Institute for Disability Studies
Family Health Notes
December 2017
Inside this issue:
1) Family Voices of Mississippi Board Meeting – December 15, Jackson
2) 2018 Affordable Care Act Enrollment
3) Save the Date: Family Voices of Mississippi Healthcare Advocacy/Leadership Summits – March 21, Tupelo and March 27, Pearl
4) New Transition of Care Video Series
5) Blog Post Promotes Awareness of ADHD Accommodations
6) New Interactive Website for the National Standards for Systems of Care for CYSHCN
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1) Family Voices of Mississippi Board Meeting – December 15, Jackson
The Family Voices of Mississippi (FVMS) board will meet on Friday, Dec. 15, at 1 p.m. The meeting will be held in the Mississippi Room in the basement of the IHL Tower at the Mississippi Research and Education Center at 3825 Ridgewood Road in Jackson. The board will review activities of 2017 and discuss the FVMS leadership events scheduled for March 2018. Nominations will be taken for new members. For more information, contact Keishawna Smith at ksmith@ihl.state.ms.us or 601.432.6929.
2) 2018 Affordable Care Act Enrollment
Open enrollment into the Affordable Care Act started November 1, 2017, and runs through December 15, 2017. Plans purchased during open enrollment go into effect January 1, 2018. You can apply online, by phone at 1.800.318.2596 (TTY: 1-855-889-4325), in-person or with a paper application. For general assistance, visit https://localhelp.healthcare.gov/#/results?q=MISSISSIPPI&lat=0&lng=0&state=MS&mp=FFM or https://www.healthcare.gov/contact-us/. For additional information or questions in Mississippi, call the Mississippi Family2Family Parent Coordinator at 601.432.6929.
3) Save the Date: Family Voices of Mississippi Healthcare Advocacy/Leadership Summits – March 21, Tupelo and March 27, Pearl
Join Family Voices of Mississippi at these interactive mini-conferences that will inform you of the proper steps and importance of teamwork to achieve a successful healthcare transition plan for individuals with disabilities and their families, service providers, and professionals. Learn the same usable information in two locations. There will be keynote and breakout session presenters. The breakout sessions will be in three tracks—youth/self-advocate, parent/care provider, and professionals—that will cover important steps in the healthcare transitioning process. For more information, visit the Family Voices of Mississippi website at www.familyvoicesofms.org and click on Events or contact Keishawna Smith at ksmith@ihl.state.ms.us or 601.432.6929.
4) New Transition of Care Video Series
Through the Transition of Care video series, the Child Neurology Foundation (CNF) shares the unique journeys of two patients—a teen with epilepsy and a young woman with cerebral palsy, epilepsy, and other health conditions—as they approach transitioning from a child neurologist to an adult neurologist. The video series showcases perspectives and experiences of five national transitions experts: child and adult physicians, social workers, and nurses, through brief, yet in-depth interviews. The videos underscore the importance of partnership, communication, and a defined process to ensure successful health care transitions. To access the videos and other CNF transition resources, visit www.childneurologyfoundation.org/transitions.
5) Blog Post Promotes Awareness of ADHD Accommodations
An October post to the Job Accommodation Network's (JAN) blog focused on Attention Deficit Hyperactivity Disorder (ADHD) Awareness Month. This post by Melanie Whetzel, lead consultant on the cognitive/neurological team, discussed implications of the 2017 theme, "Knowing Better: ADHD Across the Life Span." Whetzel emphasized that awareness of ADHD at all stages of the life course is important so people can better understand how to self-advocate for accommodations at home, in school, and in the workplace. Her post highlighted examples of challenging situations faced by employees with ADHD and potential solutions. To read Whetzel’s post, visit https://askjan.org/blog/?p=1030.
6) New Interactive Website for the National Standards for Systems of Care for CYSHCN
The Association of Maternal and Child Health Programs recently released a new interactive website for the National Standards for Systems of Care for Children and Youth with Special Health Care Needs, Version 2.0. This tool strives to serve the nation's 14.2 million children and youth with special health care needs. Version 2.0 of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs sets the core components for the structure and process of effective systems of care while streamlining content for easier use by states and stakeholders. For more information, visit http://cyshcnstandards.amchp.org/app-national-standards/#/.
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Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.
The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).
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