Family to Family: 2017

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[Familyhealthnotes] Family Health Notes - November 2017

Institute for Disability Studies

Family Health Notes

November 2017

Inside this issue:

1) Health and Education Empowerment Training – Nov. 14, McComb

2) 2018 Affordable Care Act Enrollment

3) Family Voices Resource eBlast

4) Quiz for Youth: Are You Ready to Transition to Adult Health Care?

5) Educational Advocates: A Guide for Parents - Now in Spanish

6) Expression of Language in Down Syndrome

7) SSI Payment to Increase in 2018

______________________________________________________________

1) Health and Education Empowerment Training – Nov. 14, McComb

Parents, advocates, educators and medical professionals can benefit from this training which will feature local and statewide resource information. The free Health and Education Empowerment Training for families of children with disabilities will be held on Tues., Nov. 14, from 9:30 a.m. until 2 p.m. at the McComb Public Library at 1022 Virginia Avenue in McComb. Learn about care coordination and medical home, transition, advocacy and communication, People First Language and disability etiquette. This training is sponsored by the Mississippi Family to Family project of the Institute for Disability Studies, The Arc of Mississippi and LIFE of Mississippi. For more information, contact Family to Family Parent Coordinator Keishawna Smith at 1.866.883.4474 or ksmith@ihl.state.ms.us.

2) 2018 Affordable Care Act Enrollment

Open enrollment into the Affordable Care Act starts November 1, 2017, and runs through December 15, 2017. Plans purchased during open enrollment go into effect January 1, 2018. You can apply online, by phone at 1.800.318.2596 (TTY: 1-855-889-4325), in-person or with a paper application. For general assistance, visit https://localhelp.healthcare.gov/#/results?q=MISSISSIPPI&lat=0&lng=0&state=MS&mp=FFM or https://www.healthcare.gov/contact-us/. For additional information or questions in Mississippi, call the Mississippi Family2Family Parent Coordinator at 601.432.6929.

3) Family Voices Resource eBlast

The Family Voices Resource is a free monthly e-digest of links for new resources for families of children with special Health care needs. Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities. Family Voices promotes partnership with families—including those of cultural, linguistic and geographic diversity—to improve healthcare services and policies for children. To view the November e-digest, visit http://campaign.r20.constantcontact.com/render?m=1102887255338&ca=3020355c-9c5f-4755-acaa-dcb12b3e7e81. To sign up to receive the Resource, visit

https://visitor.constantcontact.com/manage/optin?v=001te_v6vSd9juatsFFthstMJs7NNYPxTtvW2s4EenKb5ZvaX-VRmWNy38d-mNAZah_AswQfzdHH1p1ZThvQFlH3kAgmpucS7yGixaVA2gCV5U%3D.

4) Quiz for Youth: Are You Ready to Transition to Adult Health Care?

Got Transition has created a Youth Health Care Transition Quiz for youth and young adults to find out how ready they are to transition to adult care. The quiz asks about major issues important during transition years. It also gives tips and resources to address many health care transition questions, including how to add their medical information to their smartphone, what legal changes happen at 18, and how to sign up for health insurance. To take the quiz, visit http://gottransition.org/youthfamilies/HCTquiz.cfm.

5) Educational Advocates: A Guide for Parents - Now in Spanish

CADRE (The Center for Appropriate Dispute Resolution in Special Education) is offering a new parent guide to help families navigate the special education system, with tips for hiring an educational advocate and questions to consider. Additional resources are also included. To review the guide in English, visit http://www.cadreworks.org/sites/default/files/resources/Advocate-Parent-Guide-Final-2017-web.pdf. For Spanish, visit http://www.cadreworks.org/sites/default/files/resources/Defensores%20educativos-Una%20guia%20para%20padres-JULY17_0.pdf.

6) Expression of Language in Down Syndrome

This new resource, a 25-minute video, explains successful strategies and practices for language development and explores the use of sign language, visual learning, vocabulary, non-verbal communication, games and language obstacles in young children with Down Syndrome. To view the video, visit http://www.dsrf.org/programs-&-resources/our-videos/communication-video-1--understanding-and-expression-of-language-in-down-syndrome.

