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[Familyhealthnotes] Family Health Notes - July 2017

Institute for Disability Studies

Family Health Notes

July 2017

Inside this issue:

1) Family Voices of Mississippi Board Meeting – July 18, Jackson

2) Upcoming July Mississippi Parent Training and Information Center (MSPTI) Webinars

3) Mississippi Head Start Association Early Childhood Education Conference – July 23-27, Biloxi

4) Resources for Families: Building Your Care Notebook

5) Questions for the Parent Coordinator

6) New Resources on Social-Emotional Development

______________________________________________________________

1) Family Voices of Mississippi Board Meeting – July 18, Jackson

Family Voices of Mississippi (FVMS) is a statewide, family-led, non-profit organization promoting quality health care for all children and youth, particularly those with special health care needs. The FVMS board will meet on Tues., July 18, at 9 a.m. in the Mississippi Room at the Institutions of Higher Learning (IHL) Tower Building, 3825 Ridgewood Road, Jackson. FVMS board meetings are open to the public. The board will discuss upcoming project and program goals. For more information or if you are interested in becoming a member of FVMS, contact Mississippi Family to Family Parent Coordinator Keishawna Smith at 601.432.6929 or ksmith@ihl.state.ms.us.

2) Upcoming July Mississippi Parent Training and Information Center (MSPTI) Webinars

Need information on the Individualized Education Program (IEP), your child’s educational rights, or parenting; perhaps your young adult needs details on transitioning to adulthood and finding a job? MSPTI has just the informational webinar for you or your child during the month of July. Check out these webinars:

· Common Parent Mistakes During the IEP Process – July 13, 12 noon

https://register.gotowebinar.com/register/5919388357427325187

· Know Your Rights: Procedural Safeguards – July 18, 12 noon

https://register.gotowebinar.com/register/6845254113828981763

· Is It a Boy or a Girl? How to Prepare for Growing Up – July 20, 12 noon

https://register.gotowebinar.com/register/297838292284223490

· Journey to Independence: Understanding Transition and Self-Advocacy – July 25, 12 noon

https://register.gotowebinar.com/register/6820407350065712130

· Getting and Keeping the 1^st Job – July 27, 12 noon

https://register.gotowebinar.com/rt/726044195233599490

· Skills for Effective Parent Advocacy – July 31, 12 noon

https://register.gotowebinar.com/register/3055262821653889538

MSPTI also has archived webinars that you can view at a time that works for you. For a list of the recorded webinars available, visit http://www.mspti.org/resources.asp?xid=61.

3) Mississippi Head Start Association Early Childhood Education Conference – July 23-27, Biloxi

The Mississippi Head Start Association will hold its Early Childhood Education Conference on July 23-27, at the Imperial Palace in Biloxi. For more information on attending, call 601.576.2021 or visit http://109.199.106.79/~msheadstart/mississippi-early-childhood-education-conference/.

4) Resources for Families: Building Your Care Notebook

The National Center for Medical Home Implementation provides resources for families to organize and maintain records of their child's health care services to ensure that care is comprehensive, coordinated, and family-centered. Examples of resources include appointment logs, medical bill tracking forms, and a list of questions to ask clinicians. The Transitions Research and Training Center (Transitions RTC) has released two new resources for youth with disabilities. The Outside-The-Box College Accommodations- Real Support for Real Students is a tip sheet that explains students’ rights and responsibilities as they relate to mental health needs in college environments and provides a breakdown of sample accommodations. Effectively Employing Young Adult Peer Providers: A Toolkit is geared toward employers, establishing a supportive organizational culture and preparing peers and staff. For copies of the tip sheet and toolkit, click on the document links in the sentences above. For more resources from the National Center, visit https://medicalhomeinfo.aap.org/tools-resources.

5) Questions for the Parent Coordinator

Early and Periodic Screening, Diagnostic and Treatment (EPSDT) provides an array of comprehensive and preventive health care services for children under age 21. The Mississippi Family to Family (MS F2F) Parent Coordinator was recently asked: What happens to EPSDT if Medicaid is rolled back? This article explains this very well. https://ccf.georgetown.edu/wp-content/uploads/2017/06/EPSDT-At-Risk-Final.pdf.

