Institute for Disability Studies
Family Health Notes
May 2019
Inside this issue:
1) National Multiple Sclerosis Society: “Childhood MS:A Guide for Parents” (resource)
2) MSPTI: “Promoting Positive Behavior in Your Child” (online training)
3) Epilepsy Foundation of Mississippi: Alvin P. Flannes Summer Camp
(resource)
4) Mississippi State Department of Health (MDHS): “Children and Youth with Special Health Care Needs (CYSHCN) Services” (resource/brochure)
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1) National Multiple Sclerosis Society: “Childhood MS:A Guide for Parents” (resource)
If your child has been diagnosed with Multiple Sclerosis (MS), or MS has been suggested as a
possible cause for your child’s symptoms, you may have lots of questions. What caused it?
How will it affect my child? Can it be cured? What does the future hold? This guide is intended to provide answers to some of these questions. It should help you to understand more about the care your child should receive, and the kind of support you are entitled to in order to manage the changes MS can bring. If you have any more questions about MS, you can find the contact details for useful resources at the end of the guide. For more information, visit
www.smrc.state.ms.us/Community_Services.html.
Also, you can download the guide here: https://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Childhood-MS-A-Guide-for-Parents.pdf.
2) Mississippi Parent Training and Information Center (MSPTI): “Promoting Positive Behavior in Your Child” (online training)
Effective discipline is essential to raising children who have self-control, behave well with peers and adults, and choose to avoid risky behaviors. The Mississippi Parent Training and Information Center (MSPTI) is hosting a webinar to discuss practical and positive ways of effective discipline.
Presented by: Patty Gautier, Family, Data & Dissemination Coordinator, REACH MS
Date: May 20th, 2019
Time: 12 p.m.-1 p.m.
Register Here: https://register.gotowebinar.com/register/910128845102379266
3) Epilepsy Foundation of Mississippi: Alvin P. Flannes Summer Camp
The Alvin P. Flannes Summer Camp is provided for Mississippi children ages 7-15 living with Epilepsy. This camp allows the children to have a great summer camp experience. Camp activities include canoeing, fishing, swimming, crafts, horse back riding and more! Nursing staff stays on site 24/7. For more information, please send inquiries and camp applications to Bonnie Holliday bholliday@efa.org or call the foundation office at 601.936.5222 ext. 1655.
For more information, visit http://epilepsy-ms.org/alvin-p-flannes-summer-2019/.
4) Mississippi State Department of Health (MDHS): “Children and Youth with Special Health Care Needs (CYSHCN) Services” (resource/brochure)
The Mississippi State Department of Health’s Children and Youth with Special Health Care Needs Services (CYSHCN), provides family-centered care coordination services for children and youth whose health care needs involve a range of specialized providers.
For more information, visit http://www.msdh.state.ms.us/msdhsite/_static/resources/7220.pdf.
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~~~~~~~~~~~~~~~~~~Family Health Notes~~~~~~~~~~~~~~~~~~
Family Health Notes is sponsored by the Institute for Disability Studies (IDS), Mississippi’s University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Southern Mississippi. IDS provides university training, community service activities, research and information that promote the independence, productivity, and community inclusion of individuals with disabilities and their families. For more information about IDS, visit http://www.usm.edu/disability-studies or call 1.888.671.0051 (TTY). To make a tax-deductible gift to IDS, visit http://www.usm.edu/disability-studies/support-ids.
The Family-to-Family Health Information and Education Center (F2F) is a family-focused, family managed resource center that empowers families of Mississippi children with special health care needs to be partners in the decisions made concerning the health of their children. F2F is funded by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (GR#H84MC07948).
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