Family to Family

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[Familyhealthnotes] IDS Web Site Survey

Institute for Disability Studies

Family Health Notes

June 25, 2014

Please assist the Institute for Disability Studies (IDS) in providing valuable information for individuals with disabilities, their families and service providers by taking a short survey of the IDS website before Friday, July 18: the 2-second survey.

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[Familyhealthnotes] Family Health Notes - June 2014

Institute for Disability Studies

Family Health Notes

June 2014

Inside this issue:

1) Jackson Zoo Dreamnight 2014 – June 6, Jackson

2) Mississippi disAbility MegaConference – June 12-13, Jackson

3) Camp Looking Glass Presents Warfield Riverfest – June 14, Greenville

4) Gaps in Kids’ Dental Coverage

_______________________________________________________________

1) Jackson Zoo Dreamnight 2014 – June 6, Jackson

Dreamnight will provide children with special needs or chronic illness and their families with a private evening at the Jackson Zoo on Fri., June 6, from 5 to 6:30 p.m. Families can enjoy keeper chats and animal encounters as well as train and carousel rides. There will be entertainment by Inky the clown, Robert Day the magician, the Jackson Showboats basketball team and the Magnolia Roller Vixens. Refreshments will be provided by local area restaurants. Pre-registration is required. For more information, call 601.352.2500.

2) Mississippi disAbility MegaConference – June 12-13, Jackson

The Mississippi disAbility MegaConference, Mississippi's largest conference for individuals with disabilities, their families, and professionals, will be held Thurs., June 12, and Fri., June 13, at the Marriott Downtown in Jackson. Presentation topics for 2014 include: self-advocacy, disability policy, assistive technology/Bluetooth, Social Security Disability Work Incentives, community resources, abuse, employment, parent advocacy, traumatic brain injury, epilepsy, Medicaid, housing, EEOC/ADA, special education, inclusive child care, crisis intervention and systems change. Approximately 50 businesses, service agencies and disability organizations will share their latest programs, information and innovations. Continuing Education Units are offered in several disciplines. The closing keynote will be presented by Andy Imparato, executive director of the Association of University Centers on Disabilities. Stipends, if needed, for individuals with disabilities are provided by the Mississippi Council on Developmental Disabilities. For registration, hotel, agenda and all other information, visit http://msmegaconference.org/

3) Camp Looking Glass Presents Warfield Riverfest – June 14, Greenville

Camp Looking Glass has devoted its energies to improving the lives of children and your adults with physical and/or cognitive disabilities in the Mississippi Delta since 2004. A nonprofit organization, Camp Look Glass recently secured a generously donated land site as a permanent camp home. As part of the fundraising campaign to break ground and build a new home, Camp Looking Glass has organized the Warfield Riverfest. Proceeds from the festival benefit Camp Looking Glass and give the camp the opportunity to give back to a community that has embraced it. The Warfield Riverfest is scheduled for Sat., June 14, from 9 a.m. to 6 p.m. at Warfield Point Park in Greenville. For more information, visit http://warfieldriverfest.com.

4) Gaps in Kids’ Dental Coverage

Can teeth be the root of other health problems? The American Academy of Pediatric Dentistry (AAPD) says, “yes.” The report, The State of Little Teeth,” explains how poor oral health can put children at risk for general health problems such as earaches, diabetes, malnutrition and heart disease. Lack of dental health care can affect children’s intellectual and social development and can cause disability, even death. The report says parents admit they engage in practices they know are not good for their children’s teeth such as serving juice too often. The report also provides information about the Affordable Care Act’s role in making dental insurance available to more American children. To view a copy of the report, visit http://www.aapd.org/assets/1/7/State_of_Little_Teeth_Final.pdf.

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[Familyhealthnotes] Family Health Notes - Special Edition - Mississippi disAbility MegaConference

Institute for Disability Studies

Family Health Notes

Special Edition – May 22, 2014

Mississippi disAbility MegaConference

June 12-13, 2014

Marriott - Downtown Jackson

The Mississippi disAbility MegaConference is Mississippi's largest conference for individuals with disabilities, their families, and professionals.

Approximately 50 businesses, service agencies, and disability organizations will share their latest programs, information, and innovations!

Presentation topics include: systems change, self-advocacy, disability policy, assistive technology/Bluetooth, Social Security Disability Work Incentives, community resources, abuse, employment, parent advocacy, traumatic brain injury, epilepsy, Medicaid, housing, EEOC/ADA, special education, inclusive child care, and crisis intervention.

Continuing Education Units are offered in several disciplines.

Thursday morning breakfast from 8 – 8:45 a.m. will include three roundtable discussions for mothers, fathers, and siblings of individuals with disabilities.

Special lunch presentation by Nicole Marquez! She will talk about her journey after falling several floors at her New York apartment building and the resulting spinal cord and other injuries.

