Institute for Disability Studies
Family Health Notes
September 2016
Inside this issue:
1) Family Engagement in Title V Programs
2) School Mornings Without Stress
3) Your Child’s Strengths
4) September is National Sickle Cell Awareness Month
5) More Health Issues Fall Under ADA Protections
6) The Influence of Health Care Policies on Children's Health and Development
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1) Family Engagement in Title V Programs
Family participation plays an essential role in state Title V Maternal and Child Health (MCH) programs. Family participation refers to individuals who are involved in a range of activities that engage families in the planning, development, and evaluation of programs and policies at the community, organizational and policy level. Family members volunteer, advise or are employed by state Title V MCH or Children and Youth with Special Health Care Needs (CYSHCN) programs. Families bring unique insight and experience and are prepared to advocate on behalf of MCH. For more information on family participation, visit http://www.amchp.org/programsandtopics/family-engagement/Pages/default.aspx.
2) School Mornings Without Stress
What is the best way to get your child up and out the door with the least amount of conflict? This article from the Child Mind® Institute agrees that school mornings are tough for families with stress levels reaching their peak, regardless of whether their children have a disability or not. The article recommends several solid tips for making mornings work more smoothly. For more information, visit http://childmind.org/article/school-mornings-without-the-stress/?utm_medium=email&utm_source=childmind&utm_content=7+-+strategies+for+getting+kids+ready+to+go&utm_campaign=weekly&source=weekly.
3) Your Child’s Strengths
Want to work with your child to identify his or her strengths? You and your child can work together on this hands on activity. Round up some markers, or crayons, scissors and tape. For the activity sheet with instructions, visit https://www.understood.org/~/media/972a63a8a93943fcaefe57e515a6b1b7.pdf.
4) September is National Sickle Cell Awareness Month
National Sickle Cell Awareness Month was first officially recognized by the federal government in 1983. The annual awareness event calls attention to sickle cell disease (SCD), a genetic disease that researchers estimate affects around 100,000 Americans. If you, your child or someone you love has SCD, you should learn as much as you can about the disease. Your health care providers and the Mississippi Family2Family are here to help you, so you should feel completely comfortable asking questions. For more information about Sickle Cell Disease, visit http://www.sicklecelldisease.org/, contact your local SCD Foundation or email the Mississippi Family2Family Parent Coordinator Keishawna Smith at ksmith@ihl.state.ms.us.
5) More Health Issues Fall Under ADA Protections
New rules from the U.S. Department of Justice will help clarify a broadened definition of "disability" under the Americans with Disabilities Act (ADA). The department is acting on an amendment passed by Congress in 2008 to include cancer, epilepsy, attention-deficit/hyperactivity disorder and other disorders under ADA protections. For more information, visit the DisabilityScoop at https://www.disabilityscoop.com/2016/08/16/regulations-broaden-covered-ada/22632/.
6) The Influence of Health Care Policies on Children's Health and Development
The Society for Research in Child Development (SRCD) recently published a new Social Policy Report, The Influence of Health Care Policies on Children's Health and Development (2016). The report looks at how health care policies influence child health and development, reviews the current state of health insurance for children and families in America, describes new models of health care, including models that connect health care with other community services, and discusses new promising strategies in child health care. For a copy of the report, visit http://srcd.org/sites/default/files/documents/spr29.4_final.pdf.
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Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.
The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).
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