Institute for Disability Studies
Family Health Notes
March 2017
Inside this issue:
1) IDS Gulf Park Developmental Disabilities Awareness Day – March 23, Long Beach
2) A Young Person’s Guide to Health Care Transition
3) Gospel Benefit Concert for the Mississippi Sickle Cell Foundation – March 25, Jackson
4) Family Voices Washington DC Update
5) March is National Nutrition Month
6) Health Access for Independent Living Factsheets
7) Transition Planning: The Role of Families of Youth/Young Adults with Behavioral Health Needs
8) “Let's Talk About It” Educational Seminar – April 8, Jackson
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1) IDS Gulf Park Developmental Disabilities Awareness Day – March 23, Long Beach
Join the Institute for Disability Studies at The University of Southern Mississippi’s Gulf Park campus in Long Beach in celebrating National Developmental Disabilities Month at the spring Developmental Disabilities Awareness Event on Thurs., Mar. 23, from 10 a.m. until 2 p.m. Enjoy a free lunch, snacks, karaoke, face painting, art, outdoor activities and a Quidditch match. For more information, visit https://www.facebook.com/events/1983454335208300/ or call Devin Bellman at 228.214.3400.
2) A Young Person’s Guide to Health Care Transition
Most youth, including youth with disabilities, rely on their parents to handle decisions about their health care and health coverage. Youth need to be a part of conversations about health care. The Young Person’s Guide to Health Care Transition is about making the transition from pediatric to adult health care. This brief from the National Collaborative on Workforce and Disability reviews topics youth should consider around transitioning to adult health care, living a healthy lifestyle, and paying for health care. This brief also provides some information to help youth think about ways to start planning now for transition from pediatric to adult health care. For a copy of the guide, visit http://www.ncwd-youth.info/health-care-transition-guide.
3) Gospel Benefit Concert for the Mississippi Sickle Cell Foundation – March 25, Jackson
You are invited to attend the Gospel Concert benefitting the Mississippi Sickle Cell Foundation on Sat., Mar. 25, at 6 p.m. at the College Hill M.B. Church at 1600 Florence Avenue in Jackson. Donations are welcome for the annual event hosted by the Westhaven Funeral Home Choir. For more information, visit http://mssicklecellfoundation.org/.
4) Family Voices Washington DC Update
Want to know what’s happening in Washington for families of CYSHCN? Sign up for Washington DC Update, a free weekly e-newsletter from Family Voices that provides news and resources from the policy arena. For the latest issue, archived issues and to sign up, visit http://www.familyvoices.org/news/latest?id=0555.
5) March is National Nutrition Month
Most people don’t pay attention to what they are eating. Is it processed or fresh, is there food coloring in it, are you getting enough fiber? Did you know that healthier plates are a step toward better health care and a better diet and does not mean you have to go on a diet. Small changes can have big effects, like cutting back on sugary drinks. A 12 ounce can of soda has 10 teaspoons of sugar in it. Or when choosing vegetables, brighten up your plate with red, orange or dark green which are high in vitamins and minerals. For tips and a toolkit for National Nutrition Month, visit http://www.eatright.org/resource/food/resources/national-nutrition-month/toolkit.
6) Health Access for Independent Living Factsheets
The Rehabilitation Research and Training Center on Community Living at the University of Kansas has published a series of 12 factsheets for the Health Access for Independent Living (HAIL) program. Funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), HAIL resources are designed for Center for Independent Living staff to support their clients in setting and reaching health-related goals. These resources can empower people with disabilities to manage their own healthcare and participate more fully in their communities. Factsheets address important consumer skills including: Goal Setting, Tracking Goals, Understanding Health Coverage, Managing Your Medications, Assistive Technology, Accessing Preventive Care, Organizing Your Health Records, and Working with Your Care Providers. Factsheets on secondary conditions are also available on Chronic Pain, Fatigue, and Depression. Links to all the factsheets are available on the right side of the HAIL webpage: http://rtcil.org/cl/projects/r7.
7) Transition Planning: The Role of Families of Youth/Young Adults with Behavioral Health Needs
All youth will experience transitions, however, individualized approaches to transition are necessary when working with youth and young adults with behavioral health challenges and their families as they face unique situations around treatment, medication, formal services, programming and education. This free webinar, hosted by the Family Leadership Learning Community, is scheduled for Thurs., Mar. 23, from 2 to 3 p.m. EDT. The webinar outlines key principles when working with family members/caregivers of youth and young adults with behavioral health care challenges, unique transition scenarios and strategies that family leaders and family members have found helpful for navigating the transitioning process. For more information or to register, visit https://events-na11.adobeconnect.com/content/connect/c1/1120832267/en/events/event/shared/1159765005/event_landing.html?sco-id=1596536122&_charset_=utf-8.
8) “Let's Talk About It” Educational Seminar – April 8, Jackson
Join the Mississippi Sickle Cell Foundation for an educational seminar on Sat., Apr. 8, from 10 a.m. until 12 noon at the Jackson Medical Mall Community Room at 350 West Woodrow Wilson Avenue in Jackson. Mississippi Family to Family Parent Coordinator Keishawna Smith will be one of the speakers. For more information, call Keishawna at 601.432.6929.
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~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~
Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.
The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).
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