7) SSI Payment to Increase in 2018

People with disabilities receiving Supplemental Security Income from Social Security are set to see their largest rise in benefits in years. The Social Security Administration announced that payments will increase 2 percent in 2018. For more information, visit https://www.ssa.gov/OACT/COLA/latestCOLA.html.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - October 2017

Institute for Disability Studies

Family Health Notes

October 2017

Inside this issue:

1) Chronic Illness and Disability Conference Broadcast: Transition from Pediatric to Adult-Based Care – Oct. 5-6, Jackson and Hattiesburg

2) Building Partnerships. . . Working Together: 9^th Annual Special Education Conference for Parents and Professionals – Oct. 19-20, Jackson

3) New Diploma Options Begin in 2018-19 for 9^th Graders

4) Health Literacy Month: “Be a Health Literacy Hero”

5) Eat Better, Eat Together Awareness Month

6) Guide on Supporting Culturally and Linguistically Diverse Youth in Transition

7) Effective Family Engagement for Boosting School Readiness

8) Updated Disability Resources on Emergency Preparedness and Response

______________________________________________________________

1) Chronic Illness and Disability Conference Broadcast: Transition from Pediatric to Adult-Based Care – Oct. 5-6, Jackson and Hattiesburg

Less than 50% of families nationwide indicate their children with special health care needs have received the services necessary to make appropriate transitions to adult health care, work, and independence. Preparation and planning for health care transition is inadequate. Because of increased awareness of transitioning to adult-based care, clinicians are required to update their knowledge of the changing strategies for integrating emerging adult-based care into practice. Join the Mississippi Family2Family Health and Information Center for the 18^th Annual Chronic Illness and Disability Conference on Oct. 5-6, from 8 a.m. to 4 p.m. in the Technology Room in the basement of the IHL Building at 3825 Ridgewood Road in Jackson or in the library at the Institute for Disability Studies on the fourth floor of Bond Hall on the campus of The University of Southern Mississippi in Hattiesburg. The target audience is physicians in internal medicine, family practice, pediatrics, psychiatry, and physiatry; other health care providers including psychologists, social workers, nurses, dieticians, case managers, counselors, and primary care providers; youth and young adults who have chronic illness or disability and their parents or guardians. Continuing Education Credits are available. For more conference information, visit http://www.baylorcme.org/pdfs/1546%20-%20Chronic%202017_Brochure_Final_v9.pdf. To register or for additional information about local sites, contact Shawn Smith at 601.432.6929 or ksmith@ihl.state.ms.us in Jackson or Dr. Jerry R. Alliston at jerry.alliston@usm.edu or 601.266.5979 in Hattiesburg.

2) Building Partnerships. . . Working Together: 9^th Annual Special Education Conference for Parents and Professionals - Oct. 19-20, Jackson

The 2017 Building Partnerships...Working Together Conference is educational, enlightening and informative for parents, special education professionals and advocates. The conference will be held Thurs., Oct. 19 and Fri., Oct. 20, at the Jackson Convention Center at 105 East Pascagoula Street. The conference is a great networking and relationship building opportunity for those interested in improving outcomes for students with disabilities in Mississippi. Keynote speakers include Ronnie Sydney, LCSW, a father, therapist, author, app developer, professional speaker and entrepreneur, and Dr. Rosemarie Allen, a national expert on implicit bias and culturally responsive practices. Topics covered during the conference include parent and family engagement, dyslexia, transition from school to post school, behavior, advocacy and self-advocacy, universal design for learning, Section 504, mental illness, emergency preparedness and incorporating technology in learning. The conference is hosted by the Mississippi Department of Education and the Mississippi Parent Training and Information Center. Registration is $35. For more information and to register, visit http://events.r20.constantcontact.com/register/event?oeidk=a07eefmjnxy47d7a5e8&llr=julfnscab&showPage=true.

3) New Diploma Options Begin in 2018-19 for 9^th Graders

The Mississippi State Board of Education on Sept. 14, approved a new set of graduation options beginning with 9th graders in the 2018-2019 school year. The new diploma options will give students the opportunity to earn an endorsement with their high school diploma and will provide students with disabilities to earn a traditional diploma. The Mississippi Department of Education (MDE) will offer diploma endorsements in academic, distinguished academic and career and technical categories. The state currently has five diploma options for students including career pathway, district option, early exit exam, traditional pathway and the Mississippi Occupation Diploma option, only available for students with special needs. To read the MDE press release, visit http://www.mde.k12.ms.us/TD/news/2017/09/14/mississippi-state-board-of-education-approves-new-diploma-options-to-expand-college-and-career-opportunities-for-all-students. For more information about diploma options, visit http://www.mde.k12.ms.us/docs/secondary-education/mississippi-diploma-options.pdf?sfvrsn=2.