6) New Resources on Social-Emotional Development

The Too Small to Fail initiative has released a new white paper, Not Just "Soft Skills": How Young Children’s Learning & Health Benefit from Strong Social-Emotional Development (May 2017), highlighting the research on the importance of children’s social-emotional development (SED) starting at birth. In addition, the initiative has developed new resources on SED to share directly with parents and caregivers around the country. These resources are designed to help parents easily understand the concepts behind SED, and how to apply research-based tips to their everyday lives. All of the resources are available in Spanish. For more information, visit http://bit.ly/2s7v4EC.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - June 2017

Institute for Disability Studies

Family Health Notes

June 2017

Inside this issue:

1) 2017 Mississippi disAbility MegaConference – June 15-16, Jackson

2) Webinar – Achieving True Partnership: Integrating Family Engagement in Systems of Care – June 20, 1 p.m. CDT

3) South Mississippi EmployAbility Job Fair – June 28, Gulfport

4) Resources for Families: Building Your Care Notebook

5) Infographic on Medicaid’s Role for Children with Special Health Care Needs

6) States’ Best Practices for Improving Health Care Transition

______________________________________________________________

1) 2017 Mississippi disAbility MegaConference – June 15-16, Jackson

The Mississippi disAbility MegaConference is the state’s largest conference for people with disabilities, their families, and professionals. Presenters and exhibitors share the latest information and innovations about topics such as health care, education, employment, mental health, safety, and much more! Don’t forget Dream Night at the Jackson Zoo on Wednesday evening, June 14. Conference keynote speakers are Jonathan Martinis and veteran Don Zielenski. Continuing education credits are available for social work, education and mental health professionals. For more information or to register for the conference, visit http://msmegaconference.org/.

2) Webinar – Achieving True Partnership: Integrating Family Engagement in Systems of Care – June 20, 1 p.m. CDT

The National Center for Medical Home Implementation will host the final webinar of their series on “Meaningfully and Effectively Engaging Families in Pediatric Practices and Systems” on June 20, at 1 p.m. CDT. The webinar will define and describe the characteristics of family engagement and identify practical strategies and tools that encourage and measure family engagement at the systems level, including partnerships between Title V programs, state American Academy of Pediatrics chapters, and Family-to-Family Health Information Centers. To register for the webinar, visit https://cc.readytalk.com/registration/#/?meeting=83h9kll7006f&campaign=bznetbvt8plc.

3) South Mississippi EmployAbility Job Fair – June 28, Gulfport

The Mississippi Department of Rehabilitation Services, in conjunction with the Governor’s Job Fair Network, is holding its first annual South Mississippi EmployAbility Job Fair on June 28, from 9 a.m. until 1 p.m. at the Lyman Community Center at 13742 Highway 49 in Gulfport. For more information, visit http://www.jobfairs.ms.gov.

4) Resources for Families: Building Your Care Notebook

The National Center for Medical Home Implementation provides resources for families to organize and maintain records of their child's care services to ensure that care is comprehensive, coordinated, and family-centered. Examples of resources include appointment logs, medical bill tracking forms, and a list of questions to ask clinicians. The Transitions Research and Training Center (Transitions RTC) has released two new resources for youth with disabilities. The Outside-The-Box College Accommodations-Real Support for Real Students is a tip sheet that explains students’ rights and responsibilities as they relate to mental health needs in college environments and provides a breakdown of sample accommodations. Effectively Employing Young Adult Peer Providers: A Toolkit is geared toward employers, establishing a supportive organizational culture and preparing peers and staff. For copies of the tip sheet and toolkit, click on the document links in the paragraph above. For more resources from the National Center, visit https://medicalhomeinfo.aap.org/tools-resources.

