Institute for Disability Studies
Family Health Notes
December 3, 2012
Inside this issue:
1) That’s a Good Question – Family Voices Test Survey
2) Serve on the Board of Family Voices of Mississippi – Dec. 14, 10 a.m., Jackson
3) Transportation Needs Assessment
4) MSPTI Webinar - Journey to Independence: Understanding Transition – Dec. 12, 10 a.m.
5) CDC on Emergency Preparedness and Disaster Assistance for People with Disabilities
1) That’s a Good Question – Family Voices Test Survey
When families and health care providers work together, you have family-centered care. The national Family Voices organization is testing a survey for use in measuring whether families are getting the key elements of family-centered care. Parents and caregivers of children and youth with special health care needs can complete the test survey to help Family Voices know which questions are the best to include in the final version. The survey will take 15-20 minutes to complete and asks questions about you and your child, but nothing that will identify you. To take the Family-Centered Care Survey, visit http://www.surveymonkey.com/s/FCCA-F-1a.
2) Serve on the Board of Family Voices of Mississippi – Dec. 14, 10 a.m., Jackson
One of the founding purposes of the Family Voices organization was to assist veteran parents in helping other families who are also raising children with special health care needs. Mississippi’s newly organized Family Voices state affiliate organization, Family Voices of Mississippi, is recruiting board members from several areas of the state. Family Voices of Mississippi needs parent representation from the northwest (Delta) and southwest (Pike, Amite, and Walthall) areas of the Mississippi. The Family Voices board will meet on Fri., Dec. 14, at 10 a.m. in the third floor conference room of the IHL Building at the Mississippi Education and Research Center at 3825 Ridgewood Road in Jackson. For more information, call Cookie Smith at 1-888-671-0051.
3) Transportation Needs Assessment
To fully understand and help address the transportation needs of people with disabilities, the Mississippi Department of Rehabilitation Services is partnering with the Mississippi Transportation Coalition to conduct a transportation survey. The survey will be available from Nov. 1, through Dec. 31, via a link on Rehabilitation Services website. Numerous surveys can be completed from one computer, however, please complete only one survey per individual. To take the survey, visit Rehabilitation Service’s website http://www.mdrs.state.ms.us/default.asp and click on the link for the survey.
4) MSPTI Webinar - Journey to Independence: Understanding Transition – Dec. 12, 10 a.m.
The MSPTI webinar Journey to Independence: Understanding Transition and Self-Advocacy will be presented by Cindy Singletary, independent living specialist for LIFE of MS on the Gulf Coast on Wed., Dec. 12, at 10 a.m. Cindy will lead attendees through the common transitions of youth with disabilities and discuss preparing and possible resources for the different stages. To register, go to https://www2.gotomeeting.com/register/275525778.
5) CDC on Emergency Preparedness and Disaster Assistance for People with Disabilities
Hurricane Sandy was yet another reminder that people with disabilities need to plan ahead. Federal agencies have recognized that people with disabilities must take additional precautions to be ready for expected and unexpected winter weather events. CDC has information on emergency preparedness and disaster assistance for people with disabilities. For more information, visit http://www.cdc.gov/ncbddd/disabilityandhealth/emergencypreparedness.html.
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~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~
Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit www.usm/edu/ids or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit www.usm.edu/ids/supportus.html.
The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).
The Mississippi Integrated Community Systems (MICS) for Children and Youth with Special Health Care Needs project is working to create a seamless system of family-centered, community-based, culturally competent services and supports for children and youth with special health care needs (CYSHCN). MICS is funded by the Maternal and Child Bureau of the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#D70MC12841).
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