Family to Family: 2016

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[Familyhealthnotes] Family Health Notes - November 2016

Institute for Disability Studies

Family Health Notes

November 2016

Inside this issue:

1) Open Enrollment for the 2017 Health Insurance Marketplace

2) “Got Info?” Parents 4 Parents Network Meeting – Tupelo, November 15

3) SPARK - Help Speed Up Autism Research

4) Person-Centered Planning in Action Workshop

5) Milestones in Action: A Free Library of Photos and Videos of Developmental Milestones

6) Reaching and Engaging with Hispanic Communities

7) Mississippi Employment Commercial

8) Guide for States/Communities Responding to the Needs of Children Affected by Zika

_______________________________________________________________

1) Open Enrollment for the 2017 Health Insurance Marketplace

You can now enroll or change your health insurance through the 2017 Health Insurance Marketplace.

Important dates to remember:

November 1, 2016: Open enrollment started — first day to enroll, re-enroll or change a 2017 insurance plan through the Health Insurance Marketplace. Coverage can start as soon as January 1, 2017.
December 15, 2016: Last day to enroll in or change plans for coverage to start January 1, 2017.
January 1, 2017: 2017 coverage starts for those who enroll or change plans by December 15, 2016.
January 31, 2017: Last day to enroll in or change a 2017 health plan. After this date, you can enroll or change plans only if you qualify for a Special Enrollment Period.

For more information or to enroll, visit https://www.healthcare.gov/.

2) “Got Info?” Parents 4 Parents Network Meeting – Tupelo, November 15

Come learn more about how to be a partner in the health care decision-making for your child with a special health care needs (CYSHCN). Learn how to navigate health systems and get the “know how” for speaking up for families like yours. Fellowship with other parents with CYSHCN. The “Got Info?” meeting will be held on Tues., Nov. 15, at the Family Resource Center at 425 Magazine Street in Tupelo from 5–7 p.m. For questions or additional information, contact Ashley Privett in Tupelo at 662.844.0013 or Keishawna Smith at 601.432.6929 or toll free at 1.866.883.4474.

3) SPARK - Help Speed Up Autism Research

SPARK is a free online study with a simple mission: to speed up research and advance the understanding of autism. A project of the University of Mississippi Medical Center, SPARK is a landmark research partnership that will connect researchers to a large group of individuals with autism and their biological families. To learn more about SPARK and register online via a secure portal, visit www.SPARKforAutism.org/UMMC.

4) Person-Centered Planning in Action Workshop

The Administration for Community Living (ACL) has posted a series of videos from a Person-Centered Planning in Action Workshop. The workshop, held in August, introduced an example of a long-term services and supports system that has embraced person-centered thinking, planning and practices. The District of Columbia’s No Wrong Door system has incorporated the approach throughout all aspects of home- and community-based services for older adults and people with disabilities, including independent living and behavioral health services. To view the Workshop on YouTube, visit https://www.youtube.com/watch?v=BjQkk7TcRtE&list=PLZLMVKd8yBA0SkbcH0OguQZyj_qhC1tIQ.

5) Milestones in Action: A Free Library of Photos and Videos of Developmental Milestones

What skills your child should have at certain ages? Use this library as an aid in completing the milestones checklist for your child’s age. To see the photos and videos with milestones checklists, visit www.cdc.gov/Milestones.

6) Reaching and Engaging with Hispanic Communities

The Child Trends Hispanic Institute recently published Reaching and Engaging with Hispanic Communities: A Research-Informed Communication Guide for Nonprofits, Policymakers, and Funders, a guide designed to help service providers and educators build communication strategies to better serve Latino children and their families. For a printable copy of the guide, visit http://www.childtrends.org/wp-content/uploads/2016/09/2016-51LatinoCommunicationsGuide.pdf.

