The Institute for Disability Studies
Family Health Notes
August 2019
Inside this issue:
1) Community Conversations (resource/event)
2) New Study on Language Development in Young Adults with Fragile X Syndrome with Vanderbilt Kennedy Center (event)
3) Project ECHO with Autism Speaks (resource)
4) The National Resource Center for Patient/Family-Centered Medical Home (resource/website)
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1) Community Conversations
Disability Rights Mississippi, Mississippi Council on Developmental Disabilities, and the Institute for Disability Studies will be hosting a series of events around the state to provide people with disabilities and their families valuable information and resources. These events will also provide a platform for speaking with professionals and networking with other families in each community.
Time:
4:30 - 6:30 p.m.
Date & Location:
August 8th-Gulfport Knight Non-Profit Center - Seaway Road
August 20th-Southhaven Public Library - Northwest Drive
August 27th-Vicksburg United Way West Central - South Street
For more information, contact 1-800-772-4057.
2) New Study on Language Development in Young Adults with Fragile X Syndrome with Vanderbilt Kennedy Center
Vanderbilt Kennedy Center is currently recruiting participants diagnosed with Fragile X syndrome for a study on language development. Participants must be in or entering the last year of high school. Those in the study will take part in four assessment visits over a three year period. A stipend will be offered to participants upon completion of the assessments.
For more information please contact: transition@vumc.org or (615) 322-2943
3) Project ECHO with Autism Speaks
Autism Speaks has funded a new project, ECHO Autism Primary Care, to provide training for primary care physicians on early recognition and identification of autism in young children. This virtual training with autism experts guides physicians on identifying signs earlier in children and best practices in screening, identification and medical care.
For more information, visit https://www.autismspeaks.org/science-news/echo-autism-primary-care-autism-screening?utm_source=email&utm_medium=text-link&utm_campaign=espeaks.
4) The National Resource Center for Patient/Family-Centered Medical Home
The Maternal and Child Health Bureau and the American Academy of Pediatrics have partnered to create the National Resource Center for Patient/Family-Centered Medical Home, formerly known as the National Center for Medical Home Implementation. The focus of this center is to ensure all children and youth receive care within, and have access to, a medical home.
For more information please visit:
https://medicalhomeinfo.aap.org/about/Pages/default.aspx.
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~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~
Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.
The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).
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