Family to Family

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[Familyhealthnotes] Family Health Notes - March 2018

Institute for Disability Studies

Family Health Notes

March 2018

Inside this issue:

1) Adding to the Pain: The Impact of the Opioid Crisis on Sickle Cell Patients – March 3, Jackson

2) Free Nutrition Education Workshops – March 9, Tupelo/March 21, Flowood/March 28, Greenwood

3) Register Now-Medical Home/Health Care Transition Trainings – March 22 – April 26

4) Adult Sibling Network

5) Early Childhood Program Linked to Higher Education Levels

6) Transforming the Early Education Workforce: A Multimedia Guidebook

7) New Translations for Families and Practitioners

8) Register Now – Family Voices of Mississippi Partners in Health Care: Advocacy and Leadership Summit – June 14, Pearl/June 28, Belden (Tupelo)

______________________________________________________________

1) Adding to the Pain: The Impact of the Opioid Crisis on Sickle Cell Patients – March 3, Jackson

The Mississippi Sickle Cell Foundation is holding an educational seminar about the opioid crisis on Sat., Mar. 3, from 11 a.m. until 3 p.m. Topics include: what is the opioid crisis, the treatments for opioid addiction, alternate pain management and what happens when pain medicine is fraudulently distributed. The seminar will be held at the Willie Morris Library at 4912 Old Canton Road in Jackson. Lunch will be provided, and registration is required. Please RSVP at mssicklecellfnd@yahoo.com.

2) Free Nutrition Education Workshops – March 9, Tupelo/March 21, Flowood/March 28, Greenwood

Attend a free Nutrition is for Everyone education workshop for people with disabilities, their families and friends near you in March. Workshops are scheduled for: Fri., Mar. 9, at 10 a.m. in Tupelo, at the Family Resource Center at 425 Magazine Street; Wed., Mar. 21, at 1 p.m. in Flowood in the conference room of the G. Chastaine Flynt Memorial Library at 103 Winners Circle; and Wed., Mar. 28, at 1 p.m. in Greenwood in the conference room at the Greenwood Leflore Hospital at 1401 River Road. During the workshop, participants will learn about the benefits of eating more fruits and vegetables, cooking more meals at home and making activity part of their lives. There will be a hands-on food preparation activity. For more information or to register, email Alma Ellis at alma.ellis@usm.edu or call toll-free at 1.866.883.4474.

3) Register Now-Medical Home/Health Care Transition Trainings

A medical home is a key component to a successful transition to adulthood. These medical home and health care transition trainings scheduled for three locations—Long Beach, Jackson and Tupelo—will benefit parents, advocates, educators and medical professionals. Sponsored by the Mississippi Family to Family (MS F2F) and Children and Youth with Special Health Care Needs at the Mississippi State Department of Health, these no cost trainings will help families understand what to expect from a medical home and how this knowledge can help during the transition process. Register online at https://www.usm.edu/disability-studies/family-2-family-medical-home-transition-trainings or by phone at 601.432.6929.

Medical Home Training Dates: Health Care Transition Dates:

March 22, 10 a.m. - 12 Noon April 5, 10 a.m. – 12 Noon

USM Gulf Park USM Gulf Park

730 East Beach Boulevard 730 East Beach Boulevard

Long Beach Long Beach

April 4, 10 a.m. - 12 Noon April 9, 10 a.m. – 12 Noon

Institutes of Higher Learning Family Resource Center

3825 Ridgewood Road 425 Magazine Street

Jackson Tupelo

April 26, 10 a.m. to 12 Noon April 25, 10a.m. – 12 Noon

Family Resource Center (Tupelo) Institutes of Higher Learning (Jackson)

425 Magazine Street 3825 Ridgewood Road

Tupelo Jackson

4) Adult Sibling Network

SiblingResources.org has announced the launch of two free, online self-paced courses to provide information and resources about the experiences of siblings of people with disabilities. One course is for siblings of adults with disabilities and the other is written for service providers. These courses contain written resources, video presentations, audio clips, and a reflective question journal to download and print. Find the course at https://siblingresources.org/course.

5) Early Childhood Program Linked to Higher Education Levels

Early learning paves the way for learning at school and throughout life. What children learn in their first few years of life—and how they learn it—can have long-lasting effects on their success and health as children, teens, and adults. The National Institutes of Health (NIH) provides information on their research online at http://bit.ly/2EpOp9P.