7) Mississippi Employment Television Commercial

Mississippi Partnerships for Employment (MSPE), a recently completed five-year integrated employment project working to develop policies and remove systemic barriers for the employment of youth and young adults with intellectual and developmental disabilities, released a statewide commercial in October that features real Mississippians with disabilities who are working or want to work. To view the commercial, which appeared statewide, visit YouTube https://www.youtube.com/watch?v=fu_E9iIHGwM.

8) Guide for States/Communities Responding to the Needs of Children Affected by Zika

The Health Resources and Services Administration (HRSA) has published the “Resource Guide for States and Communities Caring for Infants and Children Affected by Zika Virus.” This guide is intended as a planning resource for states and communities as they develop a coordinated response to meet the immediate and long-term needs of infants and children affected by ZIKV, and their families.

This 25-page document is available by visiting http://www.hrsa.gov/zika/resourcesforchildrenzika.pdf.

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[Familyhealthnotes] Family Health Notes - October 2016

Institute for Disability Studies

Family Health Notes

October 2016

Inside this issue:

1) Mississippi Family2Family Advisory Council Meeting – Oct. 14, Jackson

2) Free Webinar: “Skills for Effective Parent Advocacy” – Oct. 19, 12 p.m.

3) Disability Awareness Conference – Oct. 24-25, Jackson

4) Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care Broadcast Site – Oct. 27-28, 8 a.m. to 4 p.m., Jackson

5) National Disability Employment Awareness Month

6) Health Care Coverage/Financing For CYSHCN: A Tutorial To Address Inequities

_______________________________________________________________

1) Mississippi Family2Family Advisory Council Meeting – Oct. 14, Jackson

Come join the MS F2F Advisory Council to explore transition and the other 5 key measures of quality healthcare. Let’s explore Title V in MS and how new changes are affecting your family. You will also have an opportunity to join the advisory council. The meeting will be held on Oct. 14, at 1:30 p.m. in the Technology Room of the Institutions for Higher Learning Building at 3825 Ridgewood Road in Jackson. If you plan to attend or need accommodations at the meeting, please contact Shawn Smith at 601.432.6929 or ksmith@ihl.state.ms.us.

2) Free MSPTI Webinar: “Skills for Effective Parent Advocacy” – Oct. 19, 12 p.m.

What does it mean to be an “advocate”? An advocate is a supporter, backer, believer and promoter. Parents can be all of these. The goal of this free online workshop is to expand parents’ skills to become more effective advocates. Mississippi Parent Training and Information Center Director Pam Dollar, a parent and advocate, will teach what advocacy means, how to improve advocacy skills and how to make a difference. Participants will learn six critical skills to becoming an effective advocate. Participants will also be provided with useful tips on how to locate resources, be organized, communicate effectively and resolve disagreements. For more information or to register, visit https://attendee.gotowebinar.com/register/4557953262892532225.

3) Disability Awareness Conference – Oct. 24-25, Jackson

The City of Jackson and the Mississippi Department of Rehabilitation Services (MDRS) will host the Disability Awareness Conference October 24-25, 2016, from 8 a.m. to 3 p.m., at the Jackson Marriott, located at 200 East Amite St., in Jackson. This free event, promoting the observance of National Disability Employment Awareness, will provide individuals with disabilities an opportunity to learn about the various resources available to them in the community. This year’s conference will offer educational breakout sessions on topics on assistive technology in the classroom, ethics, advocacy, and the history of the Americans with Disability Act. CEUs will be available for teachers, counselors and social workers. For more information about the conference, contact Sam Gleese, ADA Coordinator for the City of Jackson, at 601.960.1863 or sgleese@city.jackson.ms.us.

4) Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care Broadcast Site – Oct. 27-28, 8 a.m. to 4 p.m., Jackson

Less than 50% of families nationwide indicate their children with special health care needs have received the services necessary to make appropriate transitions to adult health care, work, and independence. Preparation and planning for health care transition is inadequate. Because of increased awareness of transitioning to adult-based care, clinicians are required to update their knowledge of the changing strategies for integrating emerging adult-based care into practice. Join the Mississippi Family2Family Health and Information Center for the 17^th Annual Chronic Illness and Disability Conference: “Transition from Pediatric to Adult-based Care” on Oct. 27 and 28 from 8 a.m. to 4 p.m. in the Technology Room in the basement of the IHL Building at 3825 Ridgewood Road in Jackson. For conference participants, there will be a discussion of the legal issues involved in health care transition. After the conference

· participants will be able to identify the current state of health care transition in the United States, including legal and financial issues

· discuss strategies for integrated health care transition

· develop a practice-based framework for implementing health care transition services

· identify barriers and successful strategies when placing youth/young adults with special health care needs, behavioral health, or intellectual disabilities into employment, housing, and available medical transition services, and

· describe successful disease management methods for young adults with chronic illness or disability.

For more conference information, visit http://www.baylorcme.org/pdfs/1519%20-%20Chronic%202016_Brochure_Final%20v4.pdf.

To register or for additional information about the local broadcast site, contact Shawn Smith at 601.432.6929 or ksmith@ihl.state.ms.us.

5) National Disability Employment Awareness Month

Inclusion works for opportunity, business and innovation! National Disability Employment Awareness Month (NDEAM) is held each October to educate the public about employment issues for people with disabilities and celebrate the many and varied contributions of America's workers with disabilities. What does workplace inclusion look like? Help us tell your stories by sharing your images on the MSF2F Facebook page during the entire month of October, National Disability Employment Awareness Month. Visit https://www.facebook.com/idsfamily2family, include the hashtag #InclusionWorks.

6) Health Care Coverage/Financing for CYSHCN: A Tutorial to Address Inequities

The Catalyst Center recently created a tutorial to help maternal and child health leaders, family leaders, and other stakeholders understand and address health care coverage inequities that exist among vulnerable subgroups of children and youth with special health care needs. For more information about the tutorial plus links to a webinar introducing the module and the tutorial, visit http://cahpp.org/resources/inequities-tutorial.

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[Familyhealthnotes] Family Health Notes - September 2016

Institute for Disability Studies

Family Health Notes

September 2016

Inside this issue:

1) Family Engagement in Title V Programs

2) School Mornings Without Stress

3) Your Child’s Strengths

4) September is National Sickle Cell Awareness Month

5) More Health Issues Fall Under ADA Protections

6) The Influence of Health Care Policies on Children's Health and Development

_______________________________________________________________

1) Family Engagement in Title V Programs

Family participation plays an essential role in state Title V Maternal and Child Health (MCH) programs. Family participation refers to individuals who are involved in a range of activities that engage families in the planning, development, and evaluation of programs and policies at the community, organizational and policy level. Family members volunteer, advise or are employed by state Title V MCH or Children and Youth with Special Health Care Needs (CYSHCN) programs. Families bring unique insight and experience and are prepared to advocate on behalf of MCH. For more information on family participation, visit http://www.amchp.org/programsandtopics/family-engagement/Pages/default.aspx.

2) School Mornings Without Stress

What is the best way to get your child up and out the door with the least amount of conflict? This article from the Child Mind® Institute agrees that school mornings are tough for families with stress levels reaching their peak, regardless of whether their children have a disability or not. The article recommends several solid tips for making mornings work more smoothly. For more information, visit http://childmind.org/article/school-mornings-without-the-stress/?utm_medium=email&utm_source=childmind&utm_content=7+-+strategies+for+getting+kids+ready+to+go&utm_campaign=weekly&source=weekly.

3) Your Child’s Strengths

Want to work with your child to identify his or her strengths? You and your child can work together on this hands on activity. Round up some markers, or crayons, scissors and tape. For the activity sheet with instructions, visit https://www.understood.org/~/media/972a63a8a93943fcaefe57e515a6b1b7.pdf.