4) Health Literacy Month: “Be a Health Literacy Hero”

Health literacy is the ability to read, understand and act upon health information. It’s about taking action and finding ways to improve health communication. A significant gap exists between the way health care issues are communicated and the ability of most people to understand them. All people, and not just those with limited reading skills or people for whom English is a second language, are affected by limited health literacy. According to the National Action Plan to Improve Health Literacy, nearly 9 out of 10 adults have difficulty using routine health information. When people struggle with understanding how to prevent and manage health conditions, they are more likely to skip necessary medical tests, have a harder time with their diabetes or high blood pressure and visit the emergency room more often. They also tend to make mistakes with their medications, and fail to understand nutrition labels. Here are some helpful tips to improve your health literacy:

1. Improve communication with your doctors and other health professionals

· Before you leave for your appointment make a list of your symptoms and when they started. Bring a list of your current medications, write down your questions, and bring paper to take notes.

· Ask your doctor, nurse or pharmacist to use familiar language and write down their information.

· Ask questions if something is not clear. Let the health care person know if what they are telling you is confusing in any way. Ask for written materials written in plain language.

· Make sure you know whom to call with any questions you may have after you get home.

2. Take action within your community:

· Ask your librarian how to find clearly written and relevant health information. Take classes offered by librarians on Internet and social media tools.

· Attend health education programs at your public or hospital libraries, community centers, or faith-based organizations. Request these programs if they aren’t offered.

· Request that local schools teach kids about health education and deliver clear health messages to kids, like proper hand washing techniques.

For more tips on how to improve your health literacy, contact the MS Family2Family Parent Coordinator at 601.432.6929 or at ksmith@ihl.state.ms.us

5) Eat Better, Eat Together Awareness Month

Eating healthy is important, as is spending quality time with family. Eat Better, Eat Together Month encourages families to do both of these things. Here are some helpful tips to eat healthier:

· Cook with your kids. Include your children in the preparation of a meal. It’s a great way to spend time together and children love to eat what they cooked.

· Think fresh! Cooking from a box or can is a time saver but there are so many preservatives in processed food. Take your children to the farmers market or local grocery store and plan a meal with fresh veggies and proteins. It may take a few moments longer to walk through the store but it is well worth it.

For more healthy eating tips and creative ways to include the entire family, contact MS Family2Family Parent Coordinator Keishawna A. Smith, at ksmith@ihl.state.ms.us or the IDS Nutrition Ambassador Alma Ellis at aellis@ihl.state.ms.us.

6) Guide on Supporting Culturally and Linguistically Diverse Youth in Transition

A new Quick Guide from the National Technical Assistance Center on Transition (NTACT) describes strategies for supporting culturally and linguistically diverse youth in the transition planning process. NTACT's quick guides address topics relevant to students with disabilities at the secondary level, and walk through key strategies, resources, and tools for different audiences. For a copy of the seven-page guide, visit http://bit.ly/2wbbd4Q.

7) Effective Family Engagement for Boosting School Readiness

The Office of Head Start provides a series of simulations for effectively engaging families from the start. The series explores the practice of everyday strategies to develop Positive Goal-Oriented Relationships with a family. These relationships are key to work with children and families, including the journey toward school readiness. For more information, visit the website at http://bit.ly/2tJKcsP.

8) Updated Disability Resources on Emergency Preparedness and Response

The recent natural disasters affecting thousands of Americans reinforce the need for families, particularly families of individuals with disabilities, to be prepared. What can you do? The Association of University Centers on Disabilities (AUCD) has an updated list of resources on Emergency Preparedness and Management. The resources that are listed are from federal, state, local and private agencies that facilitate accessible emergency management and support. To view this important list, visit http://www.aucd.org/template/page.cfm?id=544.

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[Familyhealthnotes] Family Health Notes - Special Edition - Chronic Illness and Disability Conference Broadcast Sites: Transition from Pediatric to Adult-based Care—Oct. 5-6, 8 a.m. to 4 p.m., Jackson and Hattiesburg

Institute for Disability Studies

Family Health Notes

September 26, 2017

Inside this issue:

18^th Annual Chronic Illness and Disability Conference

Transition from Pediatric to Adult-based Care Broadcast

Thursday, Oct. 5 and Friday, Oct. 6, 8 a.m. to 4 p.m.

Jackson and Hattiesburg

The target audience for the broadcast includes physicians in internal medicine, family practice, pediatrics, psychiatry and physiatry; other health care providers including psychologists, social workers, nurses, dieticians, case managers, counselors and primary care providers; and youth and young adults who have a chronic illness or disability and their parents or guardians.