A gala on Thursday night will feature Salsa MS Dance Studio and Silver Sneakers . . . with DJ Ice-Dog . . . hors d’oeuvres, and more!

The final keynote will be presented by Andy Imparato, Executive Director of the Association of University Centers on Disabilities. He will speak from a national perspective on disability policy.

Stipends, if needed, for individuals with disabilities are provided by the MS Council on Developmental Disabilities. The form is available on the conference website.

For registration, hotel, agenda, and all other information, visit http://msmegaconference.org/

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[Familyhealthnotes] Family Health Notes - May 2014

Institute for Disability Studies

Family Health Notes

May 2014

Inside this issue:

1) Children’s Mental Health Awareness Week – May 4-10, 2014

2) Free Resource for Obesity Prevention Work

3) School Health and Children with Special Health Care Needs

4) Autism Spectrum Disorders: What Every Parent Needs To Know

5) Camp Looking Glass Presents Warfield Riverfest – June 14, Greenville

_______________________________________________________________

1) Children’s Mental Health Awareness Week – May 4-10, 2014

The Children's Mental Health Network in partnership with Characters Unite and Creating Community Solutions is offering two great activities that can be used as stand-alone activities during Children's Mental Health Week or can be incorporated into existing plans to enhance other programs. The focus this year is Battling Stigma and Disparities in Children's Mental Health. Creating Community Solutions is making all of their resources available so that meaningful dialogues can be held in the community about the importance of battling stigma and disparities in children's mental health. Characters Unite has the "I won't stand for" campaign. For more information, visit http://www.cmhnetwork.org/cmh-awareness-week-2014.

2) Free Resource for Obesity Prevention Work

The National Institute for Children’s Health Quality (NICHQ) is offering the CAN DO (Collaborative Action Now to Defeat Obesity) Playbook free to help primary care public health and community leaders work together at a local level to defeat obesity. The interactive online guide teaches motivated individuals and teams how to apply evidence-based strategies to address obesity prevention in their community. For more information, visit http://www.nichq.org/resources/CAN-DO-Playbook.html.

3) School Health and Children with Special Health Care Needs

This series of three fact sheets, while specific to children with special health care needs (CSHCN) in the California school system is widely applicable to other states. Children with Special Health Care Needs: Lost at School? describes the challenges of identifying CSHCN, often caused by misinterpretations of existing special education laws that create communication barriers and limit exchange of medical information. Children with Special Health Care Needs: Who Is Caring for Them at School? notes that an increasing number of CSHCN are attending school at a time when there are fewer school nurses. They found that only 26% of nurses are "very to extremely confident" they are meeting the health needs of all their students, and that other non-medical school staff are providing health care services. The third fact sheet, Children with Special Health Care Needs: Underfunding Leaves Children without Services discusses potential sources of funding for school nurse services that could bring additional revenue to schools so they could employ more nurses. The authors provide policy recommendations that would mitigate these three issues. For more information and copies of the fact sheets, visit http://www.csno.org/.

4) Autism Spectrum Disorders: What Every Parent Needs To Know

This book from the American Academy of Pediatrics is an invaluable resource for parents and caregivers of children who have been diagnosed with an autism spectrum disorder. Prepared under the editorial direction of two distinguished pediatricians who are autism experts—one of whom is also the parent of a son with autism—the book helps parents understand how ASDs are defined and diagnosed and provides information on the most current types of behavioral and developmental therapies. It also helps parents understand what they can do to help promote a smooth transition from adolescence through the teen years and into adulthood. To read the first three chapters of the book free, visit http://www.aap.org/en-us/about-the-aap/Committees-Councils-Sections/Council-on-Children-with-Disabilities/Documents/ASD_BookExcerpt.pdf.

5) Camp Looking Glass Presents Warfield Riverfest – June 14, Greenville

Camp Looking Glass has devoted its energies to improving the lives of children and your adults with physical and/or cognitive disabilities in the Mississippi Delta since 2004. A nonprofit organization, Camp Look Glass recently secured a generously donated land site as a permanent camp home. As part of the fundraising campaign to break ground and build a new home, Camp Looking Glass has organized the Warfield Riverfest. Proceeds from the festival benefit Camp Looking Glass and give the camp the opportunity to give back to a community that has embraced it. The Warfield Riverfest is scheduled for Saturday, June 14, from 9 a.m. to 6 p.m. at Warfield Point Park in Greenville. For more information, visit http://warfieldriverfest.com.

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[Familyhealthnotes] Family Health Notes - April 25, 2014 - Special Edition - Job Posting

Institute for Disability Studies

Family Health Notes

April 25, 2014

Special Edition – Job Posting

The job posting below is for the position of Parent/Family Liaison with the Family to Family program at the Institute for Disability Studies. For more information or to apply, visit https://jobs.usm.edu/applicants/jsp/shared/frameset/Frameset.jsp?time=1398456963562 to search for the posting number below and complete an application.