4) September is National Sickle Cell Awareness Month

National Sickle Cell Awareness Month was first officially recognized by the federal government in 1983. The annual awareness event calls attention to sickle cell disease (SCD), a genetic disease that researchers estimate affects around 100,000 Americans. If you, your child or someone you love has SCD, you should learn as much as you can about the disease. Your health care providers and the Mississippi Family2Family are here to help you, so you should feel completely comfortable asking questions. For more information about Sickle Cell Disease, visit http://www.sicklecelldisease.org/, contact your local SCD Foundation or email the Mississippi Family2Family Parent Coordinator Keishawna Smith at ksmith@ihl.state.ms.us.

5) More Health Issues Fall Under ADA Protections

New rules from the U.S. Department of Justice will help clarify a broadened definition of "disability" under the Americans with Disabilities Act (ADA). The department is acting on an amendment passed by Congress in 2008 to include cancer, epilepsy, attention-deficit/hyperactivity disorder and other disorders under ADA protections. For more information, visit the DisabilityScoop at https://www.disabilityscoop.com/2016/08/16/regulations-broaden-covered-ada/22632/.

6) The Influence of Health Care Policies on Children's Health and Development

The Society for Research in Child Development (SRCD) recently published a new Social Policy Report, The Influence of Health Care Policies on Children's Health and Development (2016). The report looks at how health care policies influence child health and development, reviews the current state of health insurance for children and families in America, describes new models of health care, including models that connect health care with other community services, and discusses new promising strategies in child health care. For a copy of the report, visit http://srcd.org/sites/default/files/documents/spr29.4_final.pdf.

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[Familyhealthnotes] Family Health Notes - August 2016

Institute for Disability Studies

Family Health Notes

August 2016

Inside this issue:

1) Short Survey to Help Determine IDS Emphasis Areas

2) Fight the Bite

3) Sickle Cell Support Group – August 6, Jackson

4) Children’s Medical Program

5) 8 Things to Remember about Child Development

6) Ensuring Quality, Accessible Care for Children with Disabilities and Complex Health and Educational Needs

7) Recordings from Co-Occurring Developmental Disabilities and Mental Health Issues in Transition-Aged Youth Conference

8) Presidential Proclamation - Anniversary of the Americans with Disabilities Act, 2016

_______________________________________________________________

1) Short Survey to Help Determine IDS Emphasis Areas

Your opinion is important! The Institute for Disability Studies (IDS) is developing a five-year plan and needs your opinion. Please help IDS learn which areas of emphasis relating to disabilities are important to you. Your participation will help determine vital program focus areas. Please take five minutes to complete the short survey by visiting https://usmep.co1.qualtrics.com/jfe/form/SV_eWCtXoaQxyg3Bch by September 2, 2016.

2) Fight the Bite

Mosquito-borne illnesses in Mississippi include the West Nile virus, St. Louis encephalitis, the Chikungunya virus and Eastern Equine encephalitis. These viruses cause flu-like symptoms in people who are bitten by infected mosquitoes. Covering arms and legs with long, light-colored clothing is a good way to protect your children and yourself from mosquito bites. To learn more ways to protect your family from mosquitoes, visit http://msdh.ms.gov/msdhsite/_static/14,0,93.html?i=WestNileInterior#Information.

3) Sickle Cell Support Group – August 6, Jackson

The Sickle Cell Support Group will meet at 11 a.m. Saturday, August 6, at the Jackson Medical Mall. For more information, contact Jeanne Tate at jeannejtate@yahoo.com or 601.366.5874.

4) Children’s Medical Program

The Mississippi State Department of Health’s Children’s Medical Program (CMP) provides family-centered care coordination services for children and youth with special health care needs (CYSHCN). If your child has a chronic illness or disability, CMP may be able to help. CMP will work with you and your health care providers to arrange and organize services as well as identify needs and resources to improve the health and well-being of your child. For more information on qualifications and eligible conditions, visit http://msdh.ms.gov/msdhsite/_static/41,0,163.html.

