities Improving; Family Support: Ideas from People with Disabilities’; Gaining Insights: Amira’s Story Liz’s Sibling Stance

 

4)      Pine Belt Mental Healthcare- Let’s Talk:  Discussing Mental Health in the Black Community (event)

Crossover Xpand of Pine Belt Mental Healthcare Resources is hosting a community event in observance of Black History Month and cultural competency.  “Let’s Talk:  Discussing Mental Health in the Black Community” is an open forum and panel discussion event.

Date:         Thursday, February 28, 2019

Time:         6:00 pm

Where:       CE Roy Community Center

300 E. 5th Street

Hattiesburg, MS

       Contact:    Kameo Allen

                        601-544-4541

                        kameo.allen@pbmhr.org

 

 

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

 

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[Familyhealthnotes] Family Health Notes-January 2019

Institute for Disability Studies

Family Health Notes

January 2019

 

Inside this issue:

1)      Play and friendship for children with disability - eParent (article)

2)      Promoting emotional intelligence in preschool education (article)

3)      MSPTI and Disability Rights: Parent Advocacy Academy - Gulfport

4)      ACEP and AAP release Emergency Information Form for CYSHCN

 

 

_______________________________________________________________________

 

1)      Play and friendship for children with disability - eParent

https://www.eparent.com/features-3/play-and-friendship-for-children-with-disability/

Making friends, playing and getting along with other children are good for all children, including child with disabilities. Learn how to support children as they learn how to play and develop friendships.

 

2)      Promoting Emotional Intelligence in Preschool Education

A recent article in the International Journal of Emotional Education (November 2018) analyzed four social-emotional learning programs (Preschools PATHS, Incredible Years, Al’s Pals, and Preschool RULER) that revealed positive evidence-based outcomes for preschoolers. To better understand the programs, researchers first examined emotional intelligence for preschoolers and its link to outcomes in school engagement, social adjustment, emotional regulation, and academic success. Then, comparisons were made between the programs' objectives, delivery, intervention strategies, and adaptability across cultures.

 

3)      MS-PTI and Disability Rights:  Parent Advocacy Academy-Gulfport

Having a child with a disability can be challenging. Your child’s IEP and how to monitor progress can be confusing. How to be the best advocate for your child, the importance of communication and how to resolve conflicts are important pieces of this puzzle. Join us for one of our advocacy academies designed to provide you with the tools to understand the special education process and strengthen your advocacy skills.

 

Location:         Knights Non-Profit Center

11975 Seaway Road

Gulfport, MS 39503

 

When:             Thursday, January 31, 2019

6 to 8:30 p.m.

 

Registration:    http://www.mspti.org/education_event.asp?id=385

 

4)      AEP and AAP release Emergency Information Form for CYSHCN

The American College of Emergency Physicians and the American Academy of Pediatrics are pleased to present the Emergency Information Form (EIF), which can be downloaded here: https://www.acep.org/by-medical-focus/pediatrics/medical-forms/emergency-information-form-for-children-with-special-health-care-needs/#sm.000bbv4jh1a4ves8s861iovkp4lk7.

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

 

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Re: [Familyhealthnotes] Family Health Notes - October 2018

Institute for Disability Studies

Family Health Notes

 

November 2018

 

Inside this issue:

 

1)       Resources from the CTD on Early Childhood and Assistive Technology

2)      New online resource library from CEELO

3)      First-time parenting knowledge (video)

4)      Community wheelchair basketball exhibition - Tchula

5)      Deadline Extended for Care Coordination for CSHCN Challenge - November 9, 2018

6)      AAP, AAFP and ACP calling on clinicians to develop structured health care transition process

_______________________________________________________________________

 

1) Resources from the CTD on Early Childhood and Assistive Technology

The CTD Library currently has over 380 resources specifically related to early childhood and assistive technology (September 2018). For additional information and hot topics on assistive technology, visit their main website at https://www.ctdinstitute.org.