Posting Number: 0003041

Job Title: Parent/Family Liaison-IDS

Grant Funded? Yes

Position Type: Staff

Work Site: IDS Jackson Office, Jackson, MS

Department: Institute for Disability Studies

Pay Grade Level: 10

Job Summary:

This position provides input in the development and implementation of IDS-sponsored grants to foster statewide system change; assists in providing training and technical assistance; and provides coordination of outreach activities to families.

Duties of this position include the following:

Adheres to University and department policies, procedures and regulations

Provides assistance in the establishment and management of a State

Policy Council and three Community Assessment and Planning Teams

Assists in providing training and technical assistance to the State Policy

Council and Three Community Assessment and Planning Teams

Provides assistance as a liaison to the Coalition for Citizens with Disabilities in the development and implementation of community hearings and

forums

Duties and Responsibilities:

Provides input for developing and conducting a statewide assessment of family need for support

Provides assistance to the State Policy Council and project staff in the development, adoption and dissemination of a mission, a vision, a set of organizing principles and an action plan to various groups and the general public

Provides coordination of outreach activities designed to locate families who are eligible for family support and to identify groups who are under served or unserved

Provides assistance in the review of applications and the selecting of two demonstration sites for new approaches to provision of family support

Provides input to the research coordinator in the implementation of the project evaluation process

Minimum Qualifications:

Bachelor's degree from a four-year college or university with two years of related experience and/or training

Writing and oral communications skills

Preferred Qualifications:

Valid driver's license

Prefer a parent of a child/children or young adult with a disability

Person must be able to commit to in-state travel

Posting Date: 04-17-2014

Closing Date: Open Until Filled

Special Instructions to Applicants:

To perform this job successfully, an individual must be able to perform each essential duty satisfactorily. The requirements listed are representative of the knowledge, skill, and/or ability required. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

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[Familyhealthnotes] Family Health Notes - April 2014

Institute for Disability Studies

Family Health Notes

April 2014

Inside this issue:

1) Wheelchair Tennis State Championship – Apr. 11-13, Ridgeland

2) Free Self-Advocacy Webinar – Apr. 24

3) Limb Loss Awareness Education Day – Apr. 26, Long Beach

4) Participants Wanted for Research Study

5) New App – the Canopy Medical Translator

_______________________________________________________________

1) Wheelchair Tennis State Championship – Apr. 11-13, Ridgeland

The Mississippi Rock N Roll Wheelchair Tennis State Championship will be held April 11 – 13, at the Ridgeland Tennis Center at 201A McClellan Drive in Ridgeland. This is a Southern Grand Prix Series Tournament. Matches will start at 6 p.m. on Friday, 8 a.m. on Saturday and Sunday. For more information, call Johnny McGinn at 601.209.4799.

2) Free Self-Advocacy Webinar – Apr. 24

The Advocacy TEAMM Mississippi Project and the Mississippi Self-Advocacy Team are co-sponsoring a free webinar on April 24, from 10 – 10:30 a.m. This webinar will reinforce why young people with disabilities need to learn how to share their voice and become true self-advocates. State and national resources available to help young people take charge of their lives will be discussed. Cynthia “Cindy” A. Singletary, a self-advocate who collaborates with organizations throughout Mississippi and the nation, will be the speaker. Her collaborations include work in self-advocacy, disability rights and transition of youth with disabilities. To register, go to http://www.usm.edu/disability-studies/ateamm-overview or contact Dr. Jerry R. Alliston at 1.601.266.5979 or jerry.alliston@usm.edu.

3) Limb Loss Awareness Education Day – Apr. 26, Long Beach

Limb Loss Awareness Education Day is an event designed to heighten community awareness of those living with and caring for limb loss. This special day will be held on Saturday, April 26, from 11 a.m. until 2 p.m. at the Technology Learning Center (TLC) of the Institute for Disability Studies at The University of Southern Mississippi Gulf Park campus in Long Beach. For more information, call 228.214.3400 or email tlc@usm.edu.

4) Participants Wanted for Research Study

The National Center for Health Statistics (NCHS) is looking for adults aged 18 years and over with children living in the household to answer a variety of health questions that may be asked on a national survey. The interview will be no longer than 60 minutes and participants will receive $40. NCHS want to talk to parents or guardians of children 2 to 17 years of age who may have difficulties in seeing, hearing, walking, learning and behavior. For more information, call Lauren at 301.458.4676 or email her at lcreamer@cdc.gov.

5) New App – the Canopy Medical Translator

This free app translates medical phrases covering history, physical exam, procedures, and reassessment in Spanish, Chinese, Arabic, Bengali, Filipino, Hindi, Korean, Malay, Portuguese, Russian, Vietnamese, and more. Communicate instantly with patients in any language. And when needed, call medical interpreters with one click right from the app which is currently only available via the App Store. For more information, visit http://www.canopyapps.com/.

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