**Continuing Medical Education (CMEs) for physicians, Continuing Education Units (CEUs) for social workers and Contact hours (CCUs) for occupational and physical therapists are available. Sign up on-site.**

After the conference, participants should be able to

· Describe strategies for setting up a transition program.

· Identify barriers and successful strategies when placing youth and young adults with special health care needs, behavioral health, or intellectual disabilities into employment, housing, and available medical transition services.

· Discuss strategies for setting up a youth and young adult advisory board to assist with transition program development.

· Describe successful methods for discussing reproductive health topics with youth and young adults with intellectual delays, and/or behavioral, emotional or psychological disorders.

· Develop a practice-based framework for implementing health care transition services.

To register, visit https://www.usm.edu/disability-studies/f2f-conference.

For additional information about the local broadcast sites and CEUs, contact Shawn Smith at 601.432.6929 or ksmith@ihl.state.ms.us in Jackson and Dr. Jerry R. Alliston at 601-266-5979 or jerry.alliston@usm.edu in Hattiesburg.

This broadcast is co-provided by Baylor College of Medicine and Texas Children's Hospital and is supported by the AUCD through HRSA.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi's University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.

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[Familyhealthnotes] Family Health Notes - September 2017

Institute for Disability Studies

Family Health Notes

September 2017

Inside this issue:

1) Parenting Through Partnerships Training for Families of Children with Disabilities – September 29, McComb

2) September is Sickle Cell Awareness Month

3) Chronic Illness and Disability Conference Broadcast: Transition from Pediatric to Adult-Based Care – Oct. 5-6, Jackson and Hattiesburg

4) Every Child Belongs: Welcoming a Child with a Disability

5) Five Steps for Brain-Building “Serve and Return”

6) Annotated Collection of Free Early Childhood Resources on Culture, Diversity, and Equity

7) Thinkcollege.net Redesign

______________________________________________________________

1) Parenting Through Partnerships Training for Families of Children with Disabilities – September 29, McComb

Join Mississippi Family2Family and The Arc of Mississippi for the 2017 Disabilities Health and Education Empowerment Day. This free event will feature health resource information (local and statewide), special education knowledge and expert speakers. Parents, advocates, educators, medical professionals and others can benefit from this training. The event will be held from 9 a.m. until 1 p.m. on Fri., Sept. 29. For location and additional details, please contact the MS F2F Parent Coordinator Keishawna Smith at ksmith@ihl.state.ms.us or 601.432.6929.

2) September is Sickle Cell Awareness Month

There are a lot of activities happening this month for Sickle Cell Awareness. If you would like to know more or find out how to participate, contact the MS F2F Parent Coordinator at ksmith@ihl.state.us or 601.432.6929. If you are having an Sickle Cell Disease (SCD) awareness activity, share your pictures and stories on Facebook. Family2Family would love to celebrate with you: https://www.facebook.com/idsfamily2family or tag us @idsfamily2family.

3) Chronic Illness and Disability Conference Broadcast: Transition from Pediatric to Adult-Based Care – Oct. 5-6, Jackson and Hattiesburg

Less than 50% of families nationwide indicate their children with special health care needs have received the services necessary to make appropriate transitions to adult health care, work, and independence. Preparation and planning for health care transition is inadequate. Because of increased awareness of transitioning to adult-based care, clinicians are required to update their knowledge of the changing strategies for integrating emerging adult-based care into practice. Join the Mississippi Family2Family Health and Information Center for the 18^th Annual Chronic Illness and Disability Conference on Oct. 5-6, from 8 a.m. to 4 p.m. in the Technology Room in the basement of the IHL Building at 3825 Ridgewood Road in Jackson or in the library at the Institute for Disability Studies on the fourth floor of Bond Hall on campus at The University of Southern Mississippi in Hattiesburg. The target audience is physicians in internal medicine, family practice, pediatrics, psychiatry, and physiatry; other health care providers including psychologists, social workers, nurses, dieticians, case managers, counselors, and primary care providers; youth and young adults who have chronic illness or disability and their parents or guardians. Continuing Education Credits are available. For more conference information, visit http://www.baylorcme.org/pdfs/1546%20-%20Chronic%202017_Brochure_Final_v9.pdf. To register or for additional information about local sites, contact Shawn Smith at 601.432.6929 or ksmith@ihl.state.ms.us in Jackson or Dr. Jerry R. Alliston at jerry.alliston@usm.edu or 601.266.5979 in Hattiesburg.