5) Infographic on Medicaid’s Role for Children with Special Health Care Needs

There are 11.2 million children in the United States with special health care needs. Children with special health care needs may require many services that may not be covered adequately by private insurance. The Kaiser Family Foundation has just released an infographic detailing Medicaid’s role for children with special health care needs with a state-by-state table. To view and print a copy of the infographic, visit http://kff.org/infographic/medicaids-role-for-children-with-special-health-care-needs/. For a Medicaid issue brief from the Kaiser Foundation, visit http://kff.org/medicaid/issue-brief/medicaid-and-children-with-special-health-care-needs/ and for a state specific table on the Medicaid enrollment of children qualifying through a disability pathway, visit http://kff.org/medicaid/state-indicator/medicaid-enrollment-of-children-qualifying-through-a-disability-pathway/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D.

6) States’ Best Practices for Improving Health Care Transition

The health care transition outcomes for young people with disabilities can be improved with innovations and collaborations. A new report from Got Transition highlights efforts of Title V programs in 32 states to increase the number of youth who receive the necessary services to make a successful transition to adult care. The report presents recommendations that states can implement. To view and print the report, visit http://gottransition.org/resourceGet.cfm?id=431

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - May 2017

Institute for Disability Studies

Family Health Notes

May 2017

Inside this issue:

1) Health and Education Empowerment Day – May 18, Tupelo

2) 2017 Mississippi disAbility MegaConference – June 15-16, Jackson

3) Need Info on a Summer Camp?

4) Better Hearing and Speech Month Coffee Break Webinars

5) Cultural Responsiveness Resource Guide

6) New 2017 Transition Coding and Reimbursement Tip Sheet Available

7) Genes and Development in Autism Spectrum Disorder

8) National Center on Improving Literacy (NCIL) Launches Website
_______________________________________________________________

1) Health and Education Empowerment Day – May 18, Tupelo

Are you the parent of a child with a disability or special health care need? Learn how to be a more effective partner in your child’s health care and education. Attend the free Health and Education Empowerment Day for families of children with disabilities on Thurs., May 18, from 8:30 a.m. until 3:30 p.m. at the Family Resource Center at 425 Magazine Street in Tupelo. Learn about care coordination and medical home, Medicaid waivers, IEP services, procedural safeguards, advocacy and communication, People First Language and disability etiquette. There will be a panel on bullying that features the reporting process and a glimpse into actions and reactions from both sides. The Health and Education Empowerment Day is sponsored by the Mississippi Family to Family project of the Institute for Disability Studies, The Arc of Mississippi and LIFE of Mississippi. Parents, advocates, educators and medical professionals can benefit from this training which will feature local and statewide resource information. CEUs have been applied for. For more information, contact Family to Family Parent Coordinator Keishawna Smith at 1.866.883.4474 or ksmith@ihl.state.ms.us.

2) 2017 Mississippi disAbility MegaConference – June 15-16, Jackson

The Mississippi disAbility MegaConference is the state’s largest conference for people with disabilities, their families, and professionals. Presenters and exhibitors share the latest information and innovations about topics such as health care, education, employment, mental health, safety, and much more! If you plan to attend and need respite care, please complete your form now. Space is limited. For more information or to register for the conference, visit http://msmegaconference.org/.

3) Need Info on a Summer Camp?

Summer is just around the corner. If you are looking for summer camp information for your child with a special health care need, call Keishawna Smith, Mississippi Family to Family parent coordinator, at 1.866.883.4474 or email her at ksmith@ihl.state.ms.us.

4) Better Hearing and Speech Month Coffee Break Webinars

May is Better Hearing and Speech Month. In celebration, the Office of Special Education Programs’ (OSEP) Early Childhood Assistive Technology Model Demonstration grantees and Center on Technology and Disability are partnering with the Office of Head Start’s Early Childhood Hearing Outreach (ECHO) Initiative to join the American Speech-Language-Hearing Association (ASHA) in celebrating this year’s theme “Communication: The Key to Connection.” Throughout the month of May, ASHA partners with national and local stakeholders to engage in a multifaceted public education campaign to raise awareness about the critical need to intervene early when young children are identified with communication disorders. The Coffee Break Webinars will focus on raising awareness about the use of assistive technology and the importance of frequent hearing screenings. Please join the Coffee Break webinar series to learn more about assistive technology and hearing screening. There is no pre-registration to join the webinars. For more information, visit http://bit.ly/2oLFW5y.

