Family to Family: July 2014

Institute for Disability Studies

Family Health Notes

Special Edition – July 30, 2014

Statewide Community Forums

The Mississippi Council on Developmental Disabilities, Disability Rights Mississippi and The University of Southern Mississippi Institute for Disability Studies, Mississippi’s Developmental Disabilities Network partners, will host their annual statewide community forums in August. These community forums allow Mississippi’s DD Network partners an opportunity for hearing concerns and issues to help improve services for individuals with disabilities and their families. Each meeting will be held from 5:30 to 7:30 p.m. The free town hall type meetings will be held on the following dates in Southaven, Hattiesburg and Philadelphia at these locations:

· August 7 – Southaven, First Regional Library, 8554 Northwest Drive

· August 14 – Hattiesburg, Hattiesburg Train Depot, 308 Newman Street

· August 19 – Philadelphia, Neshoba County Library, 230 Beacon Street

For more information, transportation assistance or an accommodation request, call 1.800.772.4057.

Sign language interpreters will be present at each event.

***PLEASE NOTE: If you are unable to access any of the links in Family Health Notes, please make sure the entire link is highlighted. If a link is not highlighted, please copy and paste the entire link into your Web browser.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit www.usm/edu/ids or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit www.usm.edu/ids/supportus.html.

The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).

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Institute for Disability Studies

Family Health Notes

July 2014

Inside this issue:

1) Webinar: Special Enrollment Periods for the Uninsured – July 16, 12 p.m.

2) Why Oral Health Is Important for CYSHCN

3) Baby Milestones

4) Home and Community-Based Services Advocacy

5) Got Transition’s Updated Website

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1) Webinar: Special Enrollment Periods for the Uninsured – July 16, 12 p.m.

Open enrollment for health insurance marketplace coverage closed on March 31; the next open enrollment period begins on November 15, 2014. However, individuals who experience certain qualifying life events, such as getting married or turning 26 and losing coverage through a parent's plan, have 60 days to apply for a special enrollment period and obtain new coverage. A webinar, hosted by Health and Human Services' (HHS) Faith-based and Neighborhood Partnership Center, provides an opportunity to learn about special enrollment periods and how to enroll in the marketplaces. There will also be a discussion about resources for individuals without insurance who do not qualify for a special enrollment period. Register for the webinar at https://www4.gotomeeting.com/register/835132719.

2) Why Oral Health Is Important for CYSHCN

Parents of children and youth with special health care needs have so many doctors’ appointments that it can be easy to overlook preventive care, especially dental care. Learn more about the importance of good dental care for CYSHCN and how to access it from an information-filled national Family Voices blog. Visit the dental care blog dated June 17, at http://www.fv-ncfpp.org/blog/why-oral-health-important-children-special-needs-how-access-it/.

3) Baby Milestones

What are the motor milestones for typically developing babies? Pediatrician Lisa Shulman discusses motor milestones from head control to walking for babies from birth to 24 months and what pediatricians look for during a well-baby visit in a video now available from Albert Einstein College of Medicine (NY LEND/UCEDD). To view the video, go to https://www.youtube.com/watch?v=G5wWVNYLBVk. Motor milestones is the second video in a two video set; the first video reviews communication milestone. To view the communication video, go to http://www.youtube.com/watch?v=pZSjm0drIGM.

4) Home and Community-Based Services Advocacy

The Association of University Centers on Disabilities (AUCD), the National Association of Councils on Developmental Disabilities and the Disability Rights Network have launched a new website to help advocates get involved in their states and improve the implementation of the new Medicaid rule regarding the settings of home and community-based services. The site provides links to official Centers for Medicare and Medicaid Services (CMS) resources, national advocacy resources and information for each state on their HCBS transition/compliance process. Visit the site at http://hcbsadvocacy.org/.

5) Got Transition’s Updated Website

Got Transition is pleased to announce the release of the Six Core Elements of Health Care Transition (Version 2.0), which define the basic components of transition support and are based on the 2011 Clinical Report on Health Care Transition developed by the American Academy of Pediatrics, the American Academy of Family Physicians and the American College of Physicians. Three transition tool packages are now available for 1) practices serving youth transitioning out of pediatric care, 2) practices serving youth remaining with the same provider but needing to transition to adult-focused care, and 3) practices accepting new young adults into adult care. Each package, available in English and Spanish, includes sample tools, feedback surveys, and measurement tools that are customizable and available for download. Got Transition is also launching its redesigned website with the latest transition information for health professionals, youth/young adults and families and researchers and policymakers. For more information, visit http://www.gottransition.org/.

~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~

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TO SUBSCRIBE

If this mailing was forwarded to you and you are not already subscribed to Family Health Notes, here’s how you can become a subscriber:

TO UNSUBSCRIBE

****************************************

Please visit the IDS Calendar of Events at http://www.usm.edu/ids/calevents/.

Questions may be addressed to

Alma.Ellis@usm.edu

Jerry.Alliston@usm.edu