 

2)  New online resource library from CEELO

CEELO recently launched a new online Resource Library. The library offers Leadership Academy and other technical assistance resources that can be found easily in content areas, such as assessment, child outcomes, data, and ESSA via a keyword search, publication type, title or date.

 

3)  First-time parenting knowledge (video)

Child Trends released a new video (September 2018) highlighting its research findings that first-time parents have the most questions about social and emotional development for their children. Researchers also found that many parents use similar information sources, ask similar questions and often wish to learn more effective disciplinary approaches, regardless of race or ethnicity.

 

4)  Community wheelchair basketball exhibition - Tchula

The Golden Eagles Wheelchair Basketball Team from Southern Miss is partnering with the Mileston Cooperative in Tchula, Miss., to host a community wheelchair basketball exhibition.  The exhibition will promote the benefits of participation in adaptive sports for overall well-being and will allow community members to gain first-hand experience playing wheelchair basketball.

 

Location:  147 Headstart Road

    Tchula, Miss.

Contact:  Sylvester Crosby

   601.266.5441

 

5) Deadline Extended for Care Coordination for CSHCN Challenge - November 9, 2018

Due by Friday, November 9, 2018, at 8 p.m. Central Standard Time

Presented by the Maternal and Child Health Bureau of the Health Resources and Services Administration, this challenge supports the creation of technology innovations to meet the needs of children with special health care needs and their families. Interested applicants can find more information about submission requirements and review criteria here.

 

6) AAP, AAFP and ACP calling on clinicians to develop structured health care transition process

The American Academy of Pediatrics (AAP), the American Academy of Family Physicians (AAFP) and the American College of Physicians (ACP) recently released an updated clinical report on transitioning youth and young adults from pediatric to adult health care. The clinical report includes an evidence review and practical guidance and customizable tools for clinicians related to key elements of transition planning, transfer and integration into adult health care. In addition, the needs of special populations, such as youth with medical complexity, intellectual and developmental disabilities, behavioral health conditions and social complexity are addressed. To increase the number of youth and young adults who receive structured transition assistance nationwide, recommendations related to infrastructure, education/training, payment and research are provided.

 

 

 

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

 

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[Familyhealthnotes] Family Health Notes - October 2018

Institute for Disability Studies

Family Health Notes

 

October 2018

 

Inside this issue:

 

1) Building Partnerships. . . Working Together Conference – Oct. 18-19, Jackson

2) Transition from Pediatric to Adult-based Care: Chronic Illness and Disability Conference – Oct. 25-26, Jackson

3) Mississippi Early Childhood Inclusion Center Trainings for October – Hattiesburg, Tunica, Natchez, Summit, Oxford

4) The Power of Play: A Pediatric Role in Enhancing Development in Young Children

5) Guide to Early Intervention Dispute Resolution Processes for Families or Infants and Toddlers (Ages 0-2)

6) Intentional Partnerships Podcast – Series on Family Engagement

7) ThinkCollege Publishes College Resource Guide for Youth Written by Advocates with Disabilities

______________________________________________________________

 

1) Building Partnerships. . . Working Together Conference – Oct. 18-19, Jackson

 

The 10th Annual Mississippi Special Education Conference, “Building Partnerships. . . Working Together,” will be held Oct. 18-19, at the Jackson Convention Center in Jackson. Sponsored by the Mississippi Department of Education and the Mississippi Parent Training and Information Center (MSPTI), the conference will have keynote and breakout speakers. To allow everyone access to the conference this year, there is no registration fee. For more information and to register for the conference, visit http://events.r20.constantcontact.com/register/event?oeidk=a07efq1g3eh5ef4ff87&llr=julfnscab&showPage=true.