5) Cultural Responsiveness Resource Guide

The National Research Center on Hispanic Children and Families has released a new resource guide to help community-based organizations find relevant resources for developing and implementing culturally competent programs in increasingly diverse communities. Developing Culturally Responsive Approaches to Serving Diverse Populations: A Resource Guide for Community-Based Organizations (March 2017), includes information on choosing, adapting or developing interventions, conducting needs assessments, selecting appropriate measures, collaborating with other organizations, ensuring workforce diversity, budgeting for culturally competent programs, and more. For more information, visit http://bit.ly/2mzfajS.

6) New 2017 Transition Coding and Reimbursement Tip Sheet Available

Got Transition and the American Academy of Pediatrics released a new 2017 Transition Coding and Reimbursement Tip Sheet to support the delivery of recommended transition services in pediatric and adult primary and specialty care settings. The new tip sheet includes a list of updated transition-related CPT codes, including the new code for transition readiness assessment, and current Medicare fees and RVUs for these services. It also includes a new set of seven clinical vignettes with recommended CPT and ICD-10 codes. For more information, visit http://www.gottransition.org/resourceGet.cfm?id=352.

7) Genes and Development in Autism Spectrum Disorder

The National Institute of Mental Health (NIMH) at the National Institutes of Health (NIH) has published an article, Autism Awareness Month: Genes and Development in Autism Spectrum Disorder (ASD), as part of the Director's Messages blog series. The article explains recent findings about genetics and ASD, early neural development, and current research efforts at NIH on the causes of ASD, including the National Database for Autism Research, and the Autism Brain Imaging Data Exchange. For more information, visit http://bit.ly/2oA7y0Z.

8) National Center on Improving Literacy (NCIL) Launches Website

The new National Center on Improving Literacy recently has launched its website. NCIL will provide technical assistance services to families to improve literacy outcomes for children in pre-K through grade 12 with, or at risk for, literacy-related disabilities, including dyslexia. Family-focused activities will include a repository of evidence-based products and assessments; the online Kids Zone, which facilitates effective child-adult interactions for literacy development; the Ask-an-Expert tool; and a text messaging plug-in to receive text messages alerting users to new resources, events, or literacy tips. NCIL is jointly administered by the Office of Special Education and Rehabilitative Services and the Office of Elementary and Secondary Education. For more information, visit http://improvingliteracy.org/.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - Special Edition - Autism Screening Day - April 25, 2017 - Tupelo, Hernando, Cleveland, Jackson, Hattiesburg, Natchez, Biloxi

Institute for Disability Studies

Family Health Notes

Special Edition – April 10, 2017

Autism Screening Day

Tuesday, April 25, 2017

3-6 p.m.

Tupelo, Hernando, Cleveland, Jackson, Hattiesburg, Natchez, Biloxi

The Mississippi Early Childhood Center at the Institute for Disability Studies will hold free Autism Screening Day on Tues., Apr. 25, from 3 to 6 p.m. at seven locations around the state for children age 5 and under. Screenings will be held in the following locations:

· Tupelo—Children’s Advocacy Center, 2901 South Eason Boulevard

· Hernando—Hernando Public Library/First Regional, 370 W. Commerce Street

· Cleveland—Hugh Ellis Walker Alumni/Foundation House, 1003 W. Sunflower Road

· Jackson—Jackson Family First Resource Center, 350 W. Woodrow Wilson Ave., Suite 480

· Hattiesburg—Families First Resource Center, 108 Sheffield Loop

· Natchez— Families First Resource Center, 806 North Union St.

· Biloxi—Families First Resource Center, 140 St. John Avenue

Resources and referrals for families will be provided. For more information, call 1.866.883.4474.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit www.usm.edu/ids/supportus.html.