6) Transforming the Early Education Workforce: A Multimedia Guidebook

New America recently published Transforming the Early Education Workforce: A Multimedia Guidebook (December 2017), an interactive resource designed to promote awareness of the science of early learning and guide school administrators and policymakers to train and support early educators of children (ages birth through 8). The guidebook aligns with the 2015 report, Transforming the Workforce for Children from Birth through Age 8: A Unifying Foundation, published by the National Institute of Medicine and the National Research Council (now the National Academies of Science, Engineering, and Medicine). For a copy of the guide, visit http://bit.ly/2EtBdRm.

7) New Translations for Families and Practitioners

The Center on the Developing Child at Harvard University recently expanded its online library to include French translations of the Center's Executive Function Activities Guide and InBrief, as well as, Mandarin translations of Toxic Stress Derails Healthy Development and other resources. To view the new translations, visit https://developingchild.harvard.edu/resourcecategory/french-resources/.

8) Register Now – Family Voices of Mississippi Partners in Health Care: Advocacy and Leadership Summit – June 14, Pearl/June 28, Belden (Tupelo)

Family Voices of Mississippi (FVMS) will present Partners in Health Care: Advocacy and Leadership Summit, an interactive mini-conference, in two locations in June. The summit will focus on helping participants learn the importance of partnership/collaboration within the health care transition process for individuals with disabilities and their family, friends, service providers, and professionals. FVMS wants to share the “how, when, and why” of the health care transition process and help families to understand the goal is not about total independence, but rather effective interdependence. To register, visit the FVMS website http://www.familyvoicesofms.org/fvms-partners-summit . For questions, contact Keishawna A. Smith at 601.432.6929 or send an email to info@familyvoicesofms.org.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - February 2018

Institute for Disability Studies

Family Health Notes

February 2018

Inside this issue:

1) Free Nutrition Education Workshop – Feb. 16, Long Beach

2) Mental Health Day at the Capitol – Feb. 15, 1-4 p.m., Jackson

3) 2018 Disability Awareness Day at the State Capitol – Feb. 21, 8 a.m.-2 p.m., Jackson

4) Residential and Respite Care Services Study

5) Mississippi Head Start Association 2018 Spring Conference – March 26-28, Biloxi

6) Save the Date – Family Voices of Mississippi Partners in Health Care: Advocacy and Leadership Summit – June 14, Pearl/June 28, Belden (Tupelo)

7) Supporting Kids with Autism

8) Disability Stigma and Your Patients – Fact Sheet for Health Care Providers

9) Head Start Resources Supporting individualization

______________________________________________________________

1) Free Nutrition Education Workshop – Feb. 16, Long Beach

Want to eat healthier in 2018? Attend a free Nutrition Is for Everyone education workshop for people with disabilities, their families and friends in Long Beach on Fri., Feb. 16, at 1 p.m. at the Institute for Disability Studies (IDS) at The University of Southern Mississippi Gulf Park campus at 730 East Beach Boulevard in Long Beach. During the workshop, participants will learn about the benefits of eating more fruits and vegetables, cooking more meals at home and making activity part of their lives. There will be a hands-on food preparation activity. Interested in learning more, drop by a come-and-go recruitment event on Fri., Feb. 9, at IDS. For more information or to register, email Alma Ellis at alma.ellis@usm.edu or call her toll-free at 1.866.883.4474.

2) Mental Health and Wellness Day at the Capitol – Feb. 15, 1-4 p.m., Jackson

The Mental Health Association of South Mississippi and the National Alliance on Mental Illness (NAMI) Mississippi will host Mental Health and Wellness Day at the Mississippi State Capitol on Thurs. Feb. 15, from 1 to 4 p.m. Hear personal stories and participate in wellness activities. For more information, call 601.899.9058 or email stateoffice@namims.org.

3) 2018 Disability Awareness Day at the State Capitol – Feb. 21, 8 a.m.-2 p.m., Jackson

Disability Awareness Day at the State Capitol will be held Wed., Feb. 21, from 8 a.m. until 2 p.m. Hosted annually by the Coalition for Citizens with Disabilities, this event offers people with disabilities, family members and advocates an opportunity to learn about current disability issues, network with others in the disability community and speak with decision makers who can preserve or expand services that make a critical difference in the lives of Mississippians with disabilities. Scheduled activities include displays and a legislative breakfast in the rotunda, a bill update, lunch and learn, and the recognition of disability groups in the House gallery. For more information or to register, call 601.969.0601, or register online at www.tinyurl.com/Capitol2018. Please register by Feb. 10.