 

2) Transition from Pediatric to Adult-based Care: Chronic Illness and Disability Conference – Oct. 25-26, Jackson

 

Families and professional are invited to join the annual Transition from Pediatric to Adult-based Care Conference sponsored by the Institute for Disability Studies and streamed live to the Technology Room of the Institutions of Higher Learning Building at 3825 Ridgewood Road in Jackson. The conference focuses on health care transition, discussion, and networking, as well as idea sharing among participants to gain knowledge and information about how best to plan for a successful transition to adulthood. This event features information useful to physicians in internal medicine, family practice, pediatrics, and psychiatry; other health care providers including psychologists, social workers, nurses, dietitians, case managers, counselors, and primary care providers and anyone interested in moving transition efforts forward in their organization. Continuing education units are available. This 19th Annual Chronic Illness and Disability Conference is broadcast by Baylor College of Medicine and Texas Children’s Hospital. For more information, contact Keishawna Smith at 601.432.6929 or ksmiht@ihl.state.ms.us. Online registration is available at https://www.usm.edu/disability-studies/family-2-family-overview.

 

3) Mississippi Early Childhood Inclusion Center Trainings for October – Hattiesburg, Tunica, Natchez, Summit, Oxford

 

The Mississippi Early Childhood Inclusion Center (MECIC) at the Institute for Disability Studies provides quality and expanded trainings to independent agencies, early education centers, First Steps, Head Start, local and state early childhood associations and other state agencies across the state. A series of trainings is being offered in October and November in various locations including Hattiesburg, Tunica, Natchez, Summit and Oxford. Contact MECIC at 601.266.4745 or mecic@usm.edu. For more information about the trainings and to register online, visit https://www.usm.edu/disability-studies/mecic-training.

 

4) The Power of Play: A Pediatric Role in Enhancing Development in Young Children

 

The American Academy of Pediatrics examines the benefits of play in young children, including social-emotional, cognitive, language, and self-regulation skill building, stress management and the formation of nurturing relationships in this clinical report published in August. The report also provides pediatricians guidance in their role for promoting play when working with families and recommends “writing a prescription for play at every well-child visit in the first two years of life.” To read the report, visit http://pediatrics.aappublications.org/content/early/2018/08/16/peds.2018-2058. 

 

5) Guide to Early Intervention Dispute Resolution Processes for Families or Infants and Toddlers (Ages 0-2)

 

The Center for Appropriate Dispute Resolution in Special Education (CADRE) recently published a quick guide that explains each of the different options under Part C of the IDEA for resolving a dispute concerning families of infants and toddlers in the special education system. A side-by-side look at the different dispute options: Individualized Family Service Plan (IFSP) facilitation, mediation, written state complaints, due process complaint and hearing procedures, and the resolution meeting, will assist families involved in or new to the process. For a copy of the guide, visit https://bit.ly/2OEphxW.

 

6) Intentional Partnerships Podcast – Series on Family Engagement

 

The Parents As Teachers National Center has released a podcast series on different aspects of family engagement. The episodes offer different perspectives from teachers, parents, school administrators and early childhood educators about their achievements and challenges regarding family engagement. Of the 11 predicted episodes, seven have been released. To view the series, visit https://bit.ly/2xpLPMa.

 

7) ThinkCollege Publishes College Resource Guide for Youth Written by Advocates with Disabilities

 

ThinkCollege has published a free Student College Resource Guide focused on steps for students to take toward postsecondary education options. The guide walks students through a college readiness assessment, college action plan and questions to ask a disability services office. It also shares perspectives and tips around managing a disability in college, gaining mentors and more. For a copy of the guide, visit https://thinkcollege.net/sites/default/files/files/resources/FinalStudentResourceGuide.pdf?utm_source=September+2018+NCC+Newsletter_v2&utm_campaign=September+NCC+newsletter&utm_medium=email&utm_source=September+2018+Intersection&utm_campaign=August+2018+Intersection&utm_medium=email.

 

 

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted.  If a link is not highlighted, please copy and paste the entire link into your Web browser.

 

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

 

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

 

 

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****************************************

 

Questions may be addressed to

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OR

ksmith@ihl.state.ms.us

 

_______________________________________________

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