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[Familyhealthnotes] Family Health Notes - April 2017

Institute for Disability Studies

Family Health Notes

April 2017

Inside this issue:

1) Health and Education Empowerment Day – April 29, Poplarville

2) “Let's Talk About It” Educational Seminar – April 8, Jackson

3) 2017 Mississippi disAbility MegaConference – June 15-16, Jackson

4) MegaConference Awards Nominations – Deadline April 21

5) U.S. Department of Education Seeks Comments on New IDEA Website

6) New Health Section on PACER’s National Parent Center on Transition Website

7) Reaching People in Multiple Languages

_______________________________________________________________

1) Health and Education Empowerment Day – Apr. 29, Poplarville

Are you the parent of a child with a disability or special health care need? Learn how to be a more effective partner in your child’s health care and education. Attend the free Health and Education Empowerment Day for families of children with disabilities on Sat., Apr. 29, from 8:30 a.m. until 3:30 p.m. at Pearl River Community College in the Crosby Hall Olivia Bender Cafeteria at 101 Highway 11 North in Poplarville. Learn about care coordination and medical home, Medicaid waivers, IEP services, procedural safeguards, advocacy and communication, People First language and disability etiquette. There will be a panel on bullying that features the reporting process and a glimpse into actions and reactions from both sides. The Health and Education Empowerment Day is sponsored by the Mississippi Family to Family project of the Institute for Disability Studies, The Arc of Mississippi and LIFE of Mississippi. Parents, advocates, educators and medical professionals can benefit from this training which will feature local and statewide resource information. CEUs have been applied for. For more information, contact Family to Family Parent Coordinator Keishawna Smith at 1.866.883.4474 or ksmith@ihl.state.ms.us.

2) “Let's Talk About It” Educational Seminar – April 8, Jackson

Join the Mississippi Sickle Cell Foundation for an educational seminar on Sat., Apr. 8, from 10 a.m. until 12 noon at the Jackson Medical Mall Community Room at 350 West Woodrow Wilson Avenue in Jackson. Mississippi Family to Family Parent Coordinator Keishawna Smith will be one of the speakers. For more information, call Keishawna at 601.432.6929.

3) 2017 Mississippi disAbility MegaConference – June 15-16, Jackson

4) MegaConference Awards Nominations – Deadline April 21

Do you know a person, several people or an organization doing stellar work to progress the IDEA or the ADA? Don’t let their hard work go unnoticed, nominate them for the 2017 Mississippi disAbility MegaConference Champion of the ADA or Champion of IDEA Awards. For more information and nomination forms, visit http://msmegaconference.org/awards.

5) U.S. Department of Education Seeks Comments on New IDEA Website

The Office of Special Education and Rehabilitative Services (OSERS) is seeking input from users of the website, IDEA.ed.gov, as part of their effort to provide updated, easy-to-navigate IDEA resources to children with disabilities and their families, teachers, administrators, advocates, and other stakeholders. OSERS has posted a blog for comments. OSERS appreciates suggestions for improving their online resources to ensure that infants, toddlers, children and youth with disabilities and their families have the supports and services they are entitled to under the IDEA. To leave a comment, visit http://bit.ly/2lSZzvr.

6) New Health Section on PACER’s National Parent Center on Transition and Education Website

The new health section on PACER’s National Parent Center on Transition and Education (NPCTE) website includes a rich variety of resources and specific information on important issues such as health transition planning and the IEP, transitioning to health care providers who serve adults, building self-advocacy and self-care management skills, and financing your young adult’s health care. In addition, the health section of the website includes a comprehensive health assessment transition planning checklist, designed to be completed by parents and youth together. Visit the new website at http://www.pacer.org/transition/learning-center/health/.

7) Reaching People in Multiple Languages

The National Institute on Minority Health and Health Disparities (NIMHD) envisions an America in which all populations will have an equal opportunity to live long, healthy, and productive lives. NIMHD is committed to supporting research and communications efforts to improve cultural competency and health literacy. NIMHD offers a language access portal as a resource to stakeholders who work with health disparity populations with limited English proficiency to help improve language access to health information produced by the National Institutes of Health and other federal agencies. For more information and to access the portal, visit https://www.nimhd.nih.gov/programs/edu-training/language-access/index.html.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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