5) 8 Things to Remember about Child Development

The Center on the Developing Child at Harvard University has published a new brief, 8 Things to Remember about Child Development, taken from the recent report, From Best Practices to Breakthrough Impacts. The Center also recently published a 3-minute video, The Case for Science-Based Innovation in Early Childhood, describing the Center's vision for using science to innovate in the early childhood field and fundamentally change the lives of children facing adversity. To download a copy of the brief and for a link to the full report, visit http://developingchild.harvard.edu/resources/8-things-remember-child-development/.

6) Ensuring Quality, Accessible Care for Children with Disabilities and Complex Health and Educational Needs

The National Academies Press has published, Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs, a summary of a workshop held by the Forum on Promoting Children's Cognitive, Affective, and Behavioral Health. The goal of the workshop was to explore the needs and challenges faced by individuals and families affected by disabilities and complex conditions, as well as opportunities and innovative approaches for those conditions. To read the summary, visit http://www.nap.edu/read/23544/chapter/1.

7) Recordings from Co-Occurring Developmental Disabilities and Mental Health Issues in Transition-Aged Youth Conference

Are you looking for information on topics concerning transition-aged youth? View session recordings and corresponding slides from the Children's Hospital Los Angeles and University Of Southern California's Community Education Conference. There are over 15 presentations that cover transition-related topics such as making and keeping friends in young adulthood, excessive restraint and seclusion in schools, competitive integrated employment, and the impact of health and fitness in the special needs community. To view the videos, visit http://www.uscucedd.org/upcoming-events/event-archive/ucedd-conference-march-2016/videos.

8) Presidential Proclamation - Anniversary of the Americans with Disabilities Act, 2016

The United States marked a pivotal moment in history for Americans with disabilities on July 26, 1990. The Americans with Disabilities Act (ADA) became a law. Twenty-six years later, the ADA is recognized as milestone law for the disability community. To read the Presidential Proclamation honoring the anniversary of the ADA, visit https://www.whitehouse.gov/the-press-office/2016/07/25/presidential-proclamation-anniversary-americans-disabilities-act-2016.

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[Familyhealthnotes] Family Health Notes - July 2016

Institute for Disability Studies

Family Health Notes

July 2016

Inside this issue:

1) Special Education Law and Advocacy Conference – July 26, Jackson

2) Free SibShops Facilitator and Demonstration Training – August 4-5, Raymond

3) Family Voices of Mississippi

4) Changes in the Affordable Care Act

5) Need to Learn More About EPSDT?

6) The Complex Child E-Magazine

7) New Pediatric-to-Adult Transition Tools Released by American College of Physicians

8) Disability 101 Site Has New Information on the ABLE Act

_______________________________________________________________

1) Special Education Law and Advocacy Conference – July 26, Jackson

The Mississippi Coalition for Citizens with Disabilities and the Mississippi Parent Training and Information Center will host a Special Education Law Conference on Thurs., July 26, 2016, from 8 a.m. to 5 p.m. at the Mississippi Sports Museum Trustmark Conference Center at 1152 Lakeland Drive in Jackson. The conference speaker, Matt Cohen, is well known for his work in special education law. He has lectured nationally on a wide variety of special education topics, as well as on mental health and confidentiality law and has authored numerous articles on these subjects. Conference topics will include an overview of IDEA including recent case law and other hot topics in special education (discipline, transition, and response to intervention/tier process). Attorneys can receive 7.5 CLEs including one ethics hour. CEUs will also be available for teachers. For more information or to register, visit http://events.r20.constantcontact.com/register/event;jsessionid=5886D3DBFD785DF3E033A7444250B50B.worker_registrant?llr=julfnscab&oeidk=a07ecqa3wgj7bd12951.

