Institute for Disability Studies
Family Health Notes
April 2016
Inside this issue:
1) Webinar – Medical Home: Primary Health Care We All Deserve – Apr. 21, 12 p.m.
2) Free Quality Health Care Day for Families of Children with Special Health Care Needs – May 24, Pearl
3) 2016 Brain and Spinal Cord Injury Conference – Apr. 13-14, Jackson
4) How Families Can Teach Health Care Self-Advocacy
5) New AAP Online Motor Delay Tool
6) Guidance on Health Care and Job Training for Youth with Disabilities
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1) Webinar – Medical Home: Primary Health Care We All Deserve – Apr. 21, 12 p.m.
The Mississippi Family to Family Health Information and Education Center at the Institute for Disability Studies will present Medical Home: Primary Health Care We All Deserve on Thurs., Apr. 21, at 12 p.m. This webinar provides an overview of what medical home is and why, as a parent of a child/youth with a special health care need, you should advocate to implement it as standard care. The presentation also covers the origins and evolution of the medical home model, talking to your primary care manager, what should be offered and the positive outcomes to having a medical home. The presenter is Mississippi Family to Family Parent Consultant Keishawna Smith. The webinar is presented in partnership with the Mississippi Parent Training and Information Center. To register for the webinar, visit https://attendee.gotowebinar.com/register/6129354386626070788.
2) Free Quality Health Care Day for Families of Children with Special Health Care Needs - May 24, Pearl
Are you searching for quality health care for your child or youth with special health care needs (CYSHCNs)? Are you a partner at all levels in the decisions made about your child’s health care? Is finding a medical home in your community a challenge? Do you have adequate insurance to pay for the services you need? Learn more about these key measures of quality health care for your CYSHCNs and others at a free special health care day for families and health care providers scheduled from 8 a.m. until 4 p.m. on Tuesday, May 24, at the Muse Center at 515 Country Place Parkway in Pearl. For more information or to register, please contact F2F Parent Coordinator Keishawna Smith at 601.432.6929 or ksmith@ihl.state.ms.us.
3) 2016 Brain and Spinal Cord Injury Conference – Apr. 13-14, Jackson
The annual Brain and Spinal Cord Injury Conference hosted by the Brain Injury Association of Mississippi is set for Apr. 13-14, at the UMMC Conference Center at the Jackson Medical Mall at 350 Woodrow Wilson Drive in Jackson. Registration fees are free for TBI/SCI survivors, $25 for caregivers and students, and $125 for professionals. Registration includes lunch and continuing education hours. For more information and to register online, visit https://www.msbraininjury.org/.
4) How Families Can Teach Health Care Self-Advocacy
Health care is one of the most difficult areas for children with disabilities to navigate. Recognizing this need, Family Voices of New Hampshire has created resources that assist families in helping their child find their way in the medical arena. For more information, visit http://www.hopefulparents.org/2016/04/how-family-caregivers-can-teach-their.html.
5) New AAP Online Motor Delay Tool
The American Academy of Pediatrics (AAP) is providing new information for families and professionals. Physical Developmental Delays: What to Look For is an interactive online tool, for parents of children ages 5 and under to use when they are concerned about their child’s motor development. The tool lists physical activities by the age at which they are typically performed. If a parent is concerned, they can click on boxes next to activity descriptions. This creates a list – with space for notes – that can be taken to the next pediatrician appointment. For the interactive online tool, visit http://motordelay.aap.org/. Health care professionals who are approached by parents and caregivers with these concerns can refer families to the AAP clinical report, Motor Delays: Early Identification and Evaluation, which includes an algorithm to guide developmental surveillance and screening, red flags signaling a need for prompt referral and recommendations, including appropriate testing. For a copy of the clinical report, visit http://pediatrics.aappublications.org/content/131/6/e2016.full.
6) Guidance on Health Care and Job Training for Youth with Disabilities
The U.S. Department of Labor (DOL) and the U.S. Department of Health and Human Services (HHS) have issued a “Dear Colleague” letter for youth service providers, state and local agencies, and policymakers. The letter notes the interdependence between health and wellness and employment and offers guidance to ensure that young people with disabilities or chronic health conditions receive health care transition and job training services under the Affordable Care Act and Workforce Innovation and Opportunity Act (WIOA). To read a copy of the letter which focuses on health care transition planning, visit http://www.dol.gov/odep/pdf/ExpandingAccessToHealthCareServicesAndWork-BasedExperiencesForYouthWithChronicHealthConditionsAndDisabilities.pdf.
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~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~
Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.
The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).
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