Institute for Disability Studies
Family Health Notes
June 2017
Inside this issue:
1) 2017 Mississippi disAbility MegaConference – June 15-16, Jackson
2) Webinar – Achieving True Partnership: Integrating Family Engagement in Systems of Care – June 20, 1 p.m. CDT
3) South Mississippi EmployAbility Job Fair – June 28, Gulfport
4) Resources for Families: Building Your Care Notebook
5) Infographic on Medicaid’s Role for Children with Special Health Care Needs
6) States’ Best Practices for Improving Health Care Transition
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1) 2017 Mississippi disAbility MegaConference – June 15-16, Jackson
The Mississippi disAbility MegaConference is the state’s largest conference for people with disabilities, their families, and professionals. Presenters and exhibitors share the latest information and innovations about topics such as health care, education, employment, mental health, safety, and much more! Don’t forget Dream Night at the Jackson Zoo on Wednesday evening, June 14. Conference keynote speakers are Jonathan Martinis and veteran Don Zielenski. Continuing education credits are available for social work, education and mental health professionals. For more information or to register for the conference, visit http://msmegaconference.org/.
2) Webinar – Achieving True Partnership: Integrating Family Engagement in Systems of Care – June 20, 1 p.m. CDT
The National Center for Medical Home Implementation will host the final webinar of their series on “Meaningfully and Effectively Engaging Families in Pediatric Practices and Systems” on June 20, at 1 p.m. CDT. The webinar will define and describe the characteristics of family engagement and identify practical strategies and tools that encourage and measure family engagement at the systems level, including partnerships between Title V programs, state American Academy of Pediatrics chapters, and Family-to-Family Health Information Centers. To register for the webinar, visit https://cc.readytalk.com/registration/#/?meeting=83h9kll7006f&campaign=bznetbvt8plc.
3) South Mississippi EmployAbility Job Fair – June 28, Gulfport
The Mississippi Department of Rehabilitation Services, in conjunction with the Governor’s Job Fair Network, is holding its first annual South Mississippi EmployAbility Job Fair on June 28, from 9 a.m. until 1 p.m. at the Lyman Community Center at 13742 Highway 49 in Gulfport. For more information, visit http://www.jobfairs.ms.gov.
4) Resources for Families: Building Your Care Notebook
The National Center for Medical Home Implementation provides resources for families to organize and maintain records of their child's care services to ensure that care is comprehensive, coordinated, and family-centered. Examples of resources include appointment logs, medical bill tracking forms, and a list of questions to ask clinicians. The Transitions Research and Training Center (Transitions RTC) has released two new resources for youth with disabilities. The Outside-The-Box College Accommodations-Real Support for Real Students is a tip sheet that explains students’ rights and responsibilities as they relate to mental health needs in college environments and provides a breakdown of sample accommodations. Effectively Employing Young Adult Peer Providers: A Toolkit is geared toward employers, establishing a supportive organizational culture and preparing peers and staff. For copies of the tip sheet and toolkit, click on the document links in the paragraph above. For more resources from the National Center, visit https://medicalhomeinfo.aap.org/tools-resources.
5) Infographic on Medicaid’s Role for Children with Special Health Care Needs
There are 11.2 million children in the United States with special health care needs. Children with special health care needs may require many services that may not be covered adequately by private insurance. The Kaiser Family Foundation has just released an infographic detailing Medicaid’s role for children with special health care needs with a state-by-state table. To view and print a copy of the infographic, visit http://kff.org/infographic/medicaids-role-for-children-with-special-health-care-needs/. For a Medicaid issue brief from the Kaiser Foundation, visit http://kff.org/medicaid/issue-brief/medicaid-and-children-with-special-health-care-needs/ and for a state specific table on the Medicaid enrollment of children qualifying through a disability pathway, visit http://kff.org/medicaid/state-indicator/medicaid-enrollment-of-children-qualifying-through-a-disability-pathway/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D.
6) States’ Best Practices for Improving Health Care Transition
The health care transition outcomes for young people with disabilities can be improved with innovations and collaborations. A new report from Got Transition highlights efforts of Title V programs in 32 states to increase the number of youth who receive the necessary services to make a successful transition to adult care. The report presents recommendations that states can implement. To view and print the report, visit http://gottransition.org/resourceGet.cfm?id=431
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~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~
Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.
The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).
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