4) Residential and Respite Care Services Study

The Vanderbilt Kennedy Center is conducting a survey of families of adults with disabilities to explore the factors associated with different types of residential placement and respite care services for adults with disabilities. The survey is anonymous and will take less than 30 minutes to complete. Ten participants will be randomly selected to receive a $25 gift card to the store of their choice. Questions can be addressed to Maria Mello by email, Maria.p.mello@Vanderbilt.edu or by telephone, 615.669.2581. To participate in the survey, go to https://is.gd/residential_respite_survey.

5) Mississippi Head Start Association 2018 Spring Conference – March 26-28, Biloxi

The Mississippi Head Start Association’s Spring Conference is a prime opportunity for both emerging and seasoned leaders and parents to expand their understanding and application of best practices, management principles, and quality initiatives to achieve a high standard of excellence today and tomorrow. The conference experience is a unique blend of pre-conference events, speaker expertise, learning tracks, and presentation formats to encourage breakthrough thinking and collaborative problem-solving. The conference will be held at the Imperial Palace Casino and Resort in Biloxi from March 26-28. For more information or to register, contact Felicia Thompson at feliciadthompson@gmail.com.

6) Save the Date – Family Voices of Mississippi Partners in Health Care: Advocacy and Leadership Summit – June 14, Pearl/June 28, Belden (Tupelo)

Family Voices of Mississippi (FVMS) will present Partners in Health Care: Advocacy and Leadership Summit, an interactive mini-conference in two locations in June. The summit will focus on helping participants learn the importance of partnership/collaboration within the health care transition process for individuals with disabilities and their family, friends, service providers, and professionals. FVMS wants to share the “how, when, and why” of the health care transition process and help families to understand that the goal is not about total independence, but rather effective interdependence. For information, visit the FVMS website www.familyvoicesofms.org. For questions, call Keishawna A. Smith at 601.432.6929 or send an email to info@familyvoicesofms.org.

7) Supporting Kids with Autism

Education Week, a print and online education news publication, has produced a video with psychologist Laura Anthony from the Center of Autism Spectrum Disorders, Children's National Health System explaining ways that teachers can support young children with autism in the classroom. Meet "Julia", Sesame Street's newest muppet, depicting a 4-year-old girl with autism interacting with classroom peers. To view the video, visit http://bit.ly/2Ftf9nh.

8) Disability Stigma and Your Patients – Fact Sheet for Health Care Providers

For people with disabilities, stigma can be a major barrier to participation. Stigmatizing attitudes about disabilities can also affect relationships between patients and providers. However, health care providers can be allies with their patients and help reduce the impact of stigma. “Disability Stigma and Your Patients” was developed by Arielle Silverman, PhD, and published by the University of Washington Aging Rehabilitation Research and Training Center. For a copy of the fact sheet, visit http://agerrtc.washington.edu/info/factsheets/stigma.

9) Head Start Resources Supporting Individualization

Head Start's Children with Disabilities webpage provides a compilation of resources for supporting individualization for children ages birth to 5. The evidence-based resources align with the eight Division for Early Childhood (DEC) recommended practices' topic areas (Assessment, Environment, Family, Interaction, Instruction, Teaming and Collaboration, Transition, and Leadership) and are organized by knowledge level for educators and families. Visit the webpage at http://bit.ly/2E9pmoP.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - January 2018

Institute for Disability Studies

Family Health Notes

January 2018

Inside this issue:

1) Free Nutrition Training – Jan. 25, Hattiesburg

2) Parents4Parents Network Meeting – Jan. 25, Tupelo

3) Family Voices of Mississippi

4) 2018 Mississippi Legislative Updates and Action Alerts

5) Flu Is Now Highly Active in Mississippi

6) Support Groups in Mississippi

7) CDC’s “Learn the Signs. Act Early.” Program Launches Newest Resource

8) Parent Participation in Early Intervention

9) New Head Start Disabilities Services Newsletter Explores Adapting Environment to Support Engagement

10) Annual Disability Statistics Compendium Release

______________________________________________________________

1) Free Nutrition Training – Jan. 25, Hattiesburg

It’s a new year! Do you want to eat healthier in 2018? Attend a free Nutrition Is for Everyone training for people with disabilities, their families and friends in Hattiesburg on Thurs., Jan. 25, at 1 p.m. at the Jackson Dole Sherrill Community Center. The Community Center is located at 220 West Front Street. At the training, participants will learn to eat more fruits and vegetables, cook more meals at home and make activity a part of their lives. There will be a hands-on food preparation activity. Interested in learning more, drop by a come-and-go recruitment event between 11 a.m. and 2 p.m. on Thurs., Jan. 18, at LIFE of Mississippi at 2101 West 4^th Street, Suite 50. For more information or to register, email Alma Ellis at alma.ellis@usm.edu or call her toll-free at 1.866.883.4474.