4) Every Child Belongs: Welcoming a Child with a Disability

“Every child is unique, and every child can learn,” says this article in the August 2017 issue of Teaching Young Children from the National Association for the Education of Young Children (NAEYC). The article makes suggestions for basic modifications and strategies to support children with disabilities in the classroom. It also reminds teachers to re-examine their own beliefs and knowledge about families and child development so they can effectively set realistic expectations for children with disabilities. To read the article, visit http://www.naeyc.org/tyc/article/welcoming-a-child-with-a-disability.

5) Five Steps for Brain-Building “Serve and Return”

Back and forth interactions between children and adults are called “serve and return,” and allow for learning and development. Harvard University’s Center on the Developing Child has released a new tool for practitioners to use with parents and caregivers. These five easy steps developed by the Filming Interactions to Nurture Development (FIND) program are available online https://developingchild.harvard.edu/resources/5-steps-for-brain-building-serve-and-return/ and as a printable http://developingchild.harvard.edu/wp-content/uploads/2017/06/HCDC_FIND_ServeReturn_for_Parents_Caregivers.pdf tip sheet that can be shared with families.

6) Annotated Collection of Free Early Childhood Resources on Culture, Diversity, and Equity

An annotated collection of free early childhood evidence, print, audiovisual, and online sources was posted last month by the Frank Porter Graham Child Development Institute at the University of North Carolina at Chapel Hill. The collection features resources to support the application of anti-bias and culturally responsive principles in settings serving young children and families. The collection was compiled with support from the Vermont Agency of Education with funds from the Vermont Race to the Top Early Challenge grant. Download at http://unc.live/2v8DX2K.

7) Thinkcollege.net Redesign

Thinkcollege.net has become a key national online resource for information on inclusive higher education options for people with intellectual disabilities. The website has just undergone a complete overhaul in search of a cleaner look with easier navigation and new features. Users will continue to find a wide range of publications and resources, a large library of archived webinars, and a comprehensive list of current college programs. To view the updated website, visit https://thinkcollege.net/.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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[Familyhealthnotes] Family Health Notes - Special Edition - Disability Rights and Resources Workshops

Institute for Disability Studies

Family Health Notes

Special Edition - August 15, 2017

Disability Rights and Resources Workshops

11:30 a.m. to 4 p.m.

Holly Springs – Tuesday, Aug. 22 - Eddie Lee Smith Multipurpose Building, 235 North Memphis Street
Meridian – Thursday, Aug. 24 - Lauderdale County Library, 2517 7^th Street
Natchez – Wednesday, Aug. 30 - Judge George W. Armstrong Library, 220 South Commerce Street

Half-day workshop events for community members with disabilities, their families and professionals who provide services to people with disabilities,

offering free brief legal counseling, referrals, resources, and information free of charge.

Resources will range from information about education to employment to voting to wellness.

Presented by Disability Rights Mississippi, the Mississippi Council on Developmental Disabilities and The University of Southern Mississippi Institute for Disability Studies

Agenda:

11:30 a.m. – 12 p.m. – Sign in and register; gather materials; meet advocates; sign up for a 15 minute attorney session for brief legal counseling, services or referral. Refreshments available.

12 – 12:10 p.m. - Brief event overview and agency introductions
12:10 – 12:30 p.m. – Disability Rights Mississippi
An introduction to the agency and an overview of the purpose, mission, and work that they do. Also introduction of the new Executive Director, Polly Tribble.

12:30 – 12:45 p.m. – Mississippi Council on Developmental Disabilities
Introduction by Executive Director Charles Hughes; overview of programs and activities in which they are involved.

12:45 – 1:05 p.m. – Institute for Disability Studies
Introduction by Project Coordinator Alma Ellis; overview, programs, events and upcoming trainings.

1:10 – 2 p.m. – Open discussion; general questions and comments from participants. Chance to hear from the community, interactive time; surveys.
Brief break

2:15 to 3:45 p.m. – Individual attorney sessions - meet with attorneys at scheduled intervals (15 minutes each).
2:15 to 3:45 p.m. – While individual attorney sessions are going, there will be four different presentations on: wellness programs and opportunities, voting, employment programs, and the 2018 Mississippi disAbility MegaConference.

3:45 – 4 p.m. – Wrap up and conclusion, final comments or questions. Finalizing any surveys passed out. Gathering resources, refreshments, talking with advocates and directors. Surveys completed and turned in for the drawing for a $25 Walmart gift card.
4 p.m. – Drawing

For sign language requests, accessibility questions or to sign up in advance for a free 15-minute session with an attorney, call 800.772.4057 or email swalker@drms.ms.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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