Institute for Disability Studies
Family Health Notes
June 2016
Inside this issue:
1) 2016 Mississippi disAbility MegaConference – June 16-17, Jackson
2) Webinar – Addressing Health Coverage Inequities Among CSHCN – June 20, 1 p.m. CDT
3) Parenting with a Disability
4) HRSA Launches New Title V Information System Website
5) Traveling this summer? Arrange Accommodations for Airport Security Screening Ahead of Time
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1) 2016 Mississippi disAbility MegaConference – June 16-17, Jackson
There’s still time to register for the Mississippi disAbility MegaConference, the state’s largest conference for people with disabilities, their families and professionals. Speakers and vendors share the latest information and innovations on topics such as health care, education, employment, mental health and more. Continuing education credits are available for therapists, administrators, social workers, rehabilitation counselors, educators, and attorneys. On Wednesday, June 15, enjoy Dream Night at the Jackson Zoo from 5 to 7:30 p.m. The conference will be held at the Marriott Downtown in Jackson on Thursday, June 16, and Friday, June 17. Keynote speakers are Toby Willis and comedian Zach Anner. There will be an awards luncheon and evening entertainment on Thursday. For more information or to register, visit http://msmegaconference.org/.
2) Webinar – Addressing Health Coverage Inequities Among CSHCN – June 20, 1 p.m. CDT
The Catalyst Center's new tutorial, Health Care Coverage and Financing for Children with Special Health Care Needs: A Tutorial to Address Inequities, can help Maternal Child Health leaders, family leaders, and other stakeholders understand and address health care coverage inequities that exist among vulnerable subgroups of children with special health care needs based on race, ethnicity, language, immigration status, and level of functional difficulty. To register, visit https://attendee.gotowebinar.com/register/4163271466571999490.
3) Parenting with a Disability
The National Council on Disability (NCD) and the Christopher and Dana Reeve Foundation has released “Parenting with a Disability: Know Your Rights Toolkit” on the Civil Rights of Parents with Disabilities. Currently, 35 states include disability as grounds for termination of parental rights. Nine states and the District of Columbia list physical disability in particular as grounds for termination of parental rights, even without evidence of abuse or neglect. These states include Kansas, Maryland, Mississippi, New Mexico, North Dakota, Ohio, and South Carolina in addition to the nation’s capital. In every state, the presence of a disability can be arbitrarily used when determining the “best” interests of a child. To download the toolkit and the new enhanced edition of “Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children,” visit http://www.ncd.gov/publications/2012/Sep272012.
4) HRSA Launches New Title V Information System Website
HRSA (Health Resources and Services Administration) recently launched a new and useful Title V Information System (TVIS) website. It uses interactive maps to show federal and state level data (financial, performance, etc.) reported by Title V programs. You can also access your state’s snapshot and action plan; the latter identifies priority needs, outlines related objectives and strategies, and connects them to National Outcome Measures and National Performance Measures. To visit the site, got to https://mchb.tvisdata.hrsa.gov/?utm_campaign=enews05192016&utm_medium=email&utm_source=govdelivery.
5) Traveling this summer? Arrange Accommodations for Airport Security Screening Ahead of Time
With the summer travel season now here, families of children and young adults with disabilities may be concerned about dealing with airport security screenings. The Transportation Security Administration (TSA), which manages U.S. airport security, encourages families to contact the TSA for help. Calling a few days before departure to ask for appropriate accommodations can help make the process go more smoothly. For more information, visit https://www.tsa.gov/ or call the TSA Cares line at 1.855.787.2227.
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~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~
Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.
The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).
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