2) Parents4Parents Network Meeting – Jan. 25, Tupelo

Are you truly partnering in the decision-making of your child’s healthcare with their providers? Would you like to develop the “know how” for speaking up for families, like yours, with children with special healthcare needs on state boards, coalitions and policy forums? Join us at the Family Resource Center of Tupelo on Thurs., Jan. 25, to discuss these issues with professionals and parents. Light refreshments and child care will be provided. For more information, directions or to RSVP, contact Ashley Privett at 662.844.0013 or Shawn Smith at 601.432.6929.

3) Family Voices of Mississippi

Family Voices of Mississippi, our state’s chapter of Family Voices, has been busy helping families with children and youth with special health care needs navigate the complex world of health care. Would you like to join their efforts as a member or a volunteer? If so, contact Shawn Smith at 601.432.6929 for more information.

4) 2018 Mississippi Legislative Updates and Action Alerts

Follow the 2018 Mississippi Legislative session through Legislative Updates and Action Alerts via email provided by the Mississippi Coalition for Citizens with Disabilities. The Updates and Alerts are also available on the Coalition’s Facebook page: https://www.facebook.com/MSCoalitionforCitizenswithDisabilitiesMSCCD/. For more information or to be included in the email Updates and Alerts, email Mickey Alford at mickey@msccd.org.

5) Flu Is Now Highly Active in Mississippi

There has been a consistent sharp increase in patients reporting flu-like symptoms in Mississippi over the last several weeks, and the state is entering the typical peak season for the flu. Flu vaccination reduces your chance of getting the flu and makes hospitalization or severe illness less likely if you do get sick. Flu protection is especially important for pregnant women, older adults, those with a chronic illness and younger children. Last flu season, two Mississippi children died from flu. You can get a flu shot at your local pharmacy, neighborhood clinic or from your physician. Children and qualifying adults can receive flu shots from any of Mississippi’s county health departments. Find a location near you that offers flu shots by visiting www.vaccinefinder.org

6) Support Groups in Mississippi

Are you looking for a peer support or family support group? Contact the MS F2F Parent Coordinator at 601.432.6929 or at ksmith@ihl.state.ms.us for information about local groups in your area or for help starting your own.

7) CDC’s “Learn the Signs. Act Early.” Program Launches Newest Resource

The new Milestone Tracker app makes it easy for parents and other care providers to track, support and celebrate young children’s developmental milestones, as well as share this important information. Although it is packed with parent-friendly features, this app isn’t just for parents. Healthcare providers can use the app to assist with developmental surveillance as recommended by the American Academy of Pediatrics, and early care and education providers can use the app to better understand their students’ skills and abilities and to engage families in monitoring developmental progress. The Milestone Tracker app features

· parent-friendly, interactive milestone checklists for ages two months through five years,

· photos and videos that illustrate milestones,

· personalized milestone summaries that can be easily shared with the child’s healthcare provider and others,

· tips and activities for supporting early development, including what to do if there’s a concern, and

· reminders for appointments and recommended developmental screening.

Download the app today from the App Store or Google Play (search “CDC’s Milestone Tracker”) and learn more about the app by visiting www.cdc.gov/MilestoneTracker.

8) Parent Participation in Early Intervention

Parent involvement is key for making the necessary decisions about early intervention services for children. This list of resources for parents and early intervention providers recently compiled by the Center for Parent Information and Resources offers information and strategies for supporting parent participation in developmental screening, identifying appropriate services to best meet the child's needs, and staying informed about your (parents') rights. For the list and more information, visit http://bit.ly/2E7DBJM.

9) New Head Start Disabilities Services Newsletter Explores Adapting Environment to Support Engagement

This free resource shows how effective, engaging, and accessible environments have age-appropriate equipment, materials, supplies, and physical spaces--and how teachers and families can adapt materials to support all children. For a copy of this newsletter and others, visit https://eclkc.ohs.acf.hhs.gov/children-disabilities/newsletter/disabilities-services-newsletters.