2) Free SibShops Facilitator and Demonstration Training – August 4-5, Raymond

Sibshops are for siblings (ages 8-13) of kids with disabilities. Facilitators can be service providers, family members, or others. The Mississippi Council on Developmental Disabilities and the Mississippi Parent Training and Information Center will host the SibShops Facilitator and Demonstration Training on Thurs., Aug. 5 and Fri., Aug. 6, at Eagle Ridge Conference Center in Raymond. Don Meyer, creator of the lively SibShops for young brothers and sisters of kids with special needs, will provide the training. The main goals of the workshop are to train new facilitators and parents, providers and others about ever-changing issues across the lifespan. For more information or to register, visit http://events.r20.constantcontact.com/register/event;jsessionid=3D1AF5E64DE267ECCC3CE9EE60FE0384.worker_registrant?llr=julfnscab&oeidk=a07eco22d0797c996b4.

3) Family Voices of Mississippi

Do you have a child with a special health care need? Want to learn more about Title V? Do you want to affect change in health care? If you answered “yes” to any of these questions, you should join the Family Voices of Mississippi board. For more information, contact the Mississippi Family2Family Parent Coordinator at 601.432.6929 or at ksmith@ihl.state.ms.us.

4) Changes in the Affordable Care Act

The U. S. Department of Health and Human Services has issued some new rules for health plans sold in the federal exchange next year. These changes will give consumers more information about health plans and make it easier to compare plans. These changes apply only to the 38 states, including Mississippi, using the federal exchange. What do parents of children with disabilities need to know about these changes? The National Center for Family Professional Partnerships, a project of Family Voices, has developed a tip sheet. For a copy of the tip sheet, visit http://www.fv-ncfpp.org/blog/what-parents-children-disabilities-need-know-about-changes-aca/.

5) Need to Learn More About EPSDT?

Medicaid was amended in 1967 to include the Early and Periodic Screening, Diagnostic and Treatment (EPSDT) benefit because it was discovered that military draftees and children in Head Start were being diagnosed with disabilities or chronic illnesses that could have been prevented with regular health screenings. The Catalyst Center has published information on EPSDT that explains this benefit and provides details on the covered services. For more information, visit http://cahpp.org/wp-content/uploads/2016/05/section12.pdf?utm_source=nwsltr&utm_medium=email&utm_campaign=monthly.

6) The Complex Child E-Magazine

Need information on therapies, medical issues, equipment, insurance or education. The Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand. Articles are on a wide variety of topics ranging from basic information on medical conditions and treatments to advice on how to appeal insurance company denials. The Complex Child is free—the new edition and all archived editions and articles—but is only available online. For more information and to subscribe, visit http://complexchild.org/.

7) New Pediatric-to-Adult Transition Tools Released by American College of Physicians

The American College of Physicians (ACP), representing over 143,000 internal medicine specialists, subspecialists, residents, fellows, and medical students, has announced the release of specialized toolkits to facilitate more effective transition and transfer of young adults into health care settings. The new transition toolkits contain several condition-specific tools modeled after Got Transition's Six Core Elements of Health Care Transition. The six core elements define the basic components of pediatric to adult transition and are aligned with the American Academy of Pediatrics/American Academy of Family Physicians/American College of Physicians Clinical Report on Health Care Transition. They include sample, customizable tools for internal medicine, family medicine, and med-peds providers integrating young adults with and without chronic conditions into their practice. Corresponding tools are available for pediatric providers transitioning youth to adult providers and for family medicine and med-peds providers transitioning youth to an adult approach to care without changing providers. For more information about the Six Core Elements and tip sheets on Transition Coding and Reimbursement and Starting a Health Care Transition Improvement Process, visit http://gottransition.org/providers/index.cfm and http://gottransition.org/resourceGet.cfm?id=331.

8) Disability 101 Site Has New Information on the ABLE Act

An ABLE account is a financial account that can help build assets in an account that has tax advantages. Investments in an ABLE account won’t be taxed, so wealth will grow faster. To qualify, the disability must begin before age 26. These savings can be used on many types of expenses. There are rules about spending the money in from an ABLE account, but there’s also a lot of flexibility and this money can be saved without losing benefits. For more information, visit https://ca.db101.org/ca/situations/workandbenefits/assets/program.able.htm#spend.

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