10) Annual Disability Statistics Compendium Release

On Tues., Feb. 13, join the Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) for the release of the 2017 Annual Disability Statistics Compendium. Participants are invited to join the event either in-person or online. The event will be archived for later viewing. The Compendium release event will include a briefing and overview of the new Compendium, a data panel discussion, as well as several invited speakers. For additional information and links, visit https://iod.unh.edu/event/annual-disability-statistics-compendium-release?mc_cid=719930f526&mc_eid=35d95f5b31.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - December 2017

Institute for Disability Studies

Family Health Notes

December 2017

Inside this issue:

1) Family Voices of Mississippi Board Meeting – December 15, Jackson

2) 2018 Affordable Care Act Enrollment

3) Save the Date: Family Voices of Mississippi Healthcare Advocacy/Leadership Summits – March 21, Tupelo and March 27, Pearl

4) New Transition of Care Video Series

5) Blog Post Promotes Awareness of ADHD Accommodations

6) New Interactive Website for the National Standards for Systems of Care for CYSHCN

______________________________________________________________

1) Family Voices of Mississippi Board Meeting – December 15, Jackson

The Family Voices of Mississippi (FVMS) board will meet on Friday, Dec. 15, at 1 p.m. The meeting will be held in the Mississippi Room in the basement of the IHL Tower at the Mississippi Research and Education Center at 3825 Ridgewood Road in Jackson. The board will review activities of 2017 and discuss the FVMS leadership events scheduled for March 2018. Nominations will be taken for new members. For more information, contact Keishawna Smith at ksmith@ihl.state.ms.us or 601.432.6929.

2) 2018 Affordable Care Act Enrollment

Open enrollment into the Affordable Care Act started November 1, 2017, and runs through December 15, 2017. Plans purchased during open enrollment go into effect January 1, 2018. You can apply online, by phone at 1.800.318.2596 (TTY: 1-855-889-4325), in-person or with a paper application. For general assistance, visit https://localhelp.healthcare.gov/#/results?q=MISSISSIPPI&lat=0&lng=0&state=MS&mp=FFM or https://www.healthcare.gov/contact-us/. For additional information or questions in Mississippi, call the Mississippi Family2Family Parent Coordinator at 601.432.6929.

3) Save the Date: Family Voices of Mississippi Healthcare Advocacy/Leadership Summits – March 21, Tupelo and March 27, Pearl

Join Family Voices of Mississippi at these interactive mini-conferences that will inform you of the proper steps and importance of teamwork to achieve a successful healthcare transition plan for individuals with disabilities and their families, service providers, and professionals. Learn the same usable information in two locations. There will be keynote and breakout session presenters. The breakout sessions will be in three tracks—youth/self-advocate, parent/care provider, and professionals—that will cover important steps in the healthcare transitioning process. For more information, visit the Family Voices of Mississippi website at www.familyvoicesofms.org and click on Events or contact Keishawna Smith at ksmith@ihl.state.ms.us or 601.432.6929.

4) New Transition of Care Video Series

Through the Transition of Care video series, the Child Neurology Foundation (CNF) shares the unique journeys of two patients—a teen with epilepsy and a young woman with cerebral palsy, epilepsy, and other health conditions—as they approach transitioning from a child neurologist to an adult neurologist. The video series showcases perspectives and experiences of five national transitions experts: child and adult physicians, social workers, and nurses, through brief, yet in-depth interviews. The videos underscore the importance of partnership, communication, and a defined process to ensure successful health care transitions. To access the videos and other CNF transition resources, visit www.childneurologyfoundation.org/transitions.

5) Blog Post Promotes Awareness of ADHD Accommodations

An October post to the Job Accommodation Network's (JAN) blog focused on Attention Deficit Hyperactivity Disorder (ADHD) Awareness Month. This post by Melanie Whetzel, lead consultant on the cognitive/neurological team, discussed implications of the 2017 theme, "Knowing Better: ADHD Across the Life Span." Whetzel emphasized that awareness of ADHD at all stages of the life course is important so people can better understand how to self-advocate for accommodations at home, in school, and in the workplace. Her post highlighted examples of challenging situations faced by employees with ADHD and potential solutions. To read Whetzel’s post, visit https://askjan.org/blog/?p=1030.

6) New Interactive Website for the National Standards for Systems of Care for CYSHCN

The Association of Maternal and Child Health Programs recently released a new interactive website for the National Standards for Systems of Care for Children and Youth with Special Health Care Needs, Version 2.0. This tool strives to serve the nation's 14.2 million children and youth with special health care needs. Version 2.0 of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs sets the core components for the structure and process of effective systems of care while streamlining content for easier use by states and stakeholders. For more information, visit http://cyshcnstandards.amchp.org/app-national-